Hi all,
I debated posting as somehow it makes it all seem real, but here we go. I am currently waiting for biopsy results following a breast clinic appointment on Thursday. I had previously been last Feb and everything was fine, just a fibroadenoma. I was hoping for the same this time, but after mammogram inc 3D, and USS followed by 6 biopsies from one lump and one swollen lymph node, I left just knowing it wasn’t a fibroadenoma.
It was really strange because although I convinced myself it would be the same there were also some differences from before - the lump was hard, not really moveable and there was a small dent. I was still completely overcome when I asked the sonographer, and she very quickly said no, its not a fibroadenoma.
Having read this forum before going I tried to find out what they thought but only got told they didn’t know. I’m hanging onto the fact that unlike others I wasn’t told it was suspicious, or that it was likely malignant and the cancer word wasn’t mentioned once. I also didn’t go back in to see the Dr afterwards as she’d already told me if they see anything they’ll biopsy and I will get a follow up appointment. I left in tears awaiting some sort of contact once the results are in and the MDT have met (on a Thurs afternoon). So at this point I still don’t know when or how I’ll get the results.
I feel a bit lost, not getting anything more definitive and just having to wait. I’m trying to keep busy. Have other people just been sent on their way, feeling it’s something awful but without getting much indication from the health care staff, who were absolutely lovely just very non-committal ?
Thank you x
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Hi Shi, thank you for taking the time to respond. I’m hoping I don’t have to but I will definitely ask those questions if it comes to it. I’m clinging on to the positives, that no one has said there is anything to worry about as of yet. The support I’ve seen on this forum is amazing and I’m glad I’ve found it for this part of the process xx
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Hi @sunshine-smile (lovely user name) I was one of those told that it was cancer at the biopsy but that the results would tell us what type. In some ways it made the waiting more bearable. Nevertheless I cannot help myself but research everything and therefore I know that there are nine benign things a lump in the breast could be (although two are really associated with breast feeding) and also that 75-80% of biopsies return a benign outcome so try to hold on to that during the wait. You’ve been put into an unexpected and surreal situation but, in the overall scheme of things, it will be over quickly and once you have the results, whatever they are, you’ll be able to focus on the future. Keep posting here if you need to download, we’ve all been there and can support you along.
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Hey sunshine (lovely name 
), I can’t add much as I’m in the waiting room too, just wanted to offer a hand hold x
This forum is amazing but I offer one piece of advice if I may…, don’t read ahead of where you are and don’t Google anything. It’s very tempting but I’ve found it overwhelming. Sending you positive vibes xx
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Thank you Tigress, I have really found this forum helpful if only to understand how it all works and what to expect. I have also been looking at all of the benign things it could be and just hoping that it is one of them xx
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Thank you Bella and sorry to hear you are also waiting for results it’s such a stressful time and I’m only a couple of days in. Once I’d had a chance to calm down and process I went back to work on Thursday after my appointment and I honestly think it was the best thing to do. Apart from researching benign lumps I’m definitely steering clear of Google for now, just taking it one step at a time xx
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Sunshine I was also one that was told straight away. The BC nurse kept trying to say I don’t know until I get the biopsy results but I kept responding saying “the radiologist and the oncologist keep referring to it as “the cancer”, it clearly is!”. I’m glad I knew straightaway and only had to wait for type on results day, as that was hard enough. Everything crossed yours is benign, but if not it’s so true - it’s the initial bit with the testing and the waiting that’s the worse, then you start to move forward and it does get easier, just different xxx
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@sunshine-smile I have absolutely been in your position.
I have been referred to 2WW breast clinic three times. Every time I have had ultrasounds, mammograms and biopsies, and been sent on my way afterwards with no idea of what it was, and told I’d get an appointment in the post. It’s just how my unit works. I guess they want to be vague so nobody is given the wrong impression.
Although I’m “in the club” now, the first two times were benign, (and I also had a face to face appointment to get the results) so please do hold on to this while you wait.
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Hi Floss, thank you. I think in my head that was what I was going to do, keep asking until there was maybe some clarity but on the day I just wanted to get out of there! It’s just so helpful to be able to speak about it with people who have been through it and know how it feels xx
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Hi Leelee, thank you, that really does offer some additional hope and it sounds like our units are similar. Also really helpful to know that you had a face to face for benign results so I don’t necessarily have to fear the worst if I get such an appointment!
I think the most frustrating thing today is there has been a whole weekend and now a bank holiday so I’m really still in the same waiting time frame as I was on Friday! Although generally I feel a lot calmer than I did then. Just been back in the gym as well this morning so feel more able to cope for now.
Thanks to everyone for making this slightly more bearable xx
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That extra day is frustrating isn’t it!
In the meantime keep up the normality… distract yourself as much as you can to stop your mind wandering (easier said than done, I know!)
Fingers crossed you hear quickly, and that it’s positive news, if not, everybody on this forum will be here to support you.
