Infiltration of bone marrow

Living with secondary breast cancer Treatments and medical issues
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I was recently diagnosed as de novo metastatic breast cancer. There is now a possibility it has infiltrated the bone marrow. Please can anyone tell me their experience of this and what it has meant for treatment ?

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Hi @penny1, I’ve just found your post and wonder how you are? I was diagnosed with triple positive invasive BC in 2020. I had pre and post chemo. Ever since I’ve struggle with low wbc, lymphocytes and platelets. This year I’ve been in hospital with oral thrush that’s still not clearing. The team changed me from tamoxifen to letrozole to see if it helped but yesterday I was told it hasn’t and been referred to haemotology who called me today saying I need a bone marrow biopsy. Safe to say I’m scared.

Hope you’re doing ok x

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Hi Claire B

I hope you are doing well. My oncologist decided that as my platelets were falling before diagnosis it was most likely fact it has infiltrated bone marrow and so thankfully I didn’t have a biopsy.

My platelets and neutrophils have to be monitored closely as they fall with the ribociclib. It’s a roller coaster and I don’t know what will happen when my bloods are done again next week… I’m back on everything… letrizole, zoladex, denosumab and Ribo but it could change again!

Hope you have got through things ok xx

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@penny1 thank you - I have the bone marrow biopsy on Monday and then Haemotologist in 3wks.

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Hi Penny can I ask what is de novo, I was diagnosed in July with mets in my spine didn’t even know at that point I had breast cancer no signs until about a month before when I found a lump
Sorry I can’t answer your question about bone marrow

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De novo is what they call it when you are straight to secondary with no primary like you have.

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Hi Penny thanks for that, it was such a shock as I imagine yours was too didn’t see it coming, I’m on Abemaciclib, Letrozole and the bone injection, I have my second scan next week so hoping everything is doing as it should, good luck with your bloods next week

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Hi rascal
How did you get on? I had a positive scan yesterday. So very hopeful!

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Hi penny1, that’s such good news, I get my results on Friday quite anxious but keeping everything crossed :crossed_fingers: