I was diagnosed at the beginning of last October with secondaries in my bone marrow, bones and lymph nodes. I had a second scan last July before my diagnosis but I’ve not had another one since. I’ve queried this a couple of times, because how can the oncologist know if the treatments working on shrinking my tumours. Last month the oncologist said he would schedule a scan in March, but I’ve heard nothing yet.
Everyone else I speak to seems to have scans every 3 months or so and I’m concerned. Does anyone have any thoughts?
Hi. I was diagnosed last September. My hospital’s protocol is that you initially have a scan every three months and after two good results (hopefully) they would then class you as stable and switch to every 6 months. I do find my team are quite relaxed about ordering the scans though so I have had to be proactive and chase them to make sure they have been ordered. So I had my first ct scan pre diagnosis in September. Started treatment in October. Had my first post treatment scan in January and I’m due my second scan early April. I got a letter through after chasing for my first scan to be done in February so I had to ring up my consultant and ask for it to be brought forward to January. With my next scan they said they had ordered it but I hadn’t received a letter so I rang my BC nurse to check and turns out it hadn’t been ordered so she chased it for me. Basically I don’t relax until I have had it confirmed that someone can see on the IT system that it has been ordered. So in my experience you need to be proactive about it if you want them done in a timely manner! X