Initial lobular cancer 2017. No node involvement. Repeat this July, no node involvement. Have routine DEXA for taking letrozole…zoom forward 24 hours, emergency CT scan. Nurse rings to arrange appointment next week after MDT meeting. I have never, ever, been so scared in all my life.
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Morning hun, I’m so sorry to hear you are in this situation again.I wants to tell you my story in the hope I can help.
I was diagnosed in 2020 (aged 40) with invasive ductal and had all my treatment,surgery chemo radio and tamoxifen.I got recalled on my mamo in feb this year and diagnosed with triple negative.They think new primary.
I have had a mastectomy and dreaded chemo again.I finished this in September.
I know exactly how you feel it is such a shock after you have already been though it.
But, you will have treatment options once they figure out what the best ones are for you.I had to go one day at a time again and still do to be honest.Of course your life will change again but remember you did it once and you can do it again.
I have also made the decision that due to my treatments I am not where I was health wise and going forward and have now decided to go for ill health retirement and leave my job as a specialist nurse in nhs.
We are all here for each other on here so please reach out for what you need.There are also the fab nurses you can talk to.
Sending so much love and hope for you
Take care xxxxxx
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Hi @not_again1,
I’m so sorry to hear what you’re going through, and that you’re feeling so anxious. Please know it’s completely expected that you’d be feeling this way, as the fear of the unknown can be very overwhelming. Try not to jump to any conclusions until you’ve had your meeting and all the information is available to you.
You might find it helpful to talk things through with one of our nurses - they’re really amazing and here to support you, answer any questions you have, or can even just be a listening ear for your worries. You can reach them on 0808 800 6000.
Please keep us updated on how you’re feeling, and remember that the forum is here for you whenever you need it, any time day or night.
Sending love and all the best wishes,
Alice 
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Hi @not_again1
I had a recurrence last year as well. It absolutely floored me so I feel for you. Especially being back to waiting for who knows what at your appointment next week. We’re all here for you in anyway we can. 
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Recurrences are so hard. I had one after 5 years. But luckily this time they caught it earlier and it was smaller. Found out yesterday they got it all and it hadn’t gone to lymph nodes. So pleased. Radiotherapy to come and arguments about endocrine therapy (I couldn’t tolerate it last time), and still waiting for results of genetic testing - which is scary - but that’s another day.
It’s so hard but you just have to take it one day at a time
Sending love and hugs
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