I was told I have breast cancer today

Hello, 

I found a lump about 3 weeks ago. Went to the Drs… transferred to a hospital specialist. I had a ultrasound scan and a biopsy. In the scan they said they thought it was a fibroadenoma  and couldnt see anything wrong with my lymph nodes. Today i had to get my biopsy result back to be told it is grade 3 breast cancer . They aren’t sure if it is triple negative yet as still waiting for my HER2 results back. They say i have invasive ductal breast cancer with aprocrine features.  I had a blood test today and im waiting on a mri and ct scan and a mammary scan now, to see if there is any cancer else where im guessing? They arent sure what stage my cancer is until these tests?

I have been told i will have aggressive chemo then the tumour removed. 

I just wanna be told ill be ok and will get through this. Im 33 and have 3 kids and im just mind blown and scared. any help or info would be great 

Hi mrsquincey- first of all a big hug and a warm welcome to this lovely forum, I’m so glad you found us and hope that we can help and support you through this.

You have just had a huge shock today and not surprisingly you feel like you have just been hit by a truck. I remember a similar shock at the clinic - the first consultant I saw told me that he was 100% certain it was benign but once I had the mammogram and ultrasound they decided it didn’t look so innocent, and the biopsy confirmed their fears.

From what I have read on here, and heard from friends going through treatment, it is very usual to do further scans to check you over, I had the same as you are having. The team need to be sure what they are dealing with - and the waiting for results is the hardest time. The best advice I received was to take one day at a time and never ever to google things - Dr Google doesn’t understand your individual diagnosis and will only worry you. This is the time to be very kind and gentle with yourself, and to keep yourself busy - I am sure you are very busy with 3 children, but when they are at school that is the time for you to get out some trashy films or whatever helps you. It may sound odd, but it is easier once you get a treatment plan in place and especially a start date. Your team will hold your hand every step of the way with chemo, but please ask if any of us can answer specific worries or questions.

I also had chemo first, then surgery.

You might like to join the October chemo group that has just been set up - forum.breastcancernow.org/t5/Chemotherapy-monthly-threads/October-2020-Chemo-Starters/td-p/1343687  There is a group each month for people to join and everyone supports each other through treatment.

I’m sure you will have been assigned a breast care nurse at your hospital who you can call with questions, but there is also a lovely team of nurses on here - number at the top of the page. Or you can get in touch with the Someone Like Me service, who will put you in touch with someone with similar diagnosis to help support you.

You need to keep in mind that treatment for breast cancer has improved so much over the years and you will be under the care of a very experienced team who will consider your case very carefully. If you have specific questions, jot them down in a notebook and also write down the answers at the time - I found that if I didn’t write things down straight away it was all a blur once I was out of the appointment!

I have probably overloaded you with information so I will stop now! But please keep talking to us - come back and ask any specific questions, or just offload. Everyone just “gets is” on here, no explanation is every needed. I often found it easier to chat on here than I did to friends and family.

You really will find the strength to get through your treatment, even if it doesn’t feel like it today.

My very best wishes to you, Evie xx

Mrsquincey Sorry you find yourself on here, but glad you’ve reached out. It is a lot to try and process when you are told and you are not sure which bc you have yet. Please keep off google it will send you into orbit. Please remember your team have seen it all before and will tailor your treatments to you specifically it’s not a one size fits all. Take it a day at a time, use the threads on here, lots of tip, tricks, kindness, support and as unlikely as it sounds laughs too (especially when the steroids block you up ) you share botty unblocking tips with strangers and lots of other things too that people on the journey or have been through the journey or are living and thriving with secondary diagnoses just get and understand Please use the someone like me option on here it can be a big support too Ask away breast cancer now and everyone on here is here :two_women_holding_hands: you use the threads as much or as little as you need Put yourself first, do everything your own way, no right or wrongs it’s your journey Always ring your team about anything that doesn’t feel right during treatments you should be given a rapid response card before chemo Getting through safely is what your team want you to do and they won’t mind how often you ring them, they will be glad you are vigilant, it helps them help you :two_hearts: :two_hearts: :sparkles: :sparkles: Shi xx

My dear mrsquincey, thinking of you, and wishing you lots of luck. One day at a time to come to terms with what you have ahead, lots of support and love is coming your way

Evie is great on this site, so supportive and caring take on board her good advise.

BIG HUGS lovely lady…Tili xx

Hi mrsquincey, welcome to our lovely forum.  It’s all very daunting in the early days and a lot to process mentally.  It’s good to come on here though where everyone knows what you’re going through.  I was stage 3 locally advanced back in 2017 and after chemo, surgery and radiotherapy I’m still here and doing great.  Your kids will cope better than you think.  Mine were in university when I went through treatment but it didn’t affect them too much. They’ve both done really well.  Just try and focus on yourself and let people help out.  Do you have a good support network around you for the children?  Sending hugs. 

Hi

Welcome to the forum which I have found extremely useful.

I was in your situation on 3rd January this year when I was diagnosed with Triple Negative BC with tumour in lymph node also.

But here I am in September after 6 chemos, lumpectomy and fully lymph removal and fast forward radiotherapy (5 sessions instead of 15) and I am a BC survivor.

Won’t lie going through the majority of it through a pandemic wasn’t fun (was 2 chemos in when covid struck) but thanks to the NHS continuing my treatment and lots of support from friends and family (albeit virtual alot of the time) and a driveway that was perfect for shopping drops and social distancing, I got through it.

Few niggly side effects lingering which are all normal and manageable and emotions all over the place but am feeling positive and hoping 2021 will be a better year for everyone.

Everyone else has mentioned our journeys are different so I won’t tell you want you should or shouldn’t do except one thing I have learnt is I now listen to my body - if I feel good, I do stuff, if I feel bit fragile, I give in, eat ice cream, watch Netflix and sit on the sofa.

We are all behind you.

Love 

Lou

xx