Hi im 54yrs and joining the club again!
My 2nd diagnosis. 2010 i had x3 dcis er+ pr+ her2 neg. MX followed by Diep the following year. I found a lump at Easter 13 yrs on, just to the side of my scar and have just had a lympectomy. Again er+ pr+ her2 neg sentinel nodes clear, CT and PET Ct clear but an area of suspicion around my inner mammary node chain which looks inflammed and they cant tell why. Surgeon said it was a recurrence but my oncologist disagreed and thinks its a new primary so sent me for a DX Oncotype test which gave me a score of 37 and changed my treatment plan from radiotherapy to EC-T chemotherapy which i start on 2nd September. Has anyone else had similar with the inner mammary nodes? I didnt even know they were there! Any tips for handling chemo? Cold capping?
@luckyduck1 so sorry to hear that you’re back for round 2, that really sucks. I’d never heard about inner mammary nodes either, they say don’t Google and I totally see why but not being well informed i find rough. You asked about cold capping, I did it on 12 x weekly paclitaxel kept most of my hair but did thin a lot on top. Still glad I stuck it out though. My tips are take a paracetamol beforehand to take the edge off, wear warm socks and clothes and take a blanket. A stretchy fabric headband to protect the skin on your forehead from the edge of the cap works really well. A hot drink as soon as the cap is on fends off brain freeze (for me at least) and having something to distract is good too. Everyone is different but i found the first bit was the worst and then I got used to it. If it’s not for you then don’t beat yourself up, everyone is different. Best of luck with your treatment, it sounds like your team are working hard to get to the bottom of things and find the right thing for you . Take care , you kicked it once, you can do it again x
@kaydee82 Thanks for the advice. Top tips. 8 days to go and im busy putting a bag together. Need to get some warm socks! Adding to list.
Out of interest, what shampoo did you use while cold capping?
Thanks, ill take a look.