Mum has TNBC, T3 CN1. Treatment has been going really well, I should be happy… I am happy. During the diagnosis, mum had a ct scan of her chest and also another breast MRI… The words of the oncoplastic surgeon who rang to give the results were ‘everything came back clear ‘tiny lung nodule look at it again in 3 months but nothing concerning’.
Today, mum had a letter (that was also sent to her doctor)basically recapping her last SACT Pre assessment, I saw that the lung nodule is 8mm. It has brought up fears that even though it was ‘nothing concerning’, that post chemo, the nodule won’t be there anymore. I can’t beleive I’m actually hoping for it to be there at the time of her next scans. Does the worry ever go away when it comes to supporting people with breast cancer? I feel like if I’m not worried about chemo not working, I’m worried about mets (in particular lung mets because of this one nodule). I’m tired of worrying, this all just feels like a nightmare that I can’t seem to wake up from.
I do feel for you at this worrying time amd didnt just want to scroll on
I am 71. How old is your mum? Ive had b cancer twice and during the last had ct scan where the report found a tiny lung nodule unlikely to be of significance
As I wasn’t having chemo this second time this nodule wasn’t monitored and 2 years on im ok
You’re right this constant anxiety is so tiring
Wishing you and your mum well xx
This means so much to me Sue, thank you. Mum is mid 60s… mets hasn’t even been mentioned by anyone other than myself, and that’s part of my worry.
I have put the lung nodule at the back of my mind because I heard that it was tiny, but then found out it was 8mm. I know a lot of nodules are benign, I do know lung mets typically present as multiple nodules, but I also think what if?….
I don’t want to be told there’s nothing concerning only to be let down later on. U try and take my mind off of things but cancer is always there, whether that’s through seeing the picc line, hearing it being mentioned on TV or just through remembering why my shoulders have been tense. Everyone else is calm and coping, but I genuinely feel like everyday is a new nightmare despite things going well… I’m scared 24/7… I’m terrified
Hi there
Sounds like you’re really going through it at the moment. Just to echo that the constant anxiety is indeed very draining and can feel much worse when everyone else around you seems to be coping quite well. Some people find that the loved one diagnosed with breast cancer is actually doing better emotionally than they are!
I’d highly recommend getting some support for yourself and reaching out here was an excellent step. I’ve included a link below with info on supporting someone with cancer, but you might want pay particular attention to point number 3, which focuses on support available for yourself. I’ve personally contacted the Macmillan helpline a couple of times and I can’t tell you the difference it made to what started out as an absolutely rubbish day.
All the very best to you and your mum. x
Thank you! I’ve been in contact with macmillan nurses multiple times and have been really helpful. I think my anxiety has increased because it appears we’re either past the halfway point or approaching it (in terms of chemotherapy) and of course that means scans at some point. Things have been going well so far and I’m scared to be optimistic. You’re right about her coping better than I am. For now I’m keeping in mind that we were told that the lung nodule was nothing concerning, I’ll hold onto that for now ![]()
Hi @anxiousdaughter try not to worry (easier said than done I know). This exact same thing has just happened to me. Had a pre chemo CT scan of my chest in June last year which showed a subpleural nodule which they said they wanted to keep an eye on. A repeat CT scan in October showed that nodule had reduced in size but another one had appeared along with swollen lymph nodes. Another CT scan in February this year showed both had disappeared. My oncologist told me that it is quite common to develop nodes which come and go and that these were probably inflammatory nodules due to an infection. Probably best to keep an eye with 3 monthly CT scans but fingers crossed they’re just an incidental finding.
, @anxiousdaughter, thinking of you, how lucky is your mum to have such a caring daughter, take on day at a time at the moment, unfortunately the onlookers can suffer more than the patient.
Wishing mum well, with health and happiness going forward.
Fingers crossed for a good outcome
Hugs Tili ![]()
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You have no idea how reading this experience helped me a bit. They actually told mum at diagnosis that it was nothing concerning, we have been fortunate enough to not have any other experiences of cancer in the family, so everything has been overwhelming and new and I feel like I’ve just been waiting for something to go wrong. I had been searching for experiences of people who saw maybe shrinkage / disappearance during/post chemo and for it NOT to be written of as lung mets. Thank you for taking the time to reply and share your experience, it means a lot
Thank you Tili, this means a lot. She’s truly my best friend as well as being my mum. wish I could take this from her. It’s breaking my heart and reading other experiences on here breaks my heart too. None of this is fair for anyone ![]()
There is a general rule for life, not just this situation.
If you can do something about it, then do it.
If you can’t do anything about it, then stop worrying, you are wasting your energy.
Your worrying about your mum isn’t helping her. In fact she is probably worrying about you worrying.
Put it in a mental box and shut the lid firmly.
What will be will be.
Good luck with this, harsh though it may sound. You need to cling to sanity.
Just wanted to let you know you are not alone. Thinking of you and your mum. Take care ![]()