Sorry Helena and Alex, I took so long to post that up, that there’s an overlap. Helena’s covered everything really well.
Im going to look up those pictures, Helena. Maybe I need a cancer self-present?
Ali x
Thanks everyone - Helena my husband is coming with me on Tuesday. I’m sure it will be a blur so he will be able to take a lot in on my behalf aswell as support. Just need it to come round - it will be 4 weeks nearly to the day I had my ultrasound so it’s felt forever x
I’m loving the doggie photos. I’m laughing at the Ferraro Rocher Alex. I have a very naughty Beagle who will eat anything…including the sofa. She’s a handful and I was worried that I wouldn’t be able to cope with her and being ill but she’s started to settle down. I also have 3 cats and 5 kids so this year is going to be extra busy!! Live’em all though.
Ali, loving the cat photos too. When I posted I realised that I was a page behind with all the news. I will have to read through and see where everyone’s up to!
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Helena AKA The Wise Woman
As ever you were right. Shattered so put my feet up. Cake will be courtesy of Mr Marks and Mr Spencer! Now convinced every breath is a symptom of something! Breathing seems a bit quicker - stress and panic - what do you know breath gets quicker! Been out for a little stroll round the block with hubby and feel a bit better x
Can’t even comfort eat in peace!
The photos are fabulous, I love the furries. Currently have 2 cats, will tri and post pics below but not the most tech savvy so may not work!
Went to see my BCN today and got a copy of the pathology report from her which was interesting. I also had high grade DCIS which I didn’t know - only a millimetre of it but still. I also had 3 nodes taken, not the one I was told. Also found out I was PR +. It wasn’t massively illuminating but does show (like Jane knows) that what they say to you at the results appointment isn’t necessarily the whole thing. My advice to everyone is push for a copy of it if you’re a control freak like me but be warned that it gives a prognostic indicator which can be unraveled courtesy of Google so don’t ask for a copy if you don’t want that sort of information.
Given up with the photos. One may show upside down!
Good luck tomorrow Alex, take a notebook. I have an excellent memory usually and I have walked out of each appointment forgetting large sections.
Strudel - I didn’t know what NPI was, so I googled it - wish I hadn’t.
Hi Emily T ,palpitations seem to be a pretty common side effect of this experience ,a lot of women I’ve spoken to have had them in the first couple of months after being diagnosed ,it’s the effect of the stress /adrenaline on your system on your heart .I went to doc in a panic cos was having them every few minutes in the weeks after diagnosis ,he checked me out and did ECG but all was fine ,scary symptoms though. .You could have ECG to put your mind at rest but v probably the impact all all the stress.
That’s what I have been telling myself. I was also going to ask at my next meeting, did it include treatment.
I can’t understand how I am cancer free, no lymph node involvement, no vascular invasion and the lump was self contained how my prognosis was only 70%. I have chosen to ignore it.
I was was a bit pissed off with myself, as so far I haven’t read or asked for any prognosis and I had no idea what I was googling. If I had I wouldn’t have looked. I don’t even know what stage I am.
i don’t feel I’m putting my head in the sand, I just feel that I am different to everyone else, so how can anybody know my prognosis.
I am going to live forever 
Hahaha - very true I certainly can’t be 70% alive - love that.
I know that statistics can be manipulated and I tend to ignore them anyway.
Thanks Strudel.
Have a a good night.
I don’t think my pathology report had an npi on it - don’t think I want to look at the moment. My oncologist did give a useful fact that because we will be so closely monitored over the next 5 years, that our outcome if we developed another breast cancer, rather than secondaries, can be better than someone having a mammogram every three years - a bit of a positive take on it from me today.
Em - I’ve had palpitations a few times too - I made a doctors appointment earlier this week as I’ve got one or two niggles I need to discuss, and the first one I could get was 21st January - good job I’m not really ill!!
ive generally felt brighter today again, even though I only had about two hours of sleep again last night with hot flushes, indigestion and nausea, although did cry over two of my colleagues who visited at lunchtime. Can anybody explain why my nights are full of hot flushes and sweats, while during the day I’m absolutely freezing cold. I’ve spent most of the afternoon and evening under a throw with a hot water bottle, just got into bed and I’m so hot again!!My boss has asked if I’d be willing to pop in to show a colleague how to run some attendance data, so I’ve offered to go in next week - I need to see everyone at some point so this will force my hand so to speak.
