January 2016 Chemo starters

Wishing everyone a very Happy New Year and good health of course. What a year it has been for us all and pleased 2016 is nearly over. I’m starting the ‘Moving on’ course next Friday - others seemed to feel it was beneficial . I’m doing ok , apart from some breathlessness, hoarse voice etc - it was suggested by once to have an endoscopy done, but when delivering Xmas gifts for granddaughters etc in Burton on Trent, my son in law suggested the same ? ( he’s Consultant Anaesthetist at Burton ), still thinking about it !!! With many thanks to all throughout this last year - love and best wishes ,Mechele x x

Same here! I’ve been going by it was a year ago yesterday because it was a Monday and tomorrow because that’s the 18th! Either way, we were both on steroids today a year ago and attempting to drink masses of water! It was when I started snacking at night too - ritz crackers and almonds. I’m surprised I can still face eating them!
It was so good to compare notes and get support from you all each day - made a massive difference ?
Xxx

Ellie, I have one more nail to get back to normal now - same as you, nail bed hasn’t quite sorted itself out but I reckon give it another couple of months and it will be fine ?
Sorry you’re still feeling ill with colds, good luck for your test results xxx

Hi ladies
Im looking for donations of your lovey headwear. Anyone who can help please inbox me xx

Hi again
Anyone got any old scarves they dont need any more? Pls message me xxx

Hi Tina, this might seem daft, but I’m keeping mine as a kind of insurance policy of never needing them again!!
Xx

Aww bless you
No problem sweetie!! Xxx

Hi I’m not Sure if I’m posting on the right thread as it’s my first post. I’ve been following a lot of your stories this last year wich has helped so much in supporting my mum through treatment. I am just wondering how those of you who have had your first year mammos received your results? Is itby letter or appoitnment?

Hi can’t comment as had double mx so no mammograms for me. I’m sure. One of the others will be along soon though. I hope your mum is doing well. My two sons were amazing when I was going through treatment and I couldn’t have done it without them!
Claire xx

Hi Wales88, I received my results by letter about 2 weeks after my mammogram too. Personally signed by my consultant which impressed me!!
I hope your mum is doing well ? The support I had from my daughter and son really helped me too (and my husband) I’m sure you’ve done a brilliant job too ?
Kim xx

Thanks for the replies. When my mum had her mammogram last week in Telford she was told to make an appointment with the consultant for the results in two weeks this is making me wonder if something was seen?
She’s had 2 wle lymph node clearance, chemo rads and has 6 more herceptin to go and is doing great.

Mine was Telford too but I think different consultants have different ways of doing things. My sister in law is with Telford too and the way her consultant did things was different to mine (she’s not had her first mammogram yet, just other things)
Obviously I don’t actually know, but maybe if there was something suspicious they’d have asked to see her sooner? Thinking of when I had my follow up appointments after the mammogram that found the cancer…
I have everything crossed for you both that it comes back normal xxx

Hi everyone , hope all doing ok and getting back to some form of normal life after such an eventful year. Just wondering - how many of you that had positive nodes plus BC had a full MRI done ? I didn’t , but understand a lot did ??? Wishing well to all , with best wishes Mechele X X 

Hi Mechele,
I had 2/9 nodes positive and was told beforehand (when the biopsy had found one was) that if there was 9 or over positive (I think it was 9!) then I would need a MRI scan to check that it hadn’t spread further.
I have a friend who has now been diagnosed and having a double masectomy in the next few weeks - such a shock even though I know how common it is. I don’t know if she’ll need chemotherapy, but I’m guessing if she needs a double masectomy, then she will ? Awful time for her - as we all know too well!
Loads of love to you all xxx

Hi Cassy and Claire, great to hear from you both!
I often look back and can’t believe it’s a year ago we were all suffering so badly. I’m doing well (I’m assuming!) Haven’t seen an oncologist since June (I think) and my last appointment was rearranged from last week until 24 April. I was annoyed because I just wanted to go over a few niggles to set my mind at rest. I did go and see my GP though, and she’s been great. It’s mainly my achey hips which we’re sure is an Anastrozole side effect but don’t want to be missing something important! So I’ve had a blood test as a marker (how that works, I don’t know) and I’m happier about that.
I’ve been walking loads more than I ever did, joined a running club to do their walk to run program which I have loved doing and started back at yoga which I’m sure helps with the Anastrozole aches and pains.
I’m doing the Race for Life in May - I really want to run it, but we’ll see!
Wanted to post a photo but I can’t seem to do it in my phone :confused: My hair is back to how I have it 8 years ago before I started to grow it and I’m really happy to keep it that way now. If I had t lost it all, I don’t think I would have been brave enough to go short again. It is dyed though - I just wasn’t ready to be grey.
Have the best Easter everyone!!
Loads of love :heart:
Kim xxx

Hi Elizabeth, I found it made my joints stiff and I was achey but I honestly don’t really think about it much now. I think the fact that I walk regularly even if it’s just the 10 min walk to school and back, has helped relieve the side effects. Hope it suits you better too :slight_smile: xxx

I’m on Anastrozole!

Have posted X 2 and for some strange reason didn’t appear - hence a ‘test’ post !

Seems to have appeared now so will try again ! 

What a super photo Cassy and you’re looking really well and hair growing . Mine is still quite short and the very tight curls after all the years of such straight hair, is taking some getting used to - not really complaining tho after no hair at all for so long.

Pleased to hear everyone seems to be doing ok - albeit some awaiting more surgery or having a few little problems - sending best wishes to all and thanks for the support over such a difficult year for us all. Apart from some problems with the dreaded Letrozole , some brands being awfull , a case of just acceptance and moving on. Nov/ Dec I started feeling unwell and so tired - felt something not right but didn’t know what - you can imagine what went through my mind !!! Briefly, it has been found that my left kidney is barely functioning and the ureter from kidney to bladder is blocked. Under Urology ( initially referred due to frequent UTI’s , on the last one , passing what looked like Rose wine !! Had a severe kidney infection 2 weeks ago , husband thinking I’d got sepsis again and tel 999 - 5 nights in hospital . Due to have kidney and ureter removed I a few weeks and depending if open surgery , another 7-10 days stay. Fortunately NOT cancer related, so very pleased about that. Hopefully after the surgery, I will be able to ‘move on’. Not happy about having to cancel our June holiday again, like last year , but could be worse.

Sending love and best wishes to all

Mechele X X X 

 

 

Ah Mechele - sorry to hear that!! Hope you’re all fixed soon and recover quickly xxx