Hi, I had a lumpectomy and mastectomy for a microscopic breast cancer four years ago and was put onto tamoxifen which didnt reduce my estrodial so had to have an oopherectomy (total hysterectomy also) and was put onto Arimidex - the arimidex gave me horrendous side effects and I ended up not being able to walk and on occasion when I did, I would collapse in the street which was very devastating for my four children to see. I came off the arimidex with the consent of my oncologist for six months, this was decided a month ago. After four days I could walk again, and am now painfree. I have to have two further operations as my kidneys and gallbladder are in a mess (they were fine before meds) and I think that is part of the reason my oncologist agreed to take me off the Arimidex. Now I am worried if the cancer will return during the six month break without protection of drugs, or will the oopherectomy be enough to starve off any potential cancer cells. I am so tired of all this, but need to keep going for my kids.
its so understandable how your feeling at the moment - it’s bad enough getting your head around the cancer thing yet alone dealing with other medical issues and also the side effects of medication. Some on here have experienced extreme side effects which can knock you mentaally and physically sideways . Sounds as though your mentally running on fresh air with nothing in reserve anymore.
I think that perhaps you need to get back to your GP or better still talk to the nurses on this site to reassure you - make it very clear that your scared of a reacurance within the planned break - I think your - Onc wouldnt have suggested it if he thought you were at risk . Use these five remaing months to recuperate and get back on track - see if they can sort out your other medical needs including recovery before you go back on Arimedex or anything else they may prescribe.
Whatever you do dont bottle this up share and talk. Sx
Thank you for your reply. I will defintely use this site to try and make sense of it all.