Hi MummyB
You don’t have PM enabled, so no wonder you couldn’t work out how to do it.
I was going to suggest that if you give me your e-mail address I could send you a photo, but you may not want to do that on a public forum.
Don’t ask me how to switch PM on, mine was on so I didn’t have to work it out.
I have a very small head too, so I think it should fit.
After shelling out for it I would rather someone used it & it didn’t go to waste.
x
Just got home from 1st EC all went well, let’s see what tomorrow brings. I am exactly the same I have been in and out of work since diagnosis - I think that is what has kept me sane. Everyone has said my new hair is great and really suits me. Was going pixie but bottled it went to very short style instead. At the end of the day it will grow back eventually ?. cS66 I’m lucky to have a work laptop and taken work that I can do from home as and well I feel up to it if I don’t make it to the office!
So far so good, hope everyone else is doing well, good luck to those starting this week and thankyou all for the very warm welcome. Jo xx
Hello all, day 3 for me now. The nausea feeling is reducing and my wee is no longer pink, hopefully that’s a good sign?! Still feel fuzzy headed and am eating a lot of cheese and crackers, I have a real craving for them! I get very very hungry as well, think that may be a SE from the steroids. Last day of steroids for me tomorrow, will see how I fair after that as they may be masking other SE’s. Hope everyone is doing okay. I’ve booked my short haircut for next week, am going to hold off on ordering my wig for a bit longer xx
Well ladies my hopes of not needing chemo were well and truly dashed today. I have an assessment appointment on28th followed by chemo on 2nd February. I will be having 6 sessions of EC. Followed by radiotherapy. So a fun few months ahead. Think I need to star a February thread but I will pop in to see you all.
Jan
Good plan starting a Feb thread, but definitely drop in on us for support and tips etc. I’m only going to be 2 weeks ahead of you!
Now you know, you can get prepared. Check out the Dec 2015 thread too for advice.
Good luck 
Xxx
Hello all, have had a rubbishy night of no sleep, I don’t really know why as I took my steroids at 1130am yesterday. For the last few hours I’ve been laying in bed hungry and thinking about jam and peanut butter sandwiches, so have given I and got up and made myself one. Hoping to be able to get some sleep as I have the district nurse coming today to administer my first injection, as I’m too much of a wimp!
Ellie, I’m also at K&C as well, they’ve all been saying how busy they were the first week after new year though apparently they think it should calm down now. Sissy xx
Good luck today Mechele - hope everything goes smoothly for you today
Sissy, hope you managed to get back to sleep again. I definitely know where you’re coming from regarding the injections! I really don’t think I could do them myself or let my husband do them!! I really hope a nurse will come and do mine too. Anyone else having injections at home? What days do you have them and are you being brave and doing them yourselves?!
Got my pre-chemo bloods at the Dr surgery this morning, hoping they are normal so it can all go ahead on Monday!!
Take care everyone xxx
Good luck with that Claire xxx
First injection done, not painful which is good, just four more to go on this round. Managed to get a few hours sleep this morning, and have stopped the anti sickness drugs. Am thinking about fish and chips for dinner, am just so hungry! Apparently the injections cause some aches and pains. Claire, glad your port fitting was okay. Xx
Well I’ve started on the water, not sure how I’m going to manage all 2L, I guess I’ll have to miss out in the cups of tea! Feeling OK about tomorrow at the moment, but I’m sure that will change the closer it gets!! It is a strange feeling knowing that you’re going to be feeling rubbish and possibly worse for the next few months.
Well done for doing your own injections, still not sure I’d be able to do mine but we’ll see when the time comes.
Hope the pain from your next injection isn’t so bad tonight Ellie!
Good luck tomorrow Claire and take care everyone else xxx
Not until 1:30, but got my pre-assessment at 10am which they have said takes 3 hours. I’ll be sipping the water all through that as well! Hopefully I’ll be ok to have a quick sandwich for lunch first. Might take up a banana to keep me going too. Worried about feeling sick because I’ll be hungry and then not wanting to eat!
Xxx
Kim x you can make some of your fluids tea its OK x though decaf is preferable a couple of normal cuppas wont matter, Although normal tea is a diuretic its not as bad as coffee so a couple of cups is OK. If yoi have decaf then you can just drink tea thats what I have been doing this week as im in cycle 4 and im fed up of squash and water
Hope all goes well for those ladies who are having treatment this week x
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Hi all, ladies who are starting tomorrow, I ate some plain food, such as porridge and crumpets before my first chemo as was worried that id eat something I liked, would be sick and would then be put off eating it again. Once I’d got home I was stupidly hungry, which was down to the steroids and I ended up eating a massive bowl of pasta. Over the following days I liked lots of strong tasting food, mainly cheddar cheese and crackers! Keep on top of your anti sickness meds and take then regularly, I was told to take them for three days afterwards, then as and when required.
I’m having the district nurse do my injections at the moment, I don’t want to alarm anyone but since starting the injections on Friday I have been feeling quite rough. It may be a combination of stopping the steroids and starting the injections, but I’ve had a headache, keep feeling flushed and feel as if i have the worst hangover! I’m now day 7 so it should pass in the next day or so xx
Thanks for all the advice Managing the water quite well plus I’ve had a tea and a coffee. .Hoping I can keep this up - I’m guessing it wont be so easy the next couple of days!!
