Information please about regional recurrence
Information please about regional recurrence I’m posting this here as well as on the local recurrence forum. I had a biopsy yesterday on a lump on a clavicle lymph node. Ultrasound indeterminate and was possibility of a cyst but needle biopsy yielded no liquid so had full biopsy of solid lump, (Biopsy by the wa was agony…like electrical current coursing through my arm and shoulder).
Get the results next week, and if its cancer it will be more scans cause of heighetned risk of further spread…then chemo of some kind…assuming this one if it is…is triple negative too.
Has anyone got any information about clavicle spread? (this is 3.5 years since diagnosis but original diagnosis not good so I’ve been lucky so far.) Interent searches and all those cancer books don’t say much, so any experiences please?
Some of you on this forum who I feel are old friends may understand my slightly sardnic twist on this given our many debates on Jane Plant’s recurrence…if this is recurrence I’ll stick to the UK defintion of Stage IV…
Its a pretty horrible time…but I know you all know about tears, tests and waiting.
Jane
Hi Jane,
I can’t really help with your question but would just like to offer you my best wishes. I’ve followed your posts with interest since you first started posting on this site. I was diagnosed just before you with a tumour in my left breast, then, two years ago a new primary in my other breast. I had spread to the skin from that but was told that it was ‘regional’ and not Stage 1V.
I am fine now after treatment and hope that you will be too. Assuming of course that it is a recurrence that you have! It may well be nothing to worry about, Jane. Whatever, I wish you all the very best.
love
Sue
Hello Jane, I can’t help as diagnosed stage 4 (the UK stage 4) from start but just wanted to let you know I’m thinking of you. The waiting is so stressful…Take Care…xx
Hello Jane, i am sorry to read your post - hopefully it will be fine. Fingers crossed for you. There are thousand of tests done that are benign we mostly only get to hear of the bad ones on here. Try to keep your chin up
SX
Just to say thinking of you Jane,
Your posts have been very useful and a comfort to me many times, just wanted to say I’m thinking of you!
Lou
x
regional Hi Jane
was diagnosed with regional recurrance in January after 7 years in axilla and clavical. Have been on just Arimidex and was scared stiff that it wasn’t enough but did start on dairy free immediately. Have had quite dramatic and speedy results was told aramatase wouldn’t work for at least three months (are they leaving me to die sais I) but ache in arm disappeared after ten days and recent ultra sound couldn’t find two of tumours and the other two had shrunk. I’m convinced going dairy free has complemented my treatment. Even the Onc couldn’t believe the speed of the response.
The horse may have bolted but it hasn’t got too far and there is so much that can be tried, I am looking on regional as an extension for me to continue my life as it is, I too have shed so many tears and have been really angry and felt no one cared, even sometimes with this site when not many people responded to my initial wail. But in the end I felt it was me who had to pick myself up and learn as much as I could. Mind you a couple glasses of the old veno puts me back into the crying game pretty quick. I will think of you and let us know how things go take care and a big hug
Hi Jane I only hope your lump is benign. In the mean time, you have many friends here who are willing it to be American stage iv.
Thinking of you,
Jenny
x
Jenny couldn’t have put it better. Don’t know anything about regional recurrence but have all things crossed that it’s benign.
Thinking about you Jane, being back in the waiting zone is awful.
Love Twinkle xoxo