Loving the animal photos - are your cats Siamese Ali? My neighbour has a lovely Siamese cat who used to visit us, but since we adopted sasha he gives us a wide berth. I love the way they ‘talk’. I always wanted a chinchilla Em - we had Syrian hamsters when our children were younger, but they live for such a short time; I have also had several rescue rabbits, I lost both of them last year, Milly last January at 10 and a half, and Lynx in September at nearly 10. Still really miss them, but I must admit it will be easier escaping for weekends in the caravan without sorting out pet care. Alex - I can almost see your jack Russell’s drooling over the doughnut - funnily the only two dogs mine likes are jack Russell’s. Zena, spaniel ears are so soft and what a handsome young man your son is.
Helena, if you’re ever going North up the M6 you can always visit for Sasha cuddles - she just loves attention. Mind you, she’s not as good on the lead as she looks; we don’t think she was socialised as a youngster and she has real trouble with other dogs - real small dog syndrome! Perhaps naughtiness comes with the name - Alex, your sasha has a real hangdog expression in that picture - hope it didn’t give her tummy ache!
Night night all.
Jane
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Em … god yes It’s sucks waiting and gets worse as time goes on and stuff gets closer - even though we are wanting stuff to happen - does that make sense?
Any way I’ve got a story . My lovely neighbours when they found out last week I had bc dropped some tablets at my door - some dandelion and some 'can a do this ’ ones ( get my meaning ) … they text me and said they’d done research for a cousin and got them for her but would give to me instead - said to take 2 dandelion and one ‘can a do this’ tablet … being very sceptical I didn’t but then did some research and thought actually it can’t hurt - so about 4 pm yesterday took one of each . I read quite a lot of stuff and think it may help … be interested to know what others think ?
Anyway they text me about 6 and asked how I was and chin up ( usual your strong stuff) and had I taken the tablets … cause the ‘can a do this’ one was a suppository , and if I took it by mouth I’d get high as a kite cause it had THC in it ???.. i suddenly realised I’d been smiling like a Cheshire Cat and laughing at ‘the Simpsons’ way too much for a bc sufferer - and my hubby was getting freaked out by my strangely new brilliant Attitude to life … anyway it wore off after an hour or 2 thank god I felt really weird actually and then I ate so much I felt sick … anyway never again or up the bum next time ?.. xxx
Hi Emma, it’s so good to hear from, (you have every right to moan on here) I was getting a bit worried about you. It has just been so long for you and you’ve seen ladies who have been diagnosed after you get sorted - No wonder you are fed up.
I was worried about my pre-op and when I had my blood pressure taken, it was really high and I asked if they would still do the operation and the Nurse replied that it wouldn’t stop it going ahead as they knew I was anxious and that was probably the reason.
I am sending you the biggest bear hug ever
Zena - LMFAO, so funny.
Jane - I think that’s what my surgeon meant when she said if it comes back we’ll just cut it out again - the fact is that they will be keeping a close eye on me. I’m back to work on Monday - I’m trying to decide whether to wear my softie or not. It rides up, so you can clearly see it’s higher than the other boob. My bra has been hurting me just under my arm (it’s because it is higher than the other side which is a good inch under my arm on my booby side) so yesterday I got a sanitary pad and stuck it over the bit that was digging into me - worked a treat ??
Emily - I’m sorry you have to deal with the woman when you are not o.k. - luckily, I work in an all male environment and I have already been told that if I am tired then I am to go home or if they see me looking tired, they will send me home. If you get tired, can you not say, sorry I’ve got to go home? And tell them this is what you have been told to do? Can you not play on the fact that you don’t even know what your treatment is yet? Sending you big hugs for today.
KimJane - are you o.k.? Are you still getting your results today? Wishing good luck, I will be thinking about you.
Em67, I was just the same ore-op. I was so worried that they would find something that would stop the operation. I went straight from being diagnosed in clinic to pre-op because the surgeon agreed to operate a few days later. Fantastic because there wasn’t much of a wait but I was in shock going through it all. I was waiting by the phone expecting to be told that I wasn’t fit enough. It’s human but pre-op is routine. You will get there. Waiting gives your mind time to run away with things. You worry about worse case scenario so that anything less becomes easier to deal with. Massive hugs xxx