Good luck Sissy! Hope everything goes well 
My hands aren’t to bad, they have a tendency to be dry anyway but they do tingle from time to time especially at night when I get pins and needles in them. My nails are tender too, as in numb. I changed my nail polish in Friday and they looked OK though, just faint bruising of the half moon on each thumb.
I am really tired and was expecting to feel more energetic by now as it is day 14. I’ve been sleeping a couple of hours in the afternoons. Could be lethargy though - I’m so bored of the same thing each day that I don’t exactly leap out of bed in the mornings!!
It’s good to read we’re starting g to get no5 u see our belts - won’t be long and we’ll be celebrating each other’s no6 or last of the weeklies!!
Xxx
Took some steroids at 5.30 then managed to sleep until 10, going to take the second lot in a bit. I’m going to be grumpier than normal today! Lol
Claire, I had itchy hands, had a rash under skin, was given some steroid cream by GP which sorted it in a few days.
Will be glad to get number 5 done, though not looking forward to feeling rough for the next 10 days or so. It’s my birthday tomorrow which will be a subdued one this year! Xx
Sissy- I hope no5 has gone ok for you and you managed a little snooze!! ?
Ellie- good luck for tomorrow. ?
Fiona- I hope your managing ok with your first T. ?
Hope everyone is doing ok, whether we are going through our bad week, our ok week or our good week we are all getting closer to the finish line!!
I’m on day 4 of chemo 5 and doing ok. I think I’ve got my bowels under control, so hopefully not have to suffer horrendous constipation this time. I’m lying in bed with heat packs listening to husband entertaining kids downstairs, my chemo has fallen during school holidays this time so this week is going to be a challenge, especially if it rains all week and my husband is away Wednesday night.
Take care and big hugs. Debbie xx
Thanks all, had a lovely electric recliner chair so laid out and dozed whilst eating my nhs cheese sandwich. Chemo 5 was uneventful. Think i need to drink more fluid for a good few days after, don’t want to end up back in hospital again! Steroids are making me so hungry and unfortunately I still have Easter eggs left in the house!
Debbie, I need to try and get on top of the constipation better this time, it gets so painful and frustrating, I tend to leave it too late before taking anything. I have some prune juice in the fridge, not sure how good it’ll be at causing movement? Xx
Sissy- I take prune juice 1st when I wake up, then movicol and 2x dioctyl, then another movicol and 2x dioctyl at 7/8pm then senikot at bedtime and lots of juice throughout the day (water tastes awful at the minute!!) I seem to be alot better this time. On cycle 4 I left it too late and really suffered! Good luck. Debbie xx
I don’t think my diet really helps, I tend to only fancy carb heavy foods for the first 10 days or so. I had been taking a couple of senokot but not regularly enough xx
Ellie, the not sleeping is so annoying. I dropped off around 4.30am then awake at 7.30 for today’s steroids, then back to sleep before being woken by a phone call at 9.45.
Really need to try to start eating better, however I’m 36 today and my hubby has bought me a massive cake, and as I’m home alone later as he’s at work my sister is bringing me round a McDonald’s. Hope everyone else is okay xx
Ali x
even semi permenant tattoos arent really reccomended during chemo but I wouldnt get them.done without asking your Oncologist
Jen x
Thanks Jen, I did figure as much.
Ali xx
Happy Birthday Sissy! Hope you enjoyed your MacDonalds and birthday cake ?? xxx
Happy birthday Sissy Xx
Well less than a week now until no5 and less than 4 weeks until the last one! How’s that for positivity!!
Had an appointment with the oncologist today - saw the main lady which was good. Everything seems to be going as it should and she wasn’t worried about any of my new side effects. Got the forms signed for radiotherapy which she said will start 3-4 weeks after the last dose of chemo, so beginning of June. She said I’ll be having my scan for radiotherapy (not quite sure what happens there) the same day as my last chemo to save time. I’ve also been given a blood test form to take when I have my pre-chemo bloods on Monday so they can check at what stage of the menopause I’m at to plan for which hormone tablets I’ll be starting after chemotherapy too. It feels like things are moving on in the right direction!
How is everyone else? Xxx
Elizabeth I can see why you are thinking like this - because you are on weeklies you have to count each one whereas we’re not counting the weeks in between which makes it psychologically easier. I guess if I add on the weeks where I’ll be having the side effects then maybe that’s 7 weeks until I’ll start to feel like me again. How many more do you have? Maybe you’re not that far behind? I imagine it’s a pain having to go to the hospital every week but a bonus having lesser side effects. You’re getting there tho xxx
I’m glad it helped
Today’s issue is that I have 2 blisters on my toes!!! I need them to heal by Tuesday just incase they turn horrible and they delay my treatment! I have fully moisturised my feet and plastered good old sudocream over the blisters and wrapped the toes in a cotton wool pad (cut down to size) in the hope this will protect them. I’m assuming they wouldn’t delay chemotherapy unless they turned nasty? Going away at the weekend so my walking us going to have to be kept to a minimum.
