Diagnoised Nov 23, triple neg , 24 weeks chemo, lumpectomy, all lymph nodes clear, no sign of any cancer having spread from breast.
Half way through radio and starting getting headaches. Tumours in brain. Still waiting on brain specialists and got a full body scan at weekend. Just can understand how its back. It was caught soo early, responded so well it shrank to nothing, nothing in lymph nodes. And its back. Cant unear the less than half of people make it to 5 years. Wont see kids grow to teenagers, or fall in love, or marry.
Be strong disneyprincess [quote=“disneyprincess88, post:1, topic:123303, full:true”]
Diagnoised Nov 23, triple neg , 24 weeks chemo, lumpectomy, all lymph nodes clear, no sign of any cancer having spread from breast.
Half way through radio and starting getting headaches. Tumours in brain. Still waiting on brain specialists and got a full body scan at weekend. Just can understand how its back. It was caught soo early, responded so well it shrank to nothing, nothing in lymph nodes. And its back. Cant unear the less than half of people make it to 5 years. Wont see kids grow to teenagers, or fall in love, or marry.
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I’m so sorry to hear your diagnosis. I had a diagnosis of bilateral IDC in May 2023 and so far all is well. Clear annual mammogram and just finished 18/18 Herceptin, so I don’t know what you are going through.
But I wanted to signpost you to the secondary group for those living with uncertainty and others that will understand what you are going through.
- Secondary breast cancer is full of uncertainties. But you can count onLiving with Secondary Breast Cancer to be there for you, no matter what. You’ll be able to talk, listen and learn with people who understand the challenges that secondary breast cancer brings. Our groups are open to people with a secondary diagnosis. Monthly sessions, facilitated by a therapist, are held in a variety of locations across the UK and online. Find a group. And if you are 45 or under? Our Younger Women with Secondaries Together events provide information and support
- LiveChat: Open to people with a secondary diagnosis. A private chat room where you can talk to others in a similar situation.
Thinking of you
I am sorry to hear this. I also had very quick progression from what was thought to be early stage TNBC with no lymph node involvement. My primary cancer was found in Jan 22 following a routine mammogram. Secondary spread in my liver found in August of the same year, when I was hospitalised with diverticulitis during chemo, and had a CT scan on which the liver lesion was an incidental finding. I am (I think) lucky that my TNBC is PD-L1 positive. I was treated with the immunotherapy Pembrolizumab. This had some unfortunate consequences as my immune system attacked by kidneys, thyroid and lungs, but it worked its magic on my liver tumours. I had a microwave ablation procedure to clear out the residue and have been in remission since February.
When I learned I was stage 4, I feared the worst. I am grateful treatments are ever expanding. The survival statistics are out of date. Hopefully you are a candidate for one of the newer treatments and will be able to continue to live with this.