I had had been hanging out in the “have I got breast cancer” forum but frankly that question’s now been answered! Was told on Monday 99% certain it was BC and was told today that the biopsy results have confirmed that. All they know so far is it’s IDC, grade 2, ER+. I thought I might get staged today but they’ve said not until the nodes get tested during surgery which will be in about a month. At the moment they don’t think I have node involvement so I may get to avoid chemo but I realise that could change and that I don’t have the HER2 result yet.
I’ve read about oncotype dx but they haven’t mentioned this to me. On the info I have so far I think I’m likely to be stage 1 or 2 so presume that oncotype may be relevant to me (if I’m lucky). Anyone had to make this decision?
Just thought I’d say hello for now. I’d Jill 1998 reads this, what does the 1998 mean - any good stories right about now would be most welcome?!
hi strudel,
I saw your story on the other thread & sorry you find yourself here, but thank goodness its been diagnosed & it can now be dealt with.
Like yours, mine was IDC grade 2, er +, subsequently found no nodes affected, had lumpectomy, radiotherapy & now tamoxifen - now feeling well & back to normal.
I was not offered the oncotype test, but my case was straightfoward, picked up early on routine screening - so I feel lucky.
loads of support here when & if you need it,
ann x
Hi Strudel. So sorry you’ve joined us, but it’s the best place to be when you get the dreaded BC diagnosis. I had a similar diagnosis to you. After surgeries in July and August chemo was suddenly discussed. However, I just squeezed into eligibility bracket for the Oncotype test. It felt like the longest wait but I was very lucky to have a score of 17, with chemo offering limited benefit. Good luck with your journey xx
yes, so sorry youve had to join us. My history is very different to yours and I havent go the experience to help. But just wanted to say that they do discuus your case in a kind of confecerence before deciding exactly what you need. I think you will likely hear from them about oncology, but if not, then feel free to ask them.
lots of lovely ladies are here for support…do let us know how you get on.
Hi Strudel,the 1998 is my sons year of birth!I got such a lot of support from this site when I was diagnosed last year ,saved my sanity ,it really really helps to talk to people going through same thing and those who have been there and come out the other side .Its a very surreal experience and only really those who have been there can understand .
Ps I had very similar diagnosis to you grade 2 IDC ,ER positive .I had lumpectomy and 3 weeks radiotherapy and now Tamoxifen for 10 years and after a bit a derailment life goes on .Hopefully same for you !
I think the majority of women have to wait 10 to 14 days to get all their results post op-tumour grade confirmation cos that can change , confirmation of clear margins (or not) and sentinel node biopsy results .All these things influence your treatment plan and it’s very hard waiting for in limbo for 2 weeks for that information .
Hi. Just to add my twopenneth. My hospital didn’t test at time of surgery. 2 weeks post surgery (WLE and sentinel node biopsy) I had the pathology from both. I had to have a further WLE to get a better margin. Brilliant care throughout but all the waiting was the hardest bit.
Yes it’s like learning a different language isn’t it ,a lot to get your head around .There is always someone on this site who can shed light on these things ,pretty much always someone who has been in the same situation .Its nice not feel alone in the midst of such a surreal, scary experience .The first few weeks are really hard but it does get easier .