Hello all, as you can see my hair has thickened out, the curling around the ears is very annoying though, I have my first hair trim booked for two weeks time! I’m now four weeks post my second mx, am back at work for 5hrs a shift, will up it to 6hrs soon. Have started a new role at work, which means no more nights and I now have evenings off. I’ve been working shifts for the last 10yrs, so I’m enjoying the change and hoping to take up an evening hobby! Mentally I’m not too bad, however it’s always at the back of my mind.
Cassie, you’re looking fab, enjoy your holiday, it’s well deserved. Kim, have you been able to book on to a moving on course? It could help?
how is everyone else getting on with things?
Im meant to start tamoxifen today, feeling a bit apprehensive about it and worried about SE’s, think I will wait until Monday and start them on a new week. How do you all get on with it?
Looking lovely ladies! The first anniversary is a strange one, having to go back to the place it all began wasn’t nice but it’s something we have to do and it felt so good to get that one under my belt!! Cassie we fly to Corfu the week after you for 11 nights, can’t wait! ?☉
Sissy I’ve been fine on Tamoxifen, 17 months now and no major side effects, lovely to see everyone begining to move on, it’s been quite a year! Xx
Ellie, the only way I was able to post a photo was by using my iPad. Not sure why I can’t using my iPhone as I’ve always thought an iPad was just a bigger iPhone!!
This is me. Like Claire I cold capped and didn’t lose all of my hair. Had it properly coloured so grey roots covered now. It’s a very funny texture now and there’s lots of short sprouty bits between the longer hair. I had it cut short during treatment and its great not having to blow dry or straighten it …saves a lot of time.
I am am feeling soooo much better now. My burn has healed and my boob no longer sore. Got to start concentrating on getting fit and tackling the lymphoedema. I have several sessions booked with a lymphoedema specialist nurse. Been on tamoxifen for about 5 weeks now. Not noticed any side effects except had a few spots recently but that could be down to anything. I saw the consultant a couple if weeks ago and she really put my mind at ease. I have a lump in my boob that I was worried about and she was sure it’s tissue but let me have an ultrasound scan anyway. There is nothing there and I’m feeling really positive now (that could all change!).
Cassy well done on your weight loss, I find losing weight the hardest thing in the world but I’ve got to start that too. It’s great seeing all your photos. Take care everyone and keep well.
Hi I’m jumping in from the March thread as Kim saw my post about my hair (or slow growth lack of it lol) and you all look amazing! If I can achieve the same growth as all of you in 2months time I’ll be happy xx Colista xx
P.S if mine comes back your colour I won’t be dying it as that’s the colour I want…grey is soooo in right now! Yours looks fandabbydozey ?
Your hair is lovely and thick Ellie! I’m pretty sure I was grey before but have dyed it for years so it was no surprise to me!!
I’m on Anastrozole and have just started to take sodium chlodronate along side it to give protection from the cancer returning in my bones. The Anastrozole gives me stiff joints if I sit or lie for more than 20 mins and at night, pains in my feet and hands - particularly my left hand (which is also my lymphoedema arm) so much so that I can hardly move my fingers when I wake up. They’re fine once I put them under warm water tho.
I’m feeling way more positive at the moment, so these side effects aren’t bothering me at the moment!
Xxx
I have also finally worked out how to add a photo! Still feeling a bit up and down, but I think the trend is up. Seeing my oncologist later this week, hopefully for the last time EVER. Not sure how long it will take me to feel over this extended episode, what a year it has been… thanks so much to all of you fab ladies for helping me through it all. It has made such a difference to have fellow travellers. Lots of love. X
Yes, that is good news Ellie, fingers crossed it all works out
I’m going to look out for the Moving on course coming near me - think it will be a distance to travel though. Hopefully if there’s one in Cardiff, I can catch the train and have a day out too!! Is it just one day, or a series of days?
Hope you have a great afternoon and meal Claire - Happy 21st to you son ??
Off to visit my sister in law bearing gifts (fushia pink V pillow from Not Another Bunch of Flowers, meals made from mince, and baby wipes and pain killers!! Was thinking practical!!)
Xxx
Hi Jilly,
Welcome to our group! We’re not in here as much as we used to be - during chemotherapy we were quite often commenting daily!
I’m coming up to my first year anniversary - my actual diagnosis was 12 November and I’m expecting an appointment for my first mammogram to come through in a few weeks. I feel fine about it now, but I know I’ll be in tears when I go into the room!
