Hi Crocrazy
How did you get on with finding the complementary therapies? What sort of booking system do they use where you are? Am on the list for something in my area and just wait for a phone call when a space is free. They do sound lovely, so fingers crossed something turns up soon!
X
Hi Nuthatch. I hope all went well on Monday with your other treatment.
That is me now had 8 zaps so counting down now. Noticing a pattern emerging of radiotherapy area becomes very warm on the long journey home so I am being a complete hussy and exposing my top half completely when I get in and re applying cream which of course just melts in. I have the aloe Vera in the fridge for if it may become too Hot! I do cover up again mind just with a loose cotton night shirt when Cooled down. Fortunately being dark nights the blinds are all closed in the house and hubby is not home till 7pm so probably getting over two hours to cool down. Could never imagined myself doing anything like this before BC!
Second thing I am now noticing too is the actual breast that had the surgery becomes firmer and quite lumpy around the scar by the time I am going to bed. In the morning though it all seems back to normal. I asked about this today and was told ’ that’s normal!’ It’s the scar tissue inside reacting to the radiotherapy So no worries and it’s not painful it’s just a sensation which of course makes me want to touch it.
I have to say the treatment is going well and I feel well. Skin is showing no signs so far of changes just the nipple is a bit pinker but again told was normal.
This is all going better than I ever imagined it would have so will continue with my care instructions from the nurses and fingers crossed it won’t get too bad over the next few weeks.
Hopefully all is going well for those just starting. Xxx
Hi Nuthatch,
My meeting with the lady yesterday went well. She is from the Penny Brohn charity who run living well courses. I can have three sessions and they do all sorts of things - I think I am going to go for the mindfulness one. She gave me a CD for relaxation yesterday which I think will be a real help too.
I hope you get some dates and sessions in soon.
Day three for me today.
X
Hi I Don’t Believe It
Sounds like you are coping very well with your skin! That’s very good news. Hurrah for dark evenings and closed curtains and being a hussy!
Think my case is simple really because I have no nipples to worry about, and no need for a bra, being completely flat. So that rules out two potential concerns. Skin is pinker but haven’t found it particularly hot and I’m keeping my aloe Vera gel in reserve for when it does.
Infusion on Monday was fine. Not keen on having the canula put in but that’s minor really. Then cold feeling in my veins up to my elbow but after that I suppose the goo gets warmer and I didn’t feel it any more. I was achey yesterday and felt cold, but that’s about it. Have some lovely chewy calcium tablets to take now too.
Positive wishes to everyone else going through this. And hugs. X
Hi Crocrazy
Those courses do sound like something to look forward to. Am waiting for a call to see what spaces are free. Have you had a chance to listen to the cd yet? Hope it relaxes you - and that you have plenty of time to listen to it!
Day 10 for me today which is 2/3 done, yippee ?
X
Hi SharonB
Just saying hello and hoping you are doing ok? Are you day 9/10 now? Hope all is well and that your chest isn’t uncomfortable.
Good good vibes. X
Hi Ladies
I finished my 15 rads following right MX and total lymph removal on 19 December.
All through treatment my skin was good - just a little pink and scratchy feeling in the final few days.
However, a few days after treatment the skin becomes much redder/browner/blacker as the days/weeks go on - so my advice would be to use lots of moisturiser in the final days of rads - drink at least a litre of water (plus other drinks) a day, go bra less/top less whenever possible and rest up when you get the chances. Thankfully although my rads area looked terribly sore and I gained lots of sympathy from those who saw it - it actually wasn’t, as the area receiving the rads is still very numb following nerve damage from op!
This week I can honestly say all looks so much better - the peeling of skin has subsided and I generally feel the energy is rising within me!!
Good luck for remaining rads ladies - the end of the active treatment is almost upon you! and reaching that “final day” is just an amazing feeling… xx
Hello ladies
Sorry I have not been around for a few days but been a bit poorly and as a consequence a bit knackered. I hope you are all handling your rads well, I am going to catch up on your posts.
Sending you all hugs
Helena xxx
Hi Nuthatch,
Yay, 2/3rds done, that’s great. Haven’t managed to listen to the cd yet and I forgot to email the lovely living well lady I met yesterday too. I shall add it to the list of other things I have forgotten too!
Day three for me today. Managed two holds of 30 seconds today after being duff yesterday. Hurrah x
Hi Ladybowler,
Sorry to hear you have been feeling poorly, there are some really horrible bugs about. Hope you are feeling brighter now x
Hi Ruth,
Thanks for the tip about biting on the mouthpiece. I tried that today and managed the longest holds I have done. Thank you x
Hi Fiona
Good to hear that you had a positive meeting with your onc. Do you mind me asking what sort of things you covered? I don’t mean to pry but I only ask because I had a meeting with mine on day 8 of my rads. But it was a non-meeting because she asked how had I got on with the treatment and I said I was fine so far on day 8, and she looked surprised and said well we shouldn’t be meeting yet - I’m supposed to meet up with her 6-8 weeks after rads treatment is finished. So that was that! Bit of a scheduling muddle. I suppose different places have different policies. Ah well.
X
Helena
Feel better soon this cold/flu thing going around has been nasty
Xx
Hi Crocrazy
So glad it helped keep going xx
HI all,
Yes, it seems different areas have different ‘meet up’ policies during the rt process. Some seem to just go by referral from the rt team, if any problems arise, but some oncologists seem to meet at some point with the patient as a matter of course. I saw mine for about 2 minutes on about booster 3…so nearly at the end. It was also a non-meeting…it felt a bit more like box ticking as there was nothing to report really. She had a quick look and asked a few questions and that was it. However, everyone should have a follow up appointment 6-8 weeks after rt! Make sure you get it :smileywink:
Thanks all, for reassurance about the different policies in different places. Seems odd, but what can you do!
Think I’m getting anxious about being booted out of the system next Wednesday and then not seeing anyone for 2 months. It’ll be very odd.
Hugs to all, and thanks for your replies. X
Thank you. This forum is just brilliant! X
Good grief Charys! You must have felt abandonned. It does seem that you go from very intense to nothing at all very quickly. So glad I have this forum to turn to. Thank you. X
MIshy and Mai
Sorry I havent been on to congratule you, especially you Mishy as it was two days ago, but I am ringing the bells for you tonight. Hope you are doing something lovely to celebrate finishing active treatment.
Sending you both lots of hugs, remember that the next two weeks you will still be feeling the effects of the rads so keep on with your regime
Sending you lots of hugs
Helena xxxx
I am due to start 15 sessions of radiotherapy next week. I have bought some Aloe Vera in preparation but wondered if any of you have any useful tips in terms of protecting the skin? Or products you can recommend? I tend to have sensitive skin generally so am a little apprehensive. Thanks x
I am due to start 15 sessions of radiotherapy next week. I have bought some Aloe Vera in preparation but wondered if any of you have any useful tips in terms of protecting the skin? Or products you can recommend? I tend to have sensitive skin generally so am a little apprehensive. Thanks x
SharonB
You poor thing! Flu on top of rads can’t have been nice at all. A LOT of rest required. Yep, slapping on moisturiser and drinking loads. Session 12 today, followed by review. Can clearly see the areas of the treatment on my pink chest and underarms now. Will you be finishing next Thursday? (Can’t remember if you’re having boosters?) My last one is Wednesday and I’m feeling a bit peculiar about that. Xx
