Hello all, first FEC ticked off. The session went well, felt a bit drowsy and spaced out when the anti-sickness meds went through, and the veins in my arm felt a bit ‘burny’ when the E drug was pushed through. It was all a lot better than I imagined it would be.
It’s been 7 hours, have had some pasta for dinner as I was so hungry and a few ginger biscuits, am hoping that wont come back to bite me in the bum! I took one of my anti sickness meds at 8.30pm, I feel a bit gassy, slightly nauseous and have some stomach cramps, though my period arrived today (which I could well do without) so that’s probably the cause. Also have a slight headache and feel like I’ve just got through a strong migraine. Am in bed now, but a little scared to go to sleep! Sissy xx
Morning, finally dropped off to sleep around 2am, woke up at 5am, I sat bolt upright feeling really nauseous but then it passed. I couldn’t settle so have been on the sofa since 5.30am. I don’t think having to take the steroids at 4pm yesterday helped. Feel okish, fuzzy head still, and slightly sick, but also very hungry. Am wondering whether to risk a banana smoothy…I’m just trying to work out when to take my anti sick meds. I took one of one type at 8 then will take one of the other ones at 10 and go on from there. Any tips for what time to take steroids? I have three which I can take in one go. Sissy xx
Sissy definitely eat it reduces the nausea. We were told to take as early in the day as piss & if you have 2 doses,p take last before 2pm, which I don’t think you do from what you said, but will say for benefit of others. Good luck xx
Hi Cassey
I’ll be starting about the same time as you then. Saw my oncologist 30 Dec but they couldn’t fit me in for my pre assessment until 18th, so now it feels like forever that I’ve been waiting, half feeling ok because I’m having the time to sort stuff out and half getting really nervous and just wanting it started now!!
Had my first appointment at The Haven yesterday where I can get complimentary treatments such as counselling and reflexology as well as taking yoga or Pilates classes all tailor made for breast cancer patients. I’m hoping I’ll be able to go there on my good week during chemo. They also do the Look Good Feel Better course there. Booked in for reflexology on Friday after my blood test!
My headscarves from Annabandana arrived just now, I’m really pleased with them - got anna bands, they were just £7 each and come with a scrunchie which makes tying them easy
Also bought ‘brow zings’ from the Benefit counter in Debenhams. The girl behind the counter showed me how to apply it, so I reckon if I do it daily then if the eyebrows go as well as my hair then at least I’ll be able to do a half decent job of painting them on!!
So, I think I’m ready for this …
Hope you all managed some sort of a good nights sleep and aren’t feeling too cr@ppy this morning.
Take care xxx
Cassy, for eyes and brows also have a look at Estée Lauder double wear eyebrow pencil and eyelash pencil, I’m going to give them a bash. They are both meant to be long wearing xx
Just had a phone call from the chemo team - starting on Monday at1:30 after my pre-assessment! Feel relieved and tearful as my son would say ‘**bleep** just got real’
Xxx
I’ve just been through my diary putting each cycle in - days 1 - 21!! Worked out that if I have no delays to each cycle I should feel well enough to see Muse in Manchester at the beginning of April and Mama Mia in Bristol at the end of April (opposite ends of the music spectrum I know!) That’s cheered me up for now anyway!
Nice to have a chemo buddy on the same day Claire and Cassy, just 4 days behind us! Good luck!
Then I’m guessing it won’t be long for you early Jan starters for the next round - you should be heading for your good week hopefully
Xxx
Hi everyone - to the ones that have already started, hope you are feeling reasonably ok, and not feeling too bad - best wishes to you all. I’m getting little anxious now my first one on Friday is getting closer, more of the Unknown really, and wondering how I will react. Seeing oncologist tomorrow to sign consent form etc , have bloods done and to see where it will done - just want to get the first one over and done with.
I was really anxious leading up to my first one, but I occupied myself with getting in all the bits I thought I’d need. When I was sat in the chair I had a bit of a wobble as well, but once I got going it was okay. I find it quite interesting watching everyone else who are in the treatment room and the nurses were great to chat to.
Morning all
I think I am about to join this " club" ?. I have my first meeting with the oncologist this afternoon. The MDT is recommending chemo so providing I understand their reasoning and I’m sure i have all the information to make my own decision i will be joining you. Well if they can get me in before the end of the month.
I thought I was ok with todays appointment but getting very nervous /scared now. Any tips on what questions i need to ask? Was there anything you wished you’d asked?
Trying hard to think of this as next step, I can do it but the reality is I feel physically fine now and I know that will not be the case over the next few months. I feel like I am allowing someone to fill me with chemicals I know my body will react too. Logically I know I need this treatment but emotionally I 'm struggling to accept it.
Thank goodness I have this forum to voice my thoughts . I have an incredibly supportive husband but there are some feelings/ thoughts I can only share with ladies who really know.
So thanks ladies. I will post again after the dreaded appointment.
Jan x
Morning ladies, ophs, false start trying to join the group but here I am. ??
Not sure how I feel starting day 1 of EC today for 3 cycles. 2nd stage paclitaxel wkly so no cold cap. Think I have gotten my head round hair loss etc the apprehension of how I’ll feel during and after is worse I think. Brilliant to get on here and see so many going through the same thing and being so positive. I think this will be the place to be honest when down too which is great, being the positive happy one is what I want the family and friends to see. Here’s to us and getting through to the other side. Love and hugs to all xx
Dear ladies Hope those who have started are getting on ok & the rest are not too anxious.
if anyone hasn’t got their wig yet, I have a shoulder length blonde bob I got from trendco, Cody I think it’s called, that I have never worn, which you would be welcome to have. I just went down the scarf route & after I started shedding the wig just seem to have far too much hair for my face. Please just PM me if you’re interested using little messages button top right & I will send to you. x
Hi Bibi, I might be interested in your wig as I haven’t got one yet and my hair is prob due to fall out anytime from next Friday. Do you know what size it is, just apparently I have a small head!! I normally wear my hair shorter but maybe my hairdresser could cut it, do you think that would be ok to do?
Debbie xx
sorry I couldn’t work out how to private message you! X
Welcome Kayak Jan and Johg, sorry you’ve had to join us, but it really is a good place to be under the circumstances! Hope all goes well today for both of you.
By the time I saw my oncologist I had got so much information from this forum that seemed to cover anything I wanted to ask. I didn’t question the decision to give me chemotherapy because my cancer is classed as invasive and I just want everything completely zapped and have the least chance of it ever returning again. It does frighten me though, I have chronic kidney disease (which sounds worse than it is!) so I know the chemicals will mess with my kidneys temporarily (I hope its temporary!) but I’m just trusting that they’ll keep a close eye on that and adjust things if necessary.
Went out last night with some of my workmates for my pre-treatment meal. First time outing for my newly chopped hair! Lots of laughter, (not at my hair, I hasten to ad!!). It was just what I needed
Hope everyone is feeling OK today? Or at least coping with the chemical side effects OK.
Take care xxx