Is there a standard amount of kadcyla infusions a patient should get?
Ive got triple positive BC. Been on EC, paclitaxel, 4 phesgo injections then surgery.
Met with oncologist in the summer who told me i then had to do 12 rounds of kadcyla. Im nearly at the end but went to see the oncologist today. Saw someone different (who i have seen before, is lovely and very knowledgeable) because my oncologist was on holiday. I had asked if my zolatronic acid could be moved forward a week to coincide with my last kadcyla so i didnt need another visit to hospital. She then tells me that the end date i was given is wrong… i have another 6 weeks of treatment after that. 14 cycles not 12 as i was originally told.
I was absolutely devastated & cried. Im exhausted after over a year of treatment & mentally im really working towards the date id been given. Im really struggling with the thoight of any more treatment.
Came home & looked out my letters from oncologist, she definitely wrote 12 cycles and only gave me 12 appointments.
Person i saw today said if i feel i cant go on i can stop early. I asked what the chance of reoccurrence would be stopping at 12 rather than 14 cycles & she couldnt tell me.
Im in a state. I dont want to stop early because it could cause reoccurrence but i genuinely dont think i have the strength to go on. Im so upset im being faced with this decision & incredibly angry that this ‘mistake’ has come up so close to the end of treatment when im just doing my best to survive.
Is there a standard amount of kadcyla infusions a patient shpuld have or is it all worked out on an individual basis?
What are the implications of stopping treatment early? Can you direct me to any studies?