HRT when ER/PR -ve

Hello,

Has anyone with hormone receptor negative breast cancer started using HRT? And if yes, what did they say about the risks?

Thanks.

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Yes I have, I started on the minimum dose of all 3. I just can’t take the symptoms any more. I haven’t told them yet, and dreading it. I have done lots of research , listened to oncologists , cancer surgeons and read oestrogen matters etc etc.

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Yeah my oncologist said it’s a blanket no. But honestly I think that the view is a bit outdated based on older trials.

I am thinking of getting a second opinion.

I hasten to add I have tried everything to assist with symptoms, tried tamoxifen, tried venlafaxine, I eat really well, supplements, run, walk yoga, meditation. Just had enough and need a bit of a life

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I was in a similar boat and felt like I was guessing in the dark, so I get why you’re weighing things up so carefully. My team had the same view as yours about risk, and they were fine with me trying a low dose and checking in often. What helped was listing my worst symptoms and tackling them one by one so it didn’t feel like an all or nothing choice.

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I got a second opinion from Prof Johnston from Royal Marsden. He essentially said that he’d have no hesitation considering HRT for me.

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Are you currently taking HRT? Is it helping?

How long have you been on your low dose HRT and is it helping?

I have been taking it now for a couple of months, I am still on the lose dose and 3/4 of my symptoms have gone.

Oh that’s good that 3/4 symptoms have gone. Thank you for sharing.

No problem, it has been such a hard decision for me, but my menopause symptoms were so bad I didn’t want to be here anymore and could just not go on, so it has made a massive difference to me and now I have a life and can enjoy it.

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