January 2025 chemo starters

I liked Black Doves too. I watched Shetland which I loved as I used to work there. Just finished The Inheritance, a bit Miss Marpleish but filled a space!
I’m in the middle of the drama Playing Nice. You can tell the new chemo bed to sofa lifestyle! :roll_eyes::laughing:
Have a nice day :sunflower:

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Hi everyone,
I’m reaching out to see if anyone has any advice or recommendations to help alleviate bone and limb aches. Much like last week, these have started at about day 3 (I’m on weekly paclitaxel) and last 2-3 days.
Take care,
Mags

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Hi all, just been passing time having a nose on some of the threads in here… I’m finding my evenings being taken over hunting for info about fixing this stupid thing in my body… :roll_eyes:

Anyway, in for round two tomorrow. Know I should go to bed but probably won’t lol. Hope you’re all feeling ok and not too battered!

Take care everyone x

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Cocodamol worked for me, but mine was from the filgrastim injections x

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Thank you and all the best for tomorrow.

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Hi everyone. If you take paracetamol or co codamol please take your temperature before as it can mask temperature rises which could be a sign of infection. I was warned not to take if at all possible.

Epsom salt baths were helpful to me (with arm outside the bath if you have an PICC or shall if you have a Port) and a walk even if you can’t go far. Sitting or lying still seems to stiff me up even now on Letrozole.

Let your team know your side effects. You are doing great. :smiling_face_with_three_hearts:

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Hi there @mags3
Paracetamol & Brufen or like Leelee cocodymol regularly worked for me. Maybe keep laxatives such as Laxido handy as many people get constipation with chemo and cocodymol makes it worse! :face_with_diagonal_mouth:
Hope your pain improves, oddly, my pain bone pain was worse on day 6 after the injections. :man_shrugging:t3:

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@mimik12
Hi there, just picking up on your new chemo start post.
It’s an unknown and scary time for all of us, so if you would like some January starter buddies, come and join us.
Hope today goes well for you. Come and tell us all about it when you feel up to it. :blush:
We can do this!
Katie :sunflower:

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Thank you- great advice. I’m going to go walk the hound and see if that helps. It’s weird isn’t it, a lot of the time I find myself in observation mode…‘this happens if I do/ don’t do/ eat, etc. this’. I’m constantly telling my family, ‘No, that’s normal’ and then saying, ‘Well…not normal, but nothing to freak out about’. I hope everyone is okay. Take care. x

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So i had my second EC treatment on Monday and have been cold capping - today my hair has started to shred! I have a lot of hair follicles per sq inch, but am guessing from the amount of shed that this is the start of the end :face_exhaling:. Who did you ask for a wig voucher? Need to start looking at my options xx

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:heart: you ask your unit about a wig voucher and a list of places you can use, do also look at shops that do wigs and hair products too that are on high street, not sure where you are in the country but they will help you too :heart: hang on in with the cold cap if you want a couple that went through chemo sane time as me back in Oct17 did shed a bit but did retain hair it just thinned a bit :heart::two_hearts::two_hearts::sparkles::sparkles:Shi xx

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Big hug @dragonfly2. So disappointing when you were cold capping but I’m sure it has onward benefits too.

Don’t think I’m far behind you, 2nd cycle tom and the whole of my head is sore and itchy. :disappointed:
Hang on in there, you’re not on your own. :sunflower:

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@indigo2 Yes, my scalp itched a bit for a few days and my hair feels strange to touch. Good luck with your second round xx

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I cold capped with Paclitaxel and kept most of my hair, I shed and had two small patches above me ears. Overall nobody would have know I was having chemo. I think they were caused by wearing my glasses underneath the cap instead of over the top. The nurses didn’t tell me it was the Paxman website/YouTube videos that I found out after having 3 sessions. Different treatments and your hair before can depend on the outcome. There is a link on Paxman’s website that you can put in your regimen and it gives you the statistics of potential loss. Mine potential loss was quite high and I kept much more, although I do have a lot of hair and I cut it into a pixie.

I did have a very sensitive scalp for a long time and even after treatment finished. I needed to wear a hat outside as the wind felt painful blowing through it.

Paxman’s website www.coldcap.com
www.cancerhaircare.co.uk are a great charity to support people going through cancer treatment. They can send you some free eyelashes if you contact them. Lots of no nonsense advise.
:smiling_face_with_three_hearts:

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Evening all, I’m due round 2 on Friday but got a call from hospital saying my liver enzymes are too high :cry: got to go back tmw to check them again and might delay things. So frustrating. Anyone had anything similar? Xx

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Blood results are checked regularly to make sure you are ‘fit enough’ to have chemo. They will double check and if they are too high they may delay chemo. Your liver has to process the chemo so if it’s too high it can make you very poorly.

I was hospitalised with a temperature in Nov 2023 and my liver bloods were very high, I had a delay in chemo for 2 weeks. My liver results dropped but were still a bit high for a month but low enough for chemo to continue. I had to have liver check 1 month after finishing chemo to ensure it was back within normal ranges. A short delay in chemo is normal if your bloods aren’t within the normal range they expect.

Hope they will be better tomorrow :smiling_face_with_three_hearts:

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Thank you @naughty_boob as soon as they told me I made a green smoothie and have drank about 4 litres of water :joy: I’m hoping it miraculously fixes itself by in the morning!!! How are you getting on?

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I’m doing ok. I have a few ongoing issues but nothing compared to having chemo.

:smiling_face_with_three_hearts:

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@naughty_boob thsnks, ill see how mucj i lose over the next 10 days before making a decision xx

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Hi Dragonlfy2
I tried cold capping on round one and am now considering whether to for round 2.
I found it quite difficult and disorientating as I could not get my glasses on properly nor hear anything clearly with the cap and cover over my ears.
My hair started to shed significantly from day 15 so I cut it off this week with clippers. My scalp was hurting and the shedding was leaving chunks of hair all over the house but I did have long thick hair.
After cutting I could see I had some very bald patches although there is still a lot of hair in other areas. Bit shocked at the shape of my head!

I’ve got some head coverings from wrapdinlove etsy and some scarves that I have learned to tie.
I don’t think I am going to continue with the cold capping now its all off. Not sure about getting a wig…I’ll probably see how it goes. The nurses have told me that if you carry on cold capping it grows back quicker and better but I’m not sure what the data is. I can see that with the amount of hair I had and some careful styling I could have persisted with hair providing I didn’t lose much more so it might be worth you persisting if that is the case for you.

P x

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