Help needed oh wise ones….
Very very briefly, background is this –
diagnosed stage 2, one node positive, ER AND PR positive, HER2 negative in january this year.
Had lumpectomy, but didn’t get clear margins. 0.05 mm of dcis leftover. Said I wanted mastectomy instead of re-excision. Agreed by surgical team, but wanted me to get on with chemo first.
Had 6x fec, finished mid july.
Went back to see the surgery team a few weeks ago to discuss the options for reconstruction and at the time I asked for the other breast to be removed and reconstructed as well as the left one. They agreed, said no problem, but I have to see a psychologist first.
Waited 4 months for a psychology appointment, had it yesterday. Very difficult, she obviously thought it was a bad idea to have a bilateral mx, but on top of all that she didn’t have any of my notes, had no idea of who id seen previously etc, what the next steps are, complete mess and waste of time.
I was quite upset when I got home and so rang my bcn… she suggested I come back and speak to the surgical team again to try and move things along
‘ I’ll get back to you in a few weeks with an appointment’ were her parting words.
Am I being very irrational but im starting to feel uneasy about how long all this is taking. At the end of the day the left mastectomy is a clearance mastectomy and still very much part of the my treatment plan. If I get the bilateral mx all well and good, but the important thing is to remove the dcis that was left over.
How long should I be expected to wait for this next stage? I know I had to wait a few weeks after chemo to get it out of my system before they would operate, but I think its long enough now. Am I holding things up myself by this whole asking for a bilateral stuff?
Another complication is that I was offered the chance to go on the supremo trial, where I may or may not get radiotherapy. The cut off is the end of this year so if ive not had my operation by then I miss out on that as well.
My next scheduled appointment is with the oncologist on 16 oct, but shes nothing to do with surgery, so cant help on that score. Other than that I have no idea when I will next see the surgical team.
Am I being unreasonable ? im starting to get cross with myself that I ever bought up the idea of a bilateral mx, if I hadn’t id probably would have had my operation by now.