Have to be thankful to all the good times I hsd since last Nov when the last blast of Rads finished. And was chemo free from last Aug. Went back to part time job at the end of March this year. Planning of moving to a new flat… etc, etc…
Tumour Marker rose to 9 from 7 about 6 weeks ago. And it has risen again to 16 this time. I hear what you are all saying… that’s very very low and a long way within the normal range. But I’m just slightly alarmed by it.
Anyway seeing onc tomorrow afternoon, not sure whether to bring the PET scan forward. It was scheduled for the end of July. I think I will ask for it and see what he says.
… NEVER EVER TO ABLE TO GET AWAY FROM BC FOR VERY LONG ONCE I’VE GOT SECONDARIES… I’M SO SICK AND TIRED OF IT!!!..
Oh dear - I feel your anguish that you recent stability might be shattered and more treatment needed. I felt the same after hoping some treatments would work and then didn’t for very long. Hope you can take a deep breath and get the tests to let you really know what is happening since imagining it is probably worse than knowing… Hoping any treatment needed can than start quickly and let you get back to work. Glad you are seeing your Onc so quickly - with knowledge you can at least plan.
Do keep in touch - and hoping for the best for you - and do keep ranting as it feels like a normal emotion in this situation that many of us on this site will understand.
Fran
I am sorry you are feeling so anxious, I hope tomorrow when you see the onc, he will be able to put your mind at rest. I hope you can manage to stay calm, and get some rest tonight, I will be thinking of you and hoping you get some positive news,take care,
Hi m1yu
sorry you are worrying about tumour markers. Don’t forget that many oncologists don’t use them because they can fluctuate. I’m glad that you have managed to get an appt quickly, I hope the oncologist will put your mind at ease. It doesn’t necessarily mean chemo, I keep thinking it will be back to chemo and another hormone treatment is found!
Good Luck xx
I really feel for you and can understand your concerns. I don’t have a clue about markers as my onc does use them and when I’ve asked she’s said they are not reliable. So I’m very much in the dark about them.
I hope that you get some reassurance from your Onc and this will put your mind at rest. I know what you mean you’re never so far away for BC when you have secondaries.
That’s why I’m still working but I don’t know how long for as its a very tiring job and part time becomes fulltime for me because of the nature of the job.
Any enough of me I’ll be thinking of you today and sending you good vibes.
Hi m1yu
Really hope that this small rise in tumour markers doesn’t mean more chemo for you. I’m sure if you state your worries to your onc he/she will bring the scan forward.
Good Luck
Nicky xxx
Hi M1yu
Try not to worry too much (easier said than done I know). TMs are only part of the picture. Ask for the scan to be brought forward so you can see what you are dealing with. There are plenty of other treatments apart from chemo. Thinking of you
x sarah
Another one here who’s onc won’t use markers because she thinks they are unreliable and cause too much anxiety. Thinking of you M1yu, we all understand how awful it feels, and hoping you have good news from your scan.
Thanks for all your support!! The part time job kept me busy and the morning went quite quickly.
OK… here’s what happened. PET CT scan booked on the spot for the 1st of June and results on the 8th Of June… GREAT!! Now I’m going to spend the eve of my 2nd anniversary in a PET CT scanner!! Never mind, better know what I’m dealing with.
OR… maybe I already know it now… while examining me, my onc spotted a suspicious enlarged lymph gland on my left side (my good side)… which somehow I missed (who’d thought BC can switch sides??)… but it’s tiny and we don’t even know whether it’s cancerous or not… only scan will tell.
As for treatment plan… if not too much change, we’ll change NOTHING until it is necessary (he said we’ll know when that is). He doesn’t want to go through all the available treatment too quickly. Only exception is the liver, which may mean either RFA or more chemo.
OK, then… will let me know when I get my scan results back… And before then will enjoy that precious normality.
m1yu
I’m so sorry to hear this. Last week when we met at Browns, things seemed to be going well for you. I want to wish you the very best of luck with your scan next week. And also to Gingerbud.
All the very best
Anne
Thanks so much for all your messages. A mix big really…
Good news: no liver activity, therefore NO CHEMO NEEDED!!! Yipppeee!!
Bad news: the enlarged lymph gland on my left side is indeed cancerous:-(. Also 2 areas of increased activities in bone. (good to know my tumour marker don’t lie!) I’ll be passed on to a radiotherapy onc to discuss the possibility of a one-off blast. However, with no symptoms whatsoever, we are not sure even that is necessary. So, more likely to be do nothing until the next scan in 3 months time.
phew!! I’ve survived that one until the next scan.
m1yu,
I always follow your threads, cos you were around when I started my 2nd journey in March 2010, and you were a real support for me. I am really routing for you.
Take care of yourself
Hugs Maria
I’ve been looking for your post as we spoke when you were first dx re working and I’ve followed your progress.
I really pleased that you don’t need any chemo and I hope you can now relax a bit and enjoy the next 3 months to your next scan. Thats how I live my life in 3 month chunks.