Sending lots of love to you Mechele (hope I’ve spelt that write - can’t scroll down and see!) It must have been quite frightening for you. Hope you’ve managed some sleep at least now.
I think I’d rather know about the nasty side effects, worrying as they are, then at least if I have them then I wont panic. I say this now …
Take care everyone, xxx
Hi all,
I hope all that have started this week are doing ok, get well soon Mechele. Good luck for tomorrow Kim and Claire.
I’m now on day 10 after 1st cycle. I’ve been up and down all week, feeling lots better but still quite nauseous.
I was sick the night of chemo, then felt like I was on overdrive from steroids, day 3 evening I woke at 4am, day 4 and 5 felt jet lagged, hungry and cold, day 6 felt a lot better until evening then started feeling sick at bedtime (not sure if I got a bug from my son as he was poorly in the night), day 7, 8, 9 and 10 a lot more myself but still nauseous. I have been fine from the injections, it’s been a little bit uncomfortable afterwards but that is it. My biggest worry is tomorrow my anti sickness tablets run out and I’ve been dependant on them up until now, not sure how long you should take them for afterwards. Constipation has been a bit of a problem on day 4,5,6. My mouth has been a little sore and rough and the inside of my nose feels sore too.
Wow that sounds like a whole load of symptoms but it hasn’t actually been that bad, at the time it always does but once you feel a little better you forget about it. Soluble paracetamol has been good for sore mouth, ginger biscuits, ginger drink, I find sparkling water with cordial better than still. Just go with it and eat lots on the days your body wants it as it doesn’t stay(I was worrying the days I just wanted to eat, think how much weight am I going to put on in 18weeks!!!)
Hope this helps, good luck and keep strong guys. We can do this. Debbie xx
Morning all, good luck to all the ladies starting today! Am now day 8 and Have woken up feeling better and more clear headed today, still a slight headache but nothing bad. My scalp has started to tingle though so I guess the hair will start to leave shortly, I haven’t washed it for days and it looks a right state! Xx
Back home now too, that’s the first one over with! Wasn’t too bad at all except I did worry them when I said I felt a bit dizzy! They stopped the treatment, took my blood pressure and pulse and called a doctor who listened to my heart. All fine though, think it was just how I react when something serious is going on! I am also weeing pink, so that’s flushing through OK :)
So, I’m on the following drugs at home:
EMEND one a day for 3 days (anti sickness)
Dexamethasone 2 x a day for 4 days (anti sickness and steroid)
Ondansetron 2 x a day for 2 days (anti sickness)
Domperidone 3 x a day but only if the above don’t work and I must phone the helpline first!!
Then I have injections once daily for 7 days starting on day 3 - my husband is going to do them!! Got a sharps box too.
They have also given me tablets for diarrhoea and also constipation
I think they have thought of everything!!
Feeling fine, a little fuzzy maybe, but have just had tea and toast plus jam tart for a snack so hopefully that will help with it all Time will tell …
Pleased it went well for you too today Claire and the cold cap wasn’t too bad.
Take care everyone xxx
Hi everyone , thankyou so much for the good wishes , I’m just beginning to rally round a bit. Firstly, I don’t generally sleep well anyway - 2hrs Wed, then Thursday with the steroids, slept only 11.30-12.30, then about 5-6am. Up and getting ready for going for chemo, so tired before I started. All went ok, they stressed that I had to tell them of any little ache etc, had slight tummy ache , thought it would just go and didn’t want to make a fuss - BIG MISTAKE . Anyway, got very severe, had to be rushed to A/E - ECG, bloods, chest / abdominal X-rays, IV drugs etc - home after midnight and totally wiped out - but still couldn’t sleep. All this could have been prevented , so a harsh lesson ( husband , quite rightly cross, and always saying nurses are the worst patients !!!) Sorry, can’t remember names but glad all went ok with today’s new starters, and that you feel ok . Love and hugs to you all , Mechele X X
Hi! Posted on the Feb starters thread earlier when I was on my phone but it took so long to post, I thought I’d wait until I got my laptop out before posting on here!
My dizziness wasn’t too bad, but I had decided I was going to tell them everything I was feeling so they could reassure me! My chemo nurse was surprised because she said that it is often the anti-sickness drug they put through which causes it, but I was given that last for that reason! Goes to show they are all different in the way they adminster these drugs. I was on a drip (saline maybe?) then injected through the canula with the pink drug first because she said that was the one you get most reaction to. They checked my blood pressure and pulse first, both of which are the low side of normal and then called the doctor to check my heart, but all was OK. so I think it was just that I was maybe feeling anxious. I think I’ll recognise it next time and be OK.
I’ve been finding (so far, I know it’s really early on!) that I want to eat! It stops me from feeling sick. Came home and had toast and jam tart (excuse was I needed to eat with my 4pm tablet) Then I was desperate for my tea at 7pm. Later on I had a cup of tea and 2 more jam tarts!!
Slept OK - just drifted on and off waking up to drink water then drifting off again. Fortunately my mind was clear of thoughts - maybe a relief to get it all started?
This morning I feel hungover, but still feel the need to eat! Trying to make sure I get this water down me today but the metalic taste in my mouth isn’t going to help. I’m still in be too, but I guess I should get a shower and potter around. I’m going to try and make myself have a walk too - we’ll see!
Good to hear from you Mechele, hope you’re feeling well today
Take care everyone, hope the rest of you are recovering from your side effects and heading for a good week!
Lots of love xxx