Introduction: Round 2

Diagnosed with breast cancer Local recurrence or new primary diagnosis
1

Hi All.

Here I go again! I was diagnosed in 2015 with Ductal Hyperplasia in the left breast.

2017 - Invasive Lobular cancer, Grade 1, Estrogen + in the right breast.

Last week - Invasive Lobular Cancer, Grade 1 in the left breast.

I feel numb. How can this be happening again? What does it mean? I had the BRACA test before and was negative. Why do I have this, again! I only had the biopsy and am scheduled to go for all the additional testing in 2 weeks. Will they recommend a mastectomy? Everything I read seems they will not and it will be treated the same as the first cancer. I know many of you are in the same boat here and look forward to your stories!

Still numb

2

Hi Brit Mama,

Thank you for your post.

I am hoping that our members will see your post and provide their experience.

In the meantime, please remember that if you have any clinical question, our breast care nurses are always here and happy to talk things through.

Sending you our warmest wishes,

Zoe

3

I can empathise. I had DCIS in left breast in 2006. Had WLI and radiotherapy.

In 2012 I had invasive ductal cancer in right breast. Had lumpectomy, chemo, radiotherapy, herceptin and tamoxifen.

2020 had new primary in left breast. Had mastectomy this time. Chemo, Zometa and will start letrozole soon.

I have enquired re right mastectomy but have been told I’m not eligible.

I found chemo much harder this time round. I hope it goes well for you though. 

4

Hi,

So sorry to hear you have been again diagnosed with Invasive Lobular Cancer, this time in your left breast.

Can I ask what treatment you had in your right breast?

I was diagnosed with Invasive Lobular Breast Cancer in September 2019. I was told it was Grade 2. I decided to have a mastectomy with immediate reconstruction. When the histology results came back, it was a Grade 1. I then had an oncotype dx test which came back with a higher chance of recurrence, so I had a course of 6 chemotherapy.

I’m guessing you might know what treatment you are to have now as your post was over a month ago, but happy to share any details with you.

Please stay positive x