I had left breast masectomy with immediate reconstruction on 7 Dec, started chemotherapy 18 Jan and radiotherapy 25 May (I think) I’m on Anastrozole which gives me aching feet and hands at night and makes me seize up if I sit for too long, but I can cope with it. I’m also taking bisphosphonates along side it.
I’m from Shropshire and there’s no one near to me, so I haven’t met up with anyone here, but I chat regularly to 2 local ladies who were diagnosed a few months and a few weeks before me - we usually just compare hair length now, as one of them had triple negative so has no further tablets to take and the other is on herceptin.
Pretty sure I still have chemo brain too!
Sending you loads of love
Kim xxx
Hi Jilly, I was also diagnosed at the end of September last year. I finished chemo on 3rd may (same as Kim) and Rads on 24th June. I’m on tamoxifen now and (touch wood) have bounced back pretty well. I do ache a bit but just get on and work through it, it could be my age too!!! I’m 50 on Monday! Theee of us are from Kent and have all met up at the moving forward course. Where are you?
Treatment was awful, but everyone here helped me get through it! ,
Anniversaries are hard. This time last year I was in the operating theatre!
Lots of love,
Claire xx
Same here! At work when I’m busy, it doesn’t really cross my mind although my compression sleeve does serve as a reminder!
If I need to slow down I do, but if I sit for too long, seize up - it’s hilarious to watch me stagger to my feet until my muscles have warmed up again!! So I try to keep moving and go on daily walks until my Fitbit tells me I’ve done my 10,000 steps!
Happy Birthday for tomorrow Claire ??
Xxx
Nothing quite prepares you for the letter inviting you for your first mammogram since diagnosis…
Mine came this morning (15 Nov - a year and 3 days after I was diagnosed) Wasn’t upset - just opened it and I thought ‘Oh crap!’
On the plus side, having a lovely half term decorating and found for nice autumnal walks as the weather is so nice here at the moment ???
Xxx
That’s good news Fiona ? Mine came back too, didn’t understand the results but as they don’t want to see me for 2 years I’m guessing it can’t be too bad! (I have borderline thinning bones from a pre-existing condition) Mammogram came back clear too!! One year down ?
Had my second proper haircut today, got a bit of a style going on now. Made an appointment to have it coloured on the 20th and that’ll be the day I stop wearing my wig ?
This time last year was my last day at work before I had my operation and then was off for the next 7 months!! I do feel great now, really positive - hope it lasts!
Lots of love to you all
Kim xxx
And a very Happy Christmas to you all from me too!!
Celebrating this year with my new short dyed hair which I’m really pleased with!! The wig will be washed and put away in it’s box, then I’ll find somewhere to donate it in the new year.
I see there is a January 2017 thread started, so as well as dropping in on here, I’ll be checking in with them from time to time too
Lots of love to you all
Xxx
Hi all,
So sorry I’ve been so quiet, I hope everyone is well and had a better Christmas this year.
Wow what a year we have all add and I couldn’t of done it without all your support, you’ve been great.
Last year on New Years Eve I saw my oncologist and signed up for chemo, I then went to try wigs on!!! I remember at midnight crying because I didn’t want 2016 to happen and here we are at the end of it. I’m so happy to be waving bye bye to this year. I do feel like I’ve become a stronger person though, I’ve learnt a lot.
Wishing you all a happy and healthy 2017.
Take care
Debbie xxxxxxx
Happy New Year to you all too! ?
Saw my breast surgeon on Thursday for a check up and to see if I needed/wanted my implant changing. She’s happy with it (although it does sit higher than my natural side and radiotherapy has hardened it) so it’s up to me if I want further surgery. The longer I wait the better following radiotherapy, so l’ll see her in a year’s time. It’s nice to know I have a year to decide!
So I’m sure we’re going to be spending the first half of 2017 taking advantage of all of the occasions we missed last year due to the constraints of chemotherapy! I’m particularly looking forward to Mothers Day and Easter as I was feeling too rubbish to enjoy them!
Sending you all the very best for a happy and healthy 2017 xxx
This is me. Like Claire I cold capped and didn’t lose all of my hair. Had it properly coloured so grey roots covered now. It’s a very funny texture now and there’s lots of short sprouty bits between the longer hair. I had it cut short during treatment and its great not having to blow dry or straighten it …saves a lot of time. 
Xx
I have also finally worked out how to add a photo! Still feeling a bit up and down, but I think the trend is up. Seeing my oncologist later this week, hopefully for the last time EVER. Not sure how long it will take me to feel over this extended episode, what a year it has been… thanks so much to all of you fab ladies for helping me through it all. It has made such a difference to have fellow travellers. Lots of love. X