Hi my dear I know it is so hard and scary when you have to wait for results. We are here for you prayers your way
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So a week gone and still no word about anything. The amount of sleep I’ve had has a massive impact on how I get through each day and thankfully it has mostly been plentiful! Just out of sheer frustration yesterday I called the unit just to make sure I was clear on how I would hear anything and mostly took away that it just depends. So probably another week to go, at least.
I can’t do anything other than wait and try and keep positive but it is getting increasingly hard when I’m not at work - when I’m there it is so normal that how could I possibly get anything other than good news? Then I think about that sonographer and her demeanour and her very definitive no, it’s not that (fibroadenoma) Fingers crossed for something, anything soon before I go completely mad! Thank you again to everyone who contributes to this forum, it is a safe and calming haven for anyone going through this xx
Hi sunshine, I get my results on 22nd which will be 4 weeks after my biopsies. I’ve definitely found that keeping as busy as possible really helps. Also, I’m afraid to say, I do steer away from this forum as much as possible. I know everyone here is amazing and the support is fantastic but I’ve found that rationing myself to one log on every 2 or 3 days at most is helping me to cope. Nothing is going to change my outcome on 22nd, I just have to get there so am putting one foot in front of the other, trying to tire myself out with physical activity so I sleep, and am seeking enjoyment in as much as possible every day.
We can do this x Love to everyone else waiting too x
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Hi Bella, wow four weeks that seems like such a long time to wait. Do you know why it has taken so long? Yes keeping busy definitely seems the way to go. After my last post I had such a busy weekend with lots going on so that was blissful, it flew by! I’ve also kind of got myself into what I hope is the right mindset to deal with the ongoing wait, as you say, nothing I do or say will change the outcome. I wish you all the best for your results day xx
So it’s been a long and stressful week. Got my clinic letter on Tuesday which didn’t say much more other than a 12mm lesion (so small thankfully) and two abnormal axillary lymph nodes. The abnormal part jumped out at me as last time it said reactive. The stress got the better of me and I called the Breast Care nurses whose number was on my letter, only to be told my results were not back yet - could be 3-4 weeks! A bit of an explanation about how I would hear and that if I hadn’t heard anything by today I could call again and they could tell me if results were back and whether I’d be getting a letter (indicating all was well). The MDT meets on a Thursday so if results were back by then and needed to go to the meeting I would likely hear the next day. I asked about the score others seem to get following ultrasound but nothing forthcoming.
First thing this morning I received notification of a face to face appointment next Tuesday with the consultant and a phone call to make sure I got it. My heart sank. Hard to not think the worst now. I wondered if my results had been back on Tuesday but they were stalling. Anyway the wait is nearly over. I’m clinging on desperately to the “you might also get a face to face if it’s benign and need some sort of follow up”, but 2 abnormal lymph nodes doesn’t sound too good. I’ve been an emotional wreck all day. 4 days to go xx
Hi Sunshine-smile,
Wishing you the best of luck for your results on Tuesday. Im in a similar positon to waiting for results, long story short, noticed discomfort around last november but was were the wire in your bra sits so put it down to that and tried non wired, sports bras for a while, no different, did go get checked on 29th April and referred to breast clinic, this didnt phase me as I have been diagnosed with breast cysts before so when I went to my appoinment I was expecting to be told its another cysts so it caught me off guard when they said they needed to do a biopsy.
They suspect a fibroadenoma due to my age (31) but cant confirm it without the results. At clinic they said they would either call or ask me back in for my results. Anyway this Tuesday I received a text for a face to face appointment on 20th so im absolutely bricking it that ive been called back in!
I have since found lumps in my other breast and I called clinic to tell them and they are going to slot me back in for another scan on Tuesday
Hey dogmum, the waiting is just so hard! Yeah it threw me too when they said biopsy. I did have one last year and mine turned out to be a fibroadenoma so hope yours is too. I’m not sure how it all works, some say fibroadenoma and don’t do a biopsy, some do, I’m not sure how it is all judged. Also just as terrifying to get a face to face appointment but I will be glad when this waiting is over. What time is your appointment? I have to wait all day until 3.20 so not looking forward to that at all. Just have to keep busy with no work between now and then xx
It is, if im busy im ok but in the quiet moments your mind can go down a lot of rabbit holes and can get very dark.
When you had your fibroadenoma diagnosed did they get you back in for a face to face appointment?
They said to me during the ultrasound/biopsy that because I was over 25 they have to automatically go down the biopsy route, but part of me wondered do they just say that so you dont worry?
Ah heck thats quite a wait on the day before your appointment, mine is at 12.30, I’ll be working the morning but how much work I will be able to concetrate on is another question!
I hope your results come back benign too, keeping everything crossed for you xx
the waiting to know is difficult but please try and hold onto till a professional tells you, you have breast cancer, you do not have breast cancer. If when you get your results it turns out that it is you might want to ask grade and stage and type, if you want to know when they tell you if it is breast cancer and that does depend if they can tell from the biopsy. I don’t want to bombard you because you currently do not have breast cancer till they tell you. Do everything your own way Between now and results and we’re all here between now and then so ask away as much or as little as you need 
