Hi folks
I am a longstanding member of bcc but new to lung mets.
I had hormone pos bc age 37 in 2006 treated with wle and rads, then at 40 I got tnbc in other breast, again treated by wle… Also had E-CMF chemo and rads.
As had bc twice i got gene test showing im a brca2 carrier.
In 2011 i got a recurrence of tnbc to right upper chest in the inter-pectoral lymph nodes and invasion to muscle… Had WLE and a level 2 ANC only had 9 nodes and all were neg except for the 2 inter-pectoral ones. I got tax and carbo x6 which was hard going.
Two weeks ago i had my routine breast MRI, which i have as a BRCA2 carrier. Got a recall on monday for a suspicious lesion in right lung and an enlarged axillary lymph nodes. Had US of node and biopsy on thursday and a bone scan. The a chest, abdo, pelvis CT on fri with an appt to discuss findings with breast surgeon.
Lymph node was normal, bone scan was as expected, CT scan confirmed lung mets… 1 lesion plus three nearby lymph nodes. Being discussed next week and seeing onc again the week after. Hes keen for a lung biopsy if the lesion is accessible. He wants to determine if its definitely TNBC but as iv previously had hormone pos bc he needs info before ruling that out.
Its been awful telling family and friends.
My kids are big… 22 and 19 but its them i worry about, especially as my oldest has a learning disability. Youngest had exams the day after my recall but pulled it all out the bag and got an A… So hes off to uni… I already have dreams of me being with him at his graduation in 4 years… Just hoping that becomes a reality.
Still cant quite believe it… Especially as no symptoms… Not a single 1.
Currently got my arm in plaster after breaking it at a roller disco as t in the park. Was on holiday and walked loads including a 14km walk along the beach at the end of june… No cough, no pain, no shortness of breath.
Its all a bit poo 
Wow, you have a very thorough oncologist/hospital and it is good that they are trying to find out the status of the new lession before they do anything to it. That way they can narrow the treatments to the most effective.
Are you aware of sites like CaringBridge where you can have a page where you can update people about things without having to keep repeating it? Or you could set up a cascade network where you would tell a selected few and they would pass on the news. Once you have the CaringBridge page folks can subscribe to it via e-mail updates.
Hope they come up with a good treatment plan for you. Vicki xxx
Hey Lulu,
I just wish I could give you a big hug or hold your hand. As you say, it is just poo. It really is. I hate breast cancer so much.
You help so many women on these forums and as you know, you helped me when I was going through all my complications last year. I like to those of in the smaller statistics of brca/recurrences are like stars up in the night sky- we might be a long way away from each other, but our shining light is so bright we can see one another twinkling in the darkness.
Congratulations to your son and hold on to those dreams.
Rattles xx
Hi Lulu34,
So sorry to hear about your new diagnosis. It’s good that your oncologist is being thorough and wanting to do a biopsy if possible so that you can get the most suitable treatment. Wishing you all the very best with your treatment.
Tournesol x
Sorry to hear about the mets Lulu x x
I have read lots of your posts over the years lulu, thank you for lots of wise words. I am so sorry to hear this news. Hang in there.
Jacqui
Hi Lulu so sorry to read this here (and elsewhere) really hope all goes as well as possible with the biopsies and then a really good treatment plan. Your wisdom and knowledge have sustained and helped so many over the years, I hope you are able to find the support you need/want now.
Huge west coast hugs wafting east! xxx