Can anybody offer advice on lack of sleep due to hot flushes/night sweats.
I do get flushes during day but it’s worse when I’m in bed. Quilt on/off window open/closed… it’s driving me insane ?
I’ve got 8 radiotherapy left and I’m on Letrozole ? fed up of not getting any decent sleep. I don’t know if its being highten by radiotherapy or if it will ease once I’ve finished.
I’m on my 3 weekly Herceptin next week so I was planning to speak to my BCN.
I’ve also got hip/joint issues which has only started since taking Letrozole.
That sounds really difficult, I’m glad you’re planning to speak to your breast care nurse about this and whether there’s anything they recommend you try.
In the meantime, feel free to call our specialist breast care nurses for help with this, you can reach them on 0808 800 6000.
Hi,
Afraid I can’t help but I do feel exactly the same. I’m only just starting tamoxifen this week so my hot flashes were down to effects of chemo. I finished chemo in December and I am on herceptin every three weeks too. I am definitely worse the week after the herceptin injection.
Ive been advised by my breast nurse to try evening primrose oil and sage as supplements for a month or two to see if they help. Some ladies swear by ladycare magnets too. Eating less meat and spicy food can help. There are drugs they can prescribe if nothing helps x
Hi Pauline, that darned old Letrozole!! I’ve been on it for exactly a year now and I think I’ve got it sorted. Famous last words, huh?
I’ve had three different brands, but have found one is better for me. I stick with TEVA, although ACCORD is a close second.
Sugar affects me close to bedtime I realised after keeping a food habit diary. So no more choccy biccys with my night time cuppa in bed! ?
Being really tired seems to make the sweats worse . So earlier to bed and read my book a bit longer.
My joints aren’t too bad, yet. I go to TaiChi and Pilates at my local Maggies and know that is really helpful. It’s just getting the synovial fluid moving around the joints that staves off the pain.
if you go onto the treatment thread there is a whole section on Letrozole, and night sweats. Loads of ladies on there with advice from myrtle tea to knicker magnets!!!
Hope you can get some relief from the sweats. In the meantime, cotton jimjams and a hand towel to bed, as well as a chill pillow might be your option. X
Hi Pauline, i have had 6 Herceptin (3 with chemo and 3 injections) and i have had painful and stiff ankles, feet & back. I have started Letrozole today!!
My stiffness and aches are worse of a morning and i read that the best way to deal with it is to keep moving! So i am walking and keeping active. I did a park run (walk for me) and did 5k in 54 minutes. Not breaking records but i felt great afterwards.
I will wait and see what joys the Letrozole brings!!
Hi everyone I’m doing my best to find something to help with the hot flushes that don’t have phytoestrogen or oestrogen in I’m trying wellwomen plus tablets as anyone tryed them ? I did contact the company who produces this product and they have confirmed none of there wellwomen tablets etc have phytoestrogen in them…would appreciate your views thankyou xx
Hi
What time of day do you take letrizole.i changed to taking it in evening instead of morning and found symptons improved slightly along with getting active just walking or cycling short distances .
Jac
Just woken up and in a pool of sweat. Have had to go and take a cool shower as it was so bad. Have the window wide open and a gel pad but nothing working tonight. Will definitely have to speak to oncologist.
Hi I have been put on venlafaxine 37.5mg but taking the 1 tablet in one go makes me dizzy etc so i spit it in half and it’s working great flushes almost stopped it’s a antidepressant but it’s a magic tablet for flushes glad I took it as wasn’t sure my consultant prescribe it …xxx
Hi
I have started tamoxifen now for 3 weeks and about to have 20 sessions of radiotherapy - I’m having lot of night sweats and also disrupted sleep, I’m not sure what to try but going to have to take advice from GP or Oncologist as its really getting me down. I have just joined this forum and find it helpful to read the comments and know I’m not alone.
I found the hot flushes with tamioxfen do ease slightly. I don’t have a quilt on my bed anymore because I’m just don’t need it. It should settle in time ?
This reply a bit late for the OP but might help others. I have been referred for auricular accupunture - it’s funded through macmillan I believe and takes place at our chemo unit and is their go to therapy for hot flushes. 3 weeks in and there is a definite improvement already. They say 6 sessions is the point at which you can tell if it has worked. There really is nothing worse over night - hope your’s has improved . X
I have been reading these posts with interest. I am in the middle of a “Moving Forward” course run by BCC, and last week’s session was about menopause symptoms.
One of the lovely ladies on the course mentioned menopause underwear as working wonders, because of its “wicking” properties. These properties “wick” sweat away from your body and are designed to keep you cool. She added that it is quite expensive, but as an alternative, sports clothes with wicking properties can be purchased in places like TK Maxx, or in outdoor activity shops such as Mountain Warehouse/Go Outdoors.
Anyone suffering hot flushes or night sweats may want to see whether this works for them. I have one old wicking top that I had noticed was particuarly comfortable since my symptoms started, but until last week hadn’t really thought about why.