Hey hun hang in there …
you are just in front of me …with you finishing chemo…i start my rads on the 4th i think will find out more tomorrow…
so will let you know…so pop on here and let me know how you are doing
sal xxxxxxx
Well wentto my oppointment today about rads …had all my tatoo’s done and scans ready for my rads to start…
didnt like the tatoo’s much as they hurt a little but all done now …start rads on the 5th of november…
well chat soon
big hugs sal x
Hi Sal,
At least you got the planning out the way - mine was a bit drawn out. Do you know if you get any results from the scans and appart from the first mammo I havent had any scans. I was just wwondering as I dont know when I will see onc again.
The tattoo in middle of chest really hurt - Im just glad it was only a dot that had to be done - I only have two. Will let you know how I get on on the 3rd as just ahead of you.
Enjoy the next couple of weeks of freedom
Lynda
Hi Lynda
Glad you are ok …and yes i know what you mean about tattoo’s i had 4 and they all hurt …
but glad it is done with…had last fec today so glad that is over and done with…found it hard to find a good vein…but got there in the end.
I will enjoy the few weeks got left befor the long travel back and forth to have rads…
do you feel tired or ant side effects ??? hope you dont x
well catch up soon
sal xx
Td hope you are ok …
i do start rads 5th of nov ,had pre appointment on monday and had tattoo’s was ok but did hurt a little …as the nurse said there would be no pain so she lied …
well hun catch up soon xxxxx
hi Sal, well done for finishing chemo its a great feeling to think its done but had to keep reminiding myself that for the following three weeks had to still be careful. I just coming up to week four after last one. I dont pick fec but opted for tact 2 trial so was on epi then cmf x4 for each. I really havent been too bad on chemo but last one has made me tired, keep going hot and cold, tummy problems usual stuff.
just had a call from rad team and need to go for planning again so will post a new thread for this as dont really understand why. something t do with skin tone??? Just hopeing I dont need more tatoos. I have on a good day to travel 1 hour each way.
Lynda
Hi!
I had 5 weeks of rads (25 sessions) and drove myself to and from all of them and then went to work 2/3 days a week. Perhaps I was just very lucky but felt totally normal throughout - it’s just a nuisance having to go every day. I do take Co-enzyme Q10 and have read that a hospital in the north is trialling it to prevent fatigue in rads patients, so perhaps that helped me feel okay. I didn’t need chemo so I’m sure that makes a huge difference, apart from the WLE my body was probably in good condition - although I am 64!! I found the radiologists really nice and helpful, but I did try to be very cheerful with them and they did respond and told me that some patients are very miserable and angry, as though it was their fault the person had to be there! They are only doing their job after all. I used Aloe Vera gel and then Emu Oil when skin got bad and it has healed wonderfully. Good Luck.
Thanks for that in put on you rads …Im having 13 rads over 5 weeks …i am hoping to drive myself hour there and hour back …just hope im as lucy as you Redders as last 3 cemos have been not to bad but first 3 nocked me off my feet…so just hope rads will be kind to me as i wont to go back to work on the 1st of November…
sal x
Lynda…
Hope your planning gos ok and you dont need more tatoos as they do hurt …
where are you going for your rads im going to Cheltnham[spelling] whitch is hour there and hour back …pooooooooooo
well let me know if you start a new post ???
sal x
hi, found out after ringing them back today. Nothing to worry just think as I have larger sized boobs need to use another machine so don’t get so sore.
I am being treated in Oxford now even though Bath is just down the road - I’m in Swindon so not so far from you. Will keep you posted - not long now but taking a week hol with kids in half term - cant wait!!!
Lynda x
Well have a good one …enjoy …i’m in hereford so not to far from you …well glad you are ok so do’s that meen no more tattos???
hope not …
well chat soon
sal x
Hi Lynda,
I’m on the M4 corridor, half way between Swindon & Bath, being treated at Bath. I assumed Swindon had an Oncology centre - have they not? Seems mad you’ve got to go to Oxford. Peeps don’t seem to realise; it’s not just the journey time but all the hassle of traffic (cities) and then the stress of parking (don’t get me started on the price of car parking!!!).
