How do you tell people?

I have just got full results and now have a firmer plan in place (HER2 positive and er+) so  op in 2 weeks going ahead and followed by chemo, herceptin, hormone blockers and radiotherapy. 

My close friends and family know what’s going on but haven’t told a lot of work colleagues or other friends. It’s my birthday today and getting loads of messages from everyone today and it’s starting to feel weird to pretend to be normal and not like I’m winded by the weight of it all the bloody time but I also don’t tell them because it’s exhausting repeating myself when people initially find out. Today is hard work!

What do you do? Do you chuck it on social media and rip the plaster off quick or does it get easier telling people as they message to catch up or you bump in to them?

I’m already anxious in case I bump in to someone and burst in to tears. 

Thanks in advance

Hiyer,

You have many choices here, its a complicated question. Firstly who you tell and if you tell are your choice, and personal to you, you don’t have to tell people or you can tell people but don’t feel obliged in either direction because everything is ‘acceptable’. Some chose to just tell close friends and family only, some are selective in individuals outside that group and some just go for telling everyone as that feels right for them in their circumstances.

I personally told very few people (but I wasn’t working at the time, which can make a difference) as I felt I didn’t want to always be asked about my BC and wanted some time to feel normal without it as part of my conversation. However, some people feel better just getting it out of the way and out there. Having control of who you tell, when and how, is part of your personal right and need at this time.

If you want to let larger groups have knowledge of your medical position - you don’t need to personally talk to them. For example you could let someone at work know who is in a position to communicate to others and say that you don’t particularly want to discuss it with anyone, but you want to let people know the situation is ongoing. Or you can select certain people and ask that they don’t pass it on and share with others, OR you can ask that a few friends pass the information on to various other people. I was never one for using social media anyway, and would certainly not have been comfortable with making an announcement that way, however I’ve seen plenty of others do just that - so in essence do what you think is right for you. However, don’t feel anxious about how you decide to do this, or how many you decide to tell - there are no ‘social norms’ for this type of situation.

How to tell ? If there are people you want to let know outside your main social/support group then how much information you pass on is also your choice. You can even start off a conversation saying ‘Forgive me if I don’t really give you much detail, but I just wanted you to know that I have been diagnosed with…I don’t feel at this moment strong enough to go into details’. Its really hard because of course people will and do question, they want to show they care, and are interested and offer support, but I recognise that melting into an emotional state is something you fear. (We do need to recognise, that it is very hard for people to hit the mark when talking to a cancer patient, as there are such individual differences in what people need and can cope with.) Go for it fast or slow - neither is right and neither is wrong, pros and cons in either direction, so you do what feels right for you based on your circumstances.

(Edited to add - later in the process, after active treatment was finished, when I didn’t feel so emotionally vulnerable I was very free and open with who I commented to )

Happy to talk about this further…hope this might help a bit ?

Hello @Rudy1  

Sending you love and virtual hugs on your birthday :two_hearts:

Tricky isn’t it? I didn’t realise quite how many people I know and who care about me until my diagnosis. I let a few people know and told them it wasn’t a secret so expected them to pass it on as I didn’t have any problem with people knowing. 

After that I found using WhatsApp groups helpful to copy and paste the same update messages across the groups rather than respond to individual enquiries as to how I was getting on. 
I think it’s human nature not to really know what to say to somebody when they tell you about their diagnosis unless you have been through it yourself: most people’s perceptions of a cancer diagnosis are invariably that it is terminal because you only hear about people who died from cancer, I was shocked at how many ladies other people knew who had been through a similar diagnosis to mine I guess it’s because we don’t all go round wearing badges saying “I’ve had breast cancer”: you might be surprised by some reactions you get
lots of love

AM xxx

Happy belated birthday.

I told close family and friends, plus colleagues initially but then after my operation and when I knew I would be getting chemo I told everyone via Facebook. My thoughts were I didn’t want to meet someone in the street and have to explain why I had no hair and also wanted breast cancer awareness to be in peoples heads.

Now I have an Instagram page just for my cancer journey and regularly post on there to support and encourage other women. I also post about my treatment on Facebook and I know of one friend whose had a lump checked out because of me - thankfully it was just a cyst.

The support I’ve had off everyone has been so wonderful. I’ve had flowers, food, gifts, cards, weekly check ins via social media - it’s really made a difference to my mental health.  I even raised £1245 for Breast Cancer Now by walking 100 miles last October.

I know some people are very private and they keep their diagnosis to themselves, but I’m more of an open book and if one person checks their boobs because of me and gets treatment then I’ll be happy. 

Lou x

Aaahhh, you have had lots of love in the responses so far. And that is hopefully the response you will have from your friends. 

I had to tell them because for me I didn’t feel and act like me. I thought they may notice so I asked my husband to let them know. 

It was easier to tell my work colleagues as they are scientists, so talking about it seemed easier, weirdly. 

I hope you had a lovely birthday. 

Best wishes

Jackb

Thank you for your lovely comments and sharing your experiences! Hope you are all doing well

And thanks for the birthday wishes  not how I thought I’d be turning 37 I’ll be honest.

I’m really lucky that I have lots of lovely family and friends around me that have been amazing support and have been checking in on me (currently eating brownies at 8:20am a friend sent through the post this morning and not sorry!), and WhatsApp/messenger has been great for updating people, but I just stress about seeing people when out and about. Seen someone I used to work with this week in a cafe, still don’t know if she knew and was being polite or not but couldn’t bring myself to say the words. 
The op is in 2 weeks and then will be having chemo (herceptin, hormone blockers and radiotherapy too) so I think I will put something on Facebook then so I don’t have to explain looking ill/wigs/turning down plans.  I have been thinking about it and think it will be what makes me feel more in control when I bump in to people.  

Its all just total balls isn’t it, and even worse that it’s during a pandemic so have the extra stress of less face to face support through it all. 

Much love to you all. Thank you for the support