Hi ladies, would just like to ask how long you had to wait from the time of your diagnosis till your operation. I was diagnosed with DCSI intermediate one month ago, I’ve had the biopsy but still waiting for a MRI before a plan goes a head, the wait is driving me crazy.
7 weeks. x
Thank you
14 weeks in total from diagnosis to surgery. In between I had an ultrasound, lymph node biopsy, an MRI (a week after it they told me the imaging wasn’t clear so they had to do that one again!) and a PET scan. After each there was a wait for results. Also, the MDT meets just once a week, so if say the MDT is Tuesday morning, and the results of a test have not been received until Tuesday afternoon, you wait another week so they can be discussed. The waiting sucks!
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I would hazard a guess that DCIS is less easy to pick up the extent of, on a mammogram, so the delay is needing an mri to see the extent of it. I had my op 4 weeks after diagnosis, but only because I didn’t have a scan. However, the op showed I did have DCIS which was not known about beforehand. Luckily it didn’t change my plan much ( more rads in the end) but on the whole its probably better to get the full picture before the op.
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I was waiting 7 weeks from diagnosis to surgery, and from surgery to radiotherapy (which I’m still waiting for) it will be 15 weeks.
It will be over half a year by the time I’m finished radiotherapy. Lots of waiting about unfortunately but I can’t fault the care I’ve received so far.
It will be 19 weeks from diagnosis until surgery when I have it in two weeks time. I did move hospitals three weeks after diagnosis due to issues with my care, which has delayed it slightly.
I waited 6 months. It was torture! Diagnosed March 23. Started EC chemo May 23. Finished EC chemo July 23. Declined 12 weeks of Paclitaxol. Surgery 21st Sept 23.
Thank you ladies for all replying, I still haven’t been called up for my MRI scan, Wednesday it will be 3 wks, I feel it is a very long time to be waiting or am I over exaggerating?
No of course you’re not over exaggerating, everyone agrees the wait for treatment is the worst part. For me my MRI was organised within days, and I was contacted by the imaging dept directly. It might be that they haven’t got round to you yet, or it’s been deemed a less urgent referral, but also mistakes happen and maybe the referral hasn’t gone through. Either way you need to know. Could you ring the breast care nurses for a chat? They’re great at chasing things and reassuring and won’t want you to feel you’ve been left to negotiate all this alone xx
Yes I shall do that tomorrow
At last I’ve been called up for my MRI, i will be having it this Thursday, I’ve now got very mixed feelings, I’m so glad that I’ve been called up but also worried that they may find more than the DCSI that they mentioned before. I was also told the other day that it’s almost certain I will have my sentinel lymph node removed due to the DCSI being bigger than 3 cm.
Hope your MRI went well and you get good results soon. I’ve got my MRI next Friday, interested to know how long you waited for the results? All the best.
My Mri went well, mainly because I had anesthesia as I suffer from claustrophobia. I still haven’t had the results, but I must mention I don’t live in the UK, so things will be different. I’m praying that I get called up this week cos the waiting is driving me crazy.
I hope your MRI goes well and that you get good results, please keep us informed as I will also.
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Hi, have you had any update? I had my breast MRI this morning. The consultant had prescribed me a diazepam which I’m sure helped. It was easier than the normal MRI tube and over in about 20 minutes. Now the waiting for the results….
Have a good weekend x
Yes I got the results Tuesday, sorry for not coming back earlier but it’s been all go, Wednesday I had to go for blood tests and yesterday I had the anaesthetist.
As for my results I found it a bit strange that they never mentioned much about my DCSI, all they said was, there was no significant changes from the biopsy, they didn’t mention the size no nothing. After putting contrast in they found my fibrodeoma which I’ve had for 30 odd years and a very minute calcification which is symmetrical with the other breast which they aren’t worried about, so all in all fingers crossed that’s how it stays and that I don’t get any surprises after op. I’ve been given a date the 7th July, will be having the sentinel node taking out due to the DCSI being 37mm and a lumpsectomy.
Hope you get you results soon.
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Oh that sounds good news and at least you know what you are dealing with. I should get my results in a week, fingers crossed x
All the best to you, have a fab weekend!