I am only on my second of twelve Paclitaxel after having had 4 EC. I hadn’t expected the joint and muscle pain to be quite so bad, I am struggling to walk. I do have underlying auto immune arthritis which I’m guessing doesn’t help. Has anyone else had a problem and if so did it increase with each cycle ? Thanks
Hi, I really feel for you as i experienced this pain too. It was just as severe each cycle. However i noticed that it was more pronounced over a range of the same several days each cycle…eg days 4 to 7. This helped me see it as temporary and i was counting down within that window knowing there was a pattern and it would ease…rather than seeing it as never ending. This might not compare with your experience but it helped me a little.
I took painkillers which took the edge off and helped a bit with sleep, and i used pillows between my legs etc to try and take pressure off the worst areas.
Im sorry though, i remember how rough it was but it will pass. Sending hugs xx
I had Abraxane, which is a form of Paclitaxel. I had muscle pain in my legs for a few days each session. I took Paracetamol which took the edge off, but was advised that I could try Ibuprofen if it became unmanageable. Failing that the onco team would be able to prescribe something stronger.
@grace2 I am exactly the same. Have finished 4 x EC without any bone/muscle pain and have started 4 x paclitaxel. The first round was a nightmare, day 3 following treatment I had severe bone/muscle pain, could not get any relief from and like you had trouble walking, thus lasted 3 days. I spoke to my oncology team and they gave me some pain killers for the next round. Currently day 4 past the last round of treatment and yes, I do have the bone/muscle pains but the tablets have taken the edge off and although still there is now manageable.
Definitely worth speaking to your oncologist to get something to help.
Thanks so much for your reply. I agree with you about seeing it as a temporary problem. It does help when you can see a pattern for the side effects. I’ve had 2 treatment breaks recently to reduce Peripheral Neuropathy which has helped a lot but it is disappointing to have the new side effects instead ! Still, what can you do except keep going . I hope everything goes well for you. X
Thanks for your reply. I have Ulcerative Colitis so can’t take Ibuprofen but will do as you suggest and speak to the nurses if I need something stronger than paracetamol. Hope you are doing well. X