Any ideas?
Xxx
Hi all,
First time I have posted on this particular thread. It’s my last dose of TC this morning, I am so pleased this is the final one. I have only had 4 sessions (started on 29th Jan) for which I am grateful as I can see some of you ladies have more sessions to go. The side effects have been plentiful but I’ve managed. I tried cold capping on my first session but it wasn’t for me so most of my hair has gone, I was left without a fine layer of thin wispy bits which I haven’t shaved as I was worried about in growing hairs so my OH trimmed with clippers to a no.1 cut. It looks kinda cute but very grey, I’m 47 but had been dying my greys for years. Gulp guess it’ll grow back in with lots of grey too!!!
I have my first packet of tamoxifen to start 3 weeks from now and I’m going for a scan next week at radiology for them to plan my rads, they said they would try to start them around 3 weeks after chemo too. I’ll be getting 3 weeks of rads and maybe a 4th ‘boost’ week but they won’t decide that until I’ve had my scan.
So anyway off to what I hope is the last ever chemo I have to have in my life, I do have worries about this returning! I was lucky I found the tumour early (26mm, Grade 3) and there was no spread lymph nodes.
My emotions are all over the place and I can’t see an end to that symptom but onwards and upwards to the next stage. I wish all you ladies all the best for now and the future.
Hugs, Vik x
Hello all, thanks for the birthday wishes, managed to have a nice time with family before the SEs kicked in.
Now day 5 and feeling rubbish, mainly lower back and leg aches, numb tasteless mouth and sore fingers. This time on the last cycle I’d spent the night in hospital, so fingers crossed that I’ve passed that stage this time!
Claire, I had a phone call about rads yesterday, they wanted me to go to rads planning on day 4 after last chemo, however judging by the last two cycles I wouldn’t be well enough for that. Rads should start 4 weeks after last chemo, so mine should be 23rd may. I’m planning on starting a phased return to work before then, the week beginning 16th may is my plan, will prob start on 3hrs and will stay at that throughout rads. After rads will slowly start to increase. Where are you having rads? Will it be at Chaucer? Xx
I’m having my rads scan on the day of last chemo apparently and starting 3-4 weeks after that. So for me that will be the beginning on June. Got another oncologist appt in 3 weeks just before the last dose so I’ll know more then I guess. I’m not going to attempt any phased return to work in between times, I’ll start that when radiotherapy has finished. I think I’ll just be too achey and tired! I’m in my good week and still hobbling around! The blisters are still intact - possibly looking better although that might be wishful thinking!! I shall continue to smother them with sudocream!! We’re off to Manchester this evening for the weekend - seeing Muse tomorrow night!! Then it’s blood test Monday, the start of steroids and water drinking!!
Good to hear from you Vik - hope all went well today, well done reaching the end!! ? Hope radiotherapy goes well too - keep us posted
Xxx
5th time lucky perhaps Mechele?!! Everything crossed for you that you stay hospital free this time!!
Xxx
That’s great news Ellie, it’s nice to have some positivity. It’s a lovely sunny day here in Kent, I’ve sat outside and eaten my breakfast and let the sun get to my fluffy head in an effort to stimulate growth, lol. Am now day 7, feeling much better in myself. Day 4-5 were my emotional days where I took to my bed and felt sorry for myself, yesterday I managed to get three loads of washing done and dried and today I’ve decided to try and do a few little sorting out cupboard jobs that I’ve been puttin me off. Have some aches and pains but so far have coped without taking pain relief. When it’s bad you think it’s never going to end, but now I feel a little better I can see light at the end of the tunnel! I’m planning on sorting through my summer clothes this week as I imagine some of them won’t be suitable since my mx.
Good luck to Claire and Kim and anyone else starting this week xx
Good luck tomorrow Claire! Yes I’m Tuesday (assuming bloods are OK!) Have had a lovely weekend in Manchester, a bit of shopping with my daughter, then met up with husband and son for a lovely Italian meal before heading to the Arena to see Muse play. Definitely good to have a normal weekend amongst all this madness! I even got used to wearing my wig! So now I need to up my water intake in preparation for drinking 2L for the following 3 days!
Ellie, I’m pleased this one is going better for you, I’m hoping that I will cope better and accept that I’m not going to g to start feeling right until a week on Thursday when the injections are finished.
It’s great to hear you’re in the way up too Sissy
I’ve everything crossed for you Mechele that you stay hospital free!! Good move going into the spare room - just hope that you do t gave the worry of chicken pox!
Cassie, haven’t heard from you in a while - hope you’re doing ok?
Lots of love to everyone xxx