@liteleft I feel the same. I was told chemo, surgery then rads then tablets. I thought this chemo was going to be the hard bit, but the more I read these posts the more I realise that this is going to be a loooong journey (HER2+, ER+, PR+).
I just wish somebody would have sat me down and given me the truth warts and all.
Have you spoken to your breast nurse? Perhaps they may have the info and the time needed to go through everything with you in detail? x
@leelee1 Thanks for the reply. Iām picking up a prescription from the hospital today, so I might drop by our MacMillan office to see if they can point me in my the direction. The breast care nurse assigned to me (based in the surgical department) is reluctant to answer questions concerning oncology.
And itās nice to know Iām not alone in realising the journey will be loong x
I think the prolonged ongoing treatment is the bit Iām most worried about. Iām seeing my oncologist tomorrow when she is going to talk to me about hormone tablets. She told me from the start what the plan is. Last chemo is on Friday, whoop whoop,and surgery is planned for mid June.
Hi @heya_25 hope your last chemo went well - congrats on reaching the end!
Hope the appointment went well re the hormone therapy tooā¦!
@liteleft how are you getting on?
@leelee1 much better thanks. I knew some of the spiralling was due to feeling awful from the chemo. But I also had a chat with the MacMillan chap and he put in a request to the oncology nurse to give me a call.
She called this week and went through all the figures/details of my diagnosis and I felt very reassured. They did a FISH test to determine my her2 status which came back negative. She also said many people work while on abemaciclib and find a way to cope with the side effects. I know it may be hard but they really are giving me the best chance of recovery.
@liteleft Thatās great, it must be really reassuring to actually just have somebody go through and explain everything to you, and what āstatusesā mean what. It saves you wondering and puts your mind at ease having the facts doesnāt it?
So pleased youāre feeling better. Youāre right though, a lot of the spiralling can come from the chemoā¦ Iām currently manically doing bits in the garden, but I know tomorrow will be the steroid come down and Iāll likely have quite a few down moments in the next couple of days!
Last chemo today after 11 rounds. Yay!
A mix of emotions, elated that itās over but now wandering into the unknown of the radiotherapy and possibly Abemicaclib chapter for three weeks and 2 years.
Having the whole of June off though so thatās a bonus!! 
Has anyone any experience with the Zometa bone infusion you often get with your last cycle then 6 monthly? Had it today too, they mentioned that I may feel a bit āoffā over the next two or three days, but home 3 hours and feeling really ropey. Fluey, sick, joint pain. 
Aw well looks like Iām going to finish with a bang. Cancer, the gift that keeps on giving 
Best wishes with on going treatment and hopefully ending your chemo soon too ladies!! 
Congratulations on finishing your chemo
As far as Zometa/Zoledronic acid I had mine separately and have had 3 out of my 6. Each time flu like aches and pain for 4/5 days. I took paracetamol and rested when needed. First time I had it I was very tearful as it brought me back to chemo days but now I see it as a few days rest! I think mindset can help some on this journey/treatment.
Help and tips/advice needed. Had my 4xCE, then started Doxy, but that made me poorly so moved me to Paxy and have had 3 so far with 6 to go. Was due to have a round today along with Phesgo but I admitted that the runny tummy I was having on a Monday and Tuesday after treatment had now started to be all week (TMI but up to 10 times a day). Treatment was pulled and I now need to see consultant on Thursday to either get dose reduced or another type of chemo. Anyone else been here and what are the options? My finishing date keeps getting pushed further awayā¦.
@leelee1 good luck with symptoms for the next few days. Hope they arenāt too bad.
@fimac1 I had a bad reaction to EC and from then on was on a 25% reduced dose every time. They do go down to 50%. I hope you can find the right solution.
So consultant had covid and I spoke with another oncologist via a phone appointment. Tretament was refused again for the same reasons. Now being told that I will either get more EC (although not preferred as you cant get Phesgo with that), lower dose Paxi, different chemo or no chemo and straight to operation. So stressed that I might have no more chemo, but also rather excited at the thoughtā¦anyone else had chemo finished early and moved to operation?
Iām sorry you are having such an issue with your chemo. Some people having issues with Paclitaxel are moved onto Nab Paclitaxel/Abraxane. On some chemo threads many have been able to complete their treatment by swapping. I hope you are able to continue but if your body is not tolerating it, then maybe itās not right for you. I have read of some people having to finish their chemo early and then surgery, some have had surgery first and not been able to finish chemo. As with everything with this cancer journey, we are all individuals.
It may be worth a call to the BCN nurses from 9-4 tomorrow 0808 800 6000 or MacMillan 8-8 7 days a week 0808 800 0000 to talk this through.
@Shi Iām just reading back on various threads as Iām due to start in June. Love this song a day idea and butt buttering 
brilliant! x
Update from my Oncologist appointment today. She has no concerns and I start back on Paxi tomorrow for 6 more roundsā¦panic over. She clearly sees a benefit in continuing the treatment. Never felt to happy to know I am going feel like pants for 6 weeks 
@fimac1 Iām so pleased you finally know your plan. It must put your mind at ease. Hopefully they can give you extra meds for the stomach issues?
Iād forgotten this week was a BH so no MDT on Monday. My treatment was cancelled again this week due to neuropathy, but have consultant appointment Monday coming so fingers crossed I will get a decision too!
It doesnt matter to me what the plan is, just the best plan for me/you. Once we know we can work with it
So I had my appointment with consultant this afternoon. Thatās it. Chemo done!
I was due to have a line flush afterwards but instead they took it out!
I know thereās a lot of waiting in this journey, but blimey once they decide on something it sure does happen fast!! 
Next stop surgeryā¦
Brilliant! When is your operation set for?
How does it feel with no PICC line?
Apparently it will be around 4 - 6 weeks. Need to see surgeon first to go through options, so a wait for that appointment first.
Iāve got 2 x IDC and 1 x DCIS in left with 2 positive lymph nodes, and thereās a benign lump in right that theyāll also want to remove apparently, so she said to have a think about what Iād like done if I get a choiceā¦ Erm, nothing?!! 
I keep looking at my arm! It feels as naked as my head haha!! And I canāt wait for a bath tomorrow night (not allowed tonight)!
I took a photo of the line once the nurse had removed it as a bit of a memento , think she thought I was a little strangeā¦!