im not sure if this will help you but i had my consultant appointment yesterday and they have agreed to give me a hydrocortisone injection along with my pre meds before next lot of pac to help with the rash on face. They also said i could change to a different injection instead of filgrastrim for the pain in my legs etc cant remember what she said it was called, the only thing that put me off was she said that it wasnt prefilled syringes and that i would have to mix up the solution for it. She said there were less side effects with it but not sure i trusted myself to mix it, and have decided to stick with filgrastrim.
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How did you find the 25% less dose? Iāve had my first EC and it made me so weak I ended up crawling around. Iām hoping the next cycle theyāll reduce it x
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@stafford22 it was still hard but better. Nausea was so much better but the filgistrim shots were still rough, but yes better. I didnāt end up having my 4th EC. My live enzymes kept spiking and I just hated every second of it so they agreed I could skip itā¦ youāll get through it, just take it one cycle at a time 
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@daxiedragon9 Iāve also had chest pain with Docetaxel. Like you, they ruled out heart and blood clots problems. On the plus side, my hip and joint pains have subsided a bit. Iām trying to control the chest pain with painkillers and itās kind of working. I also have gastric problems and oral thrush which is āfunā. Finding this much harder than the EC.
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The injections are vile! Iām on the last one for this cycle and I had great joy throwing away the empty box!
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@leelee1 I am booked in for Monday (bloods on Friday). The original leg ulcer is looking much better. The new abcess has started to heal and the infection is now under control (hopefully).
Good luck for Wednesday.
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@leelee1 Yes, I have my first Paxi tomorrow. Feeling a bit nervous.
I hope those who are struggling find relief soon.
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Oh thatās great news @dragonfly2 , bet youāre really pleased they finally seem to be under control. Onward and upwardsā¦! xx
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@heya_25 same here with the 1st pac tomorrow. Iām nervous too. Let us know how you get on! 
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Hi I had my first today and so far so good ! I cold plunge every morning so Iām hoping it may help with the neuropathy
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@heya_25 hope you got on well today
@gander32 well done you for the plungeā¦ it looks like itās got really good health and wellbeing benefits, and I have had visions of me being like Wim Hoff in the future. But then Iām honest with myself, I know not even a cold shower is going to happen unless the boilers on the blink!!!
@stafford22 literally!!! I donāt need to have them with paclitaxel thank god 
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Had my first pac yesterday. They gave me piriton and IV steroids before. Luckily no reaction. Iām feeling ok, better than on day 2 after EC! I am tired but I know my haemoglobin is low and there has been talk of an iron infusion if it keeps going down. Keeping fingers crossed 
about bone pain. My oncologist said it could start on day 3. I will still be having filgrastim injections 
but 6 in the cycle which I have tolerated before.
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6 filgrastim over the whole lot should hopefully be doable for you @heya_25 . Glad youāre feeling better today than on day 2 of EC.
Iām currently in the ups and downs of doing bits and pieces because of the steroids, then sitting down for a moment and waking myself up with my snoring as I need sleep two minutes later!! 
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What a roller coaster weāre all having!! Just reading back the messages. Just all so challenging and I think a huge part of it being the unknown. I donāt feel in control when Iām having these wild bone and joint pains and not knowing when they are going to stop. Very aware that the cycle starts again in a week. Think a chat to my onc will be on the cards as think Iām past my tolerance level now. Reading on here I was expecting an easier ride with pax and many people seemed to be experiencing upsets tums so I had Imodium at the ready, but now a curve ball in a completely a different direction! Chemo, the gift that keeps on giving 
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@indigo2 it may be worth asking to move to weekly? Thatās what Iām on, and I only found out yesterday the reason why (properly).
I have very low blood levels, so by having the weekly pax, it means the total (3week cycle ) dose is split across every week, therefore a reduced dose each week.
It means my bloods wonāt drop dangerously low, and I wonāt (fingers crossed) need the filgrastim injections! Ooh and another plus hopefully the SEās wonāt be as bad. Saying that the nausea and constipation are already here to say helloā¦!
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So itās Thursday and the pain has started , shooting down my legs not pleasant at all !! Wondering how long it goes on for ?
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Sounds awful @gander32 . Do you have any painkillers?
Hi have you told the oncologist. Itās important to tell them as theyāll reduce your next dose to prevent any long term neuropathy.
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Hi @gander32 I had lower back pain on day 5 of jabs, went to bed 10pm slept until it woke me at 3am, throbbing was realy intense, took 2 paracetamol and say on sofa for 2hrs, then it went off and I was able to go back to bed and slept, touch wood it didnt happen again. Dont forgt to take your temp before the pills. I am going to ask for the 5 day jab.
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