@jnra thanks for the link, i havn’t started pac yet but the cream looks good xx
1 Like
@dragonfly2 Hope you’re legs are ok. Now the bone pain has gone, I am feeling better on the Pax so far than EC. Still some fatigue though so trying not to overdo things even though the weather is so lovely.
2 Likes
@heya_25 thanks, yes, the bone pain has calmed down today and i havent needed pain killers. However i feel the fatigue is about to hit! I think the weather helps as it makes you want to get out even if only for a short time.
I got my wig shaped today and my son (12) said yay mummas back when he saw me - such a positive xx
5 Likes
Hey all, glad to hear the bone pain is settling for you. Had my 2nd pax on Friday - no bone pain as yet but it started Sunday evening last time round so there’s still time 
I’m all prepped with pain meds if it does though. However, I had an anaphylactic reaction to my infusion during. Around 5 minutes in, my throat started closing, shutters went down on my nose (the most instant blocked nose I’ve ever experienced) and chest started tightening. Called the nurse straight away and, I have to say, they were amazing. Within seconds, there was a whole team around me, all doing their individual things calmly and they stopped it in its tracks before it closed completely. Despite being objectively scary, I have never felt more calm or safer in their care! After being checked over by the doctor and filled with even more steroids and antihistamines, we re-started it at a slower rate and the rest of the infusion went by without any issues! All this to say, if you feel anything at all during, let them know immediately. When the weird feeling in my throat first started, I did the typical British thing of, oh I’m sure it’s nothing, I don’t want to make a fuss and interrupt whatever they’re doing but my mum insisted they’d said to let them know anything, and they told me that the fact I did was the reason we managed to stop it before it completely restricted my breathing. I’m absolutely fine, and this is not meant as a scare story in any way (especially as I think it’s pretty rare to have that severe a reaction to it) but just to emphasise to tell them everything during if something feels a little off! I’m hoping they allow me to continue with it as it seemed to be fine once I was medicated more strongly - I have additional steroids and antihistamines in my goody bag to start taking before and after but I’ll wait and see what my consultant says at my clinic appointment next week!
3 Likes
Does anyone feel really irritable on day 3 of pax? Im fine on the day and day after, but day 3 it’s best not to be around me 
and the tiredness kicks in. I haven’t had any steroids this time round, just pre infusion. Also feel so bloated. Day 4 the pain starts but hopefully can manage it.
Only two more to go. Literally can’t wait, I feel and look like crap. I’m just constantly day dreaming of al the things I’m going to do once this is over… 
1 Like
They are good when something does happen, aren’t they.
I originally started on doxetaxel back at the beginning, but like you ended up with a team of people around me. My symptoms were back pain, flushing, drowsiness that all came in within minutes.
I never put it in here in case it freaked everybody else out at the time (was new to all of us!), but I think we’re all pretty resigned to the fact now that things do happen, and they need to be highlighted!
Glad you are ok and hopefully got some sleep
5 Likes
I was day 3 yesterday… fed up day for me. A few tears in bed last night, and just not knowing what to do with myself all day. It’s like a ‘heavy’ day, is that how you feel?
2 Likes
@leelee1 Yes 100% it’s like how much more of this can I take!!! My life before diagnosis was great and I’ve always been such a socialable person, I love being with my family and friends and having a good time. To have it all ripped away from you for a year is so hard…but the end is near so that’s what we need to keep in mind. I feel more positive today. Going to have a nice Epsom salt bath and go for a walk. How are you feeling today? 
5 Likes
It’s frustrating isn’t it… I think with the sun being out as well it’s making me think I can do more than I can, then the yuk feeling feels that little bit worse when it does hit lol.
It was my mums birthday yesterday, but she’s also had pneumonia, so didn’t get to see her f2f either which didn’t help, but planning on next weekend! 
Will try to get out for a walk and some fresh air, but still feeling a bit sorry for myself at the moment if I’m honest!! Glad you’re feeling more optimistic, keep it up, we’re getting there… 
1 Like
@leelee1 yes it definitely hits harder when suns out and doubled with not being able to see your mum 
it was my sisters 40th last month and I could celebrate with her but we have a holiday planned to Majorca in June so get planning. Hopefully it’ll make you feel so much better xx
2 Likes
Hi I’m starting tomorrow and was just reading other groups about migraines. This is one of my biggest worries as I have severe migraines. I take Sumitriptan for them. Did you take them after chemo before the migraine started? Did that help? Xxx
1 Like
Hi @saints33 i can’t offer any advise on the migraines I’m afraid, but do hope your treatment went well yesterday, and it didn’t start one off x
First round of Docetaxil and Phesgo was Friday (done 4 x CE before this) and have terrible mouth and throat pain…other than ice-cream, what helps?
1 Like
@fimac1 If you can’t get anything from team, pop to chemist for some difflam mouth/sore throat wash.
Also I have found frozen fruit is nice, and apparently non-metallic cutlery helps too (but I haven’t tried that one).
1 Like
Keep eye out for thrush mouth ice pops like tip tops (if you are old enough to remember penny tip tops) helped me 
Shi xx
4 Likes
Treatment 3 of pax cancelled for tomorrow… low neutrophils.
Now I’m doing my temp every 2 hours and wondering if every SE is actually an infection on its way in…!
1 Like
Better to be vigilant but remember I had burning wee no temperature but didn’t feel right so rang team and it was a uti that needed antibiotics Shi xx
2 Likes
Thanks @Shi I did speak to team earlier and they were going to check with my consultant, although they didn’t seem overly worried. Like you say though, better to be safe than sorry! If anything changes, I’ll soon get on the phone…! x
1 Like
I hope everyone is doing ok. I had my second paclitaxel on Monday and now have leg pains and fatigue again xx
1 Like
Hi @dragonfly2 get dosed up on those painkillers…! I’ve just had no4 of 12 (yesterday) so am looking forward to them joining me tomorrow night…!
1 Like