inconclusive test results - Phyllode or fibroadenoma

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Hi there, I am new to this site. I found a lump about two and a half months ago. Its painful and sensative and my nipple itches and hurts.

I had a mammogram, sonogram and 3 attemps at a biopsy. The mammogram showed nothing. Sonogram revealed the painful lump and quite a few lumps behind my nipple. The consultant decided to take a biospy, she wasn’t happy with the 1st attempt, said she didn’t get enough and the lump kept moving. She still wasn’t happy with the 2nd so went for a third attempt, by than the local anaesthetic had worn off and it hurt like hell (I was nearly on the ceiling.

9/9/09 went to get results after waiting 2 weeks. I was extremely nervous. Consultant hadn’t read my notes properly, he didn’t even know that I had a biopsy done (not a very good start!)

He quickly read my notes and said everything was fine and lump was benign, so I asked what type of lump it was? The consultant said the biospy was inconclusive (quote ‘they didn’t hit the right spot’)and they didn’t knownwhat it is, and suggested it could be fibroadenoma or a Phyllode

How can the consultant be sure its nothing nasty when the biopsy is useless?

I was given three choices, either leave it , or have another Biopsy, or a lumpectomy.

Leaving it aint an option, they don’t know what it is, it hurts more now than it did when I 1st found it and it feels bigger. Having a 2nd biopsy, well after 3 fumbled attempts last time! what happens if 2nd round of result are still inconclusive.
A Lumpectomy scares me but its the only treatment for a phyllode, but a bit drastic if the lump turns out to be a fibroadenoma.

I have chosen to have it removed… have I made the right choice?

If the painful lump is a phyllode, will they test/remove lumps behind nipple?

ekk got so many questions. Sorry post is so long
Chantelle

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Hi Littlemiss,

Welcome to the Breast Cancer Care discussion forums. I’m sure you’ll get lots of support from the many informed users of this site. While you are waiting for replies I’ve put for you below links to 3 of BCC’s publications which I hope you may find useful. If you feel you would like to talk to someone in confidence then please do phone BCC’s helpline and have a chat with one of the staff here. Calls to the helpline are free, 0808 800 6000 lines open Mon-Fri 9am - 5pm and Sat 9am - 2pm. I hope some of this helps.

Fibro: breastcancercare.org.uk/server/show/nav.718/changeTemplate/PublicationDisplay/publicationId/66

Phyllodes: breastcancercare.org.uk/server/show/nav.718/changeTemplate/PublicationDisplay/publicationId/60

Your op and recovery: breastcancercare.org.uk/server/show/nav.718/changeTemplate/PublicationDisplay/publicationId/100

Kind regards,
Jo, Facilitator

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Littlemiss - so sorry you are going through this - for what it’s worth,I would go with your decision to have lumpectomy…wishing you lots of luck xxchipperxx

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Hi Littlemiss,

I would have made the same decision as you. Once they get it out and test it they can tell for certain what it is and then you will have piece of mind.

I had a lumpectomy and for me it wasn’t as bad as all the waiting and worry before hand. You will be sore afterwards, but you can take pain killers.

Good luck and keep us posted.

Al
xx

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Hi, I’m in a similar but different position…after 2 biopsies, a mamogram, and an MRI my results are inconclusive. I’ve been advised to have my (rather large) lump out but have faffed around for a good few weeks now thinking what if I have to go through all that and it’s benign, but then again what if I don’t and it’s not.
I’ve since decided to have it out although am anxious about how it will look afterwards
Good luck with your decision making…it’s horrible not knowing what to do isn’t it
Raineyx

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Update

Had surgery today. Surgeon decided to remove both lumps (the one i could feel and the one the scan revealled behind my nipple). Under Knife for 2 hours. Feel rough, v.sore and one sided. Had blood pressure problems in surgery. one minute it was high next it was too low.

Won’t get results for 4 to 6 weeks! :frowning:
Still, I am releaved both are out

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I get my results on the 7th October, Not sure why they told me 4-6 week wait.

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Think I have found another in left breast, the 7th October can’t come quick enough!

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