I start my Rads on Tuesday - all 30 of them. Had planning session 2wks ago but got to go again Mon for them to check all ok.
Hope you’re getting on ok.
hi, Zara nice to hear from someone local. Swindon onc team are based in Oxford and do come to Swindon to see patients but insist that rads are done in Oxford unless they live closer to Chippenham. I am by junction 16 so only did ask but they said no. Bath is so lovely was hoping I would get to go there to do all Xmas shopping. You can’t live far from me.
Good luck with rads on Tues, I see you are going back again. I have to tomorrow. I am starting on the 3rd as finally getting a holiday was due to start on 25th. I was dx in Jan, had WLE chemo epi + emf on trial.
Let me know how you get on.
Lynda x
Hi all
hope you dont mind me joining you, but am due to start rads in a few weeks. Will have dates confirmed this week following visit to hopsital. Was not really too worried about it, and was told nothing to it when having the tattoos! Hoping side efffects will be minimal and time flies by. Interesting to follow how everyone is coping with it, and I hope my worst bit will be the driving to the hospital each day!!! Just had my op (had chemo first), so boobs very tender and sore, so hope rads will not affect this too much.
will keep you updated
deb x
Hey ladies,
thought I’d jump in here too as I already know Sal and Td from other threads and we are all around the same stages.
I haven’t a clue when I’m starting but got tattoo’d last Thursday in prep for it. I have heard mixed reports about the rads but anything should be a breeze after chemo.
Anyway hope all are well.
Lisa
xoxo
Hey Lisa hun nice to see you on this tread…
so you have had your tattoo’s good good … lets us know when you get your date’s .
At ;least we can stat to see light at the end of the tunle.
sal x
Was told today I will start my radiotherapy after christmas, so at least I get all the holiday period free from that! Fingers tightly crossed no chemo,but won’t know until after op.Will also have to go for a bone scan to measure density, but don’t know when that will happen
Hi Lynda,
Being 10 miles West of you makes all the difference I guess!
Went for my 1st session yesterday & just my luck, one of the machines had broken-down so I got sent home again. Staff really apologetic. I’d have preferred not to have had the wasted journey, but otherwise I wasn’t too bothered - others had warned me that the machines can be quite temperamental! So now I start tomorrow (23rd Oct).
Narnia - I’ve had all my treatment at Bath. Will try to pm you…
Hi Zara…no it’s not private!! 
i guess we’ll work it out somehow…yes,all my treatment at Bath, lovely surgeon called Richard Sutton, who tells it like it is and has told me that he is going to do his best to avoid a mastectomy! He has warned that it might still need to be done, if when they examine my lump, it is not so good, or has spread, but he thinks he can spare me the mastectomy, and he will reduce the size of my other breast at the same time.I can’t tell you how much easier i feel about it all now…because, even if i do have to go throught to a mastectomy, i will feel that he honestly did all he could to prevent it. i’ll only have chemo if the tumour proves to be agrressive, but i will definately have radiotherapy, which presumably will start sometime in early January,as my op is 28th November (he’s a very much in-demand surgeon, so his list is a bit longer than the usual wait, but if things turn out as he hopes, it will have been worth the wait…and if they don’t, it won’t have made any real difference apparantly).They also say that the arimidex will help to keep things at bay, so it’s all looking a darned sight better than they originally told me…i just hope i’m not jinxing anything by talking about it!LOL. Got pre-op assessment at RUH on 5th, then admitting on 27th for the radioactive injection for my lymph glands…hope i don’t end up glowing in the dark.All in all, i am more at peace with whatever happens now…i really trust this surgeon, there was an imediate calm, reassuring and very honest approach with him, and i feel very, very lucky that he is dealing with my case,as the other surgeaons i saw have told me it was a no-choice scenario:mastectomy , that’s it.Fingers crossed for a good result.
ooooopppss!! sorry…
I got my letter yesterday so start my rads on 3rd November so I should be finished by Christmas WOOHOO!!!
Hope everyone is well
L
xo