Great news about the Portacath @dragonfly2. Hope it goes well on Monday with it. Worth it for those cuddles
We have been chatting about PICC lines and ports today and Iām going to have a little chat with my oncologist next week about it.
@etienne
Your rash is awful for you along with all the other side effects. Hope you get relief very soon.
Iāve become a big lover of Aveeno and Moogoo but just generally on healthy skin as a preventative thing for now. Amazon do great discounts on Aveenos big range.
Keep going, everyone is here for you, those lovely kids of yours will be looking forward to seeing a much better mum at the other end
@fimac1
On a practical level I think I would have some Paracetamol, Ibuprofen and Cocodymol (donāt take this with paracetamol at the same time tho) as a back up for discomfort. Salt water mouth washes (small teaspoon in a mug of warm water) or maybe some corsadyl like leelee1 suggested. Iāve just been given Difflam mouthwash to numb things a bit as like others, my mouth has started flaring up. I was given Angel delight ice cream today which was much nicer than the soggy weetabix I had this morning! Comfy clothes, soft blankets, a bit of meditation, nice music or a box set to try and relax. A little wander outside for a while. Iāve been drinking lots, having soups and puddings and fresh fruit. The right time to be kind to ourselves.
Anyone recommend a good film or box set?
My hair is starting to change texture and my scalp is sore and a bit hot. It was suggested by a friend in a similar boat to cut it very short and use MooGoo scalp shampoo on it, so today I have a crew cut and the shampoo is divine. Feels much better already. I think my hair may depart quite soon.
Thanks @indigo2 for all the suggestions. Planning on having a wee basket nearby with what I need so I donāt need to go looking when feeling
I had a pixie cut done last week in preparation for losing my hair. I feel better about losing my hair when short as opposed to waking up with longer hairs on my pillow or washing it down the drain.
If looking for a Netflix series, I loved Black Doves!
I liked Black Doves too. I watched Shetland which I loved as I used to work there. Just finished The Inheritance, a bit Miss Marpleish but filled a space!
Iām in the middle of the drama Playing Nice. You can tell the new chemo bed to sofa lifestyle!
Have a nice day
Hi everyone,
Iām reaching out to see if anyone has any advice or recommendations to help alleviate bone and limb aches. Much like last week, these have started at about day 3 (Iām on weekly paclitaxel) and last 2-3 days.
Take care,
Mags
Hi all, just been passing time having a nose on some of the threads in hereā¦ Iām finding my evenings being taken over hunting for info about fixing this stupid thing in my bodyā¦
Anyway, in for round two tomorrow. Know I should go to bed but probably wonāt lol. Hope youāre all feeling ok and not too battered!
Hi everyone. If you take paracetamol or co codamol please take your temperature before as it can mask temperature rises which could be a sign of infection. I was warned not to take if at all possible.
Epsom salt baths were helpful to me (with arm outside the bath if you have an PICC or shall if you have a Port) and a walk even if you canāt go far. Sitting or lying still seems to stiff me up even now on Letrozole.
Let your team know your side effects. You are doing great.
Hi there @mags3
Paracetamol & Brufen or like Leelee cocodymol regularly worked for me. Maybe keep laxatives such as Laxido handy as many people get constipation with chemo and cocodymol makes it worse!
Hope your pain improves, oddly, my pain bone pain was worse on day 6 after the injections.
@mimik12
Hi there, just picking up on your new chemo start post.
Itās an unknown and scary time for all of us, so if you would like some January starter buddies, come and join us.
Hope today goes well for you. Come and tell us all about it when you feel up to it.
We can do this!
Katie
Thank you- great advice. Iām going to go walk the hound and see if that helps. Itās weird isnāt it, a lot of the time I find myself in observation modeā¦āthis happens if I do/ donāt do/ eat, etc. thisā. Iām constantly telling my family, āNo, thatās normalā and then saying, āWellā¦not normal, but nothing to freak out aboutā. I hope everyone is okay. Take care. x
So i had my second EC treatment on Monday and have been cold capping - today my hair has started to shred! I have a lot of hair follicles per sq inch, but am guessing from the amount of shed that this is the start of the end . Who did you ask for a wig voucher? Need to start looking at my options xx
you ask your unit about a wig voucher and a list of places you can use, do also look at shops that do wigs and hair products too that are on high street, not sure where you are in the country but they will help you too hang on in with the cold cap if you want a couple that went through chemo sane time as me back in Oct17 did shed a bit but did retain hair it just thinned a bit Shi xx
I cold capped with Paclitaxel and kept most of my hair, I shed and had two small patches above me ears. Overall nobody would have know I was having chemo. I think they were caused by wearing my glasses underneath the cap instead of over the top. The nurses didnāt tell me it was the Paxman website/YouTube videos that I found out after having 3 sessions. Different treatments and your hair before can depend on the outcome. There is a link on Paxmanās website that you can put in your regimen and it gives you the statistics of potential loss. Mine potential loss was quite high and I kept much more, although I do have a lot of hair and I cut it into a pixie.
I did have a very sensitive scalp for a long time and even after treatment finished. I needed to wear a hat outside as the wind felt painful blowing through it.
Paxmanās website www.coldcap.com www.cancerhaircare.co.uk are a great charity to support people going through cancer treatment. They can send you some free eyelashes if you contact them. Lots of no nonsense advise.
Evening all, Iām due round 2 on Friday but got a call from hospital saying my liver enzymes are too high got to go back tmw to check them again and might delay things. So frustrating. Anyone had anything similar? Xx
Blood results are checked regularly to make sure you are āfit enoughā to have chemo. They will double check and if they are too high they may delay chemo. Your liver has to process the chemo so if itās too high it can make you very poorly.
I was hospitalised with a temperature in Nov 2023 and my liver bloods were very high, I had a delay in chemo for 2 weeks. My liver results dropped but were still a bit high for a month but low enough for chemo to continue. I had to have liver check 1 month after finishing chemo to ensure it was back within normal ranges. A short delay in chemo is normal if your bloods arenāt within the normal range they expect.
Thank you @naughty_boob as soon as they told me I made a green smoothie and have drank about 4 litres of water Iām hoping it miraculously fixes itself by in the morning!!! How are you getting on?
. Who did you ask for a wig voucher? Need to start looking at my options xx
you ask your unit about a wig voucher and a list of places you can use, do also look at shops that do wigs and hair products too that are on high street, not sure where you are in the country but they will help you too 
got to go back tmw to check them again and might delay things. So frustrating. Anyone had anything similar? Xx
Iām hoping it miraculously fixes itself by in the morning!!! How are you getting on?