I finished chemotherapy about 3 months ago and had my first Zometa bone infusion with my last cycle.
I have had increasing joint pain ever since.
When I get up in the morning I’m like a 90 year old and I have knee and ankle pain and my finger joints are sore and stiff.
We had a lovely walk today for over an hour and I’m now lying here with burning wrists, knees and ankles paying for it!
I’ve since had my 3 weeks radiotherapy with no problems but still, sore joints all the way through. Im having a months break before starting Letrozole and Abemaciclib.
Im almost scared to take the hormone blocker as Im reading about the severe joint pain that can be experienced with that and I’m having problems already.
Has anyone else had long term joint pain since their chemo/zometa?
I’m so sorry you’re experiencing so much joint pain. I hope a forum member will have an experience they can share with you.
In the meantime, this may be something you’d like to chat with our specialist nurses about. You can get in touch with them here on the forum on the Ask our Nurses your questions board or on our helpline 0808 800 6000 which is open Monday to Friday 9am-4pm and 9am-1pm Saturday.
I’m struggling with joint pain too. It started during my second to last paclitaxel and it’s just getting worse. It’s been 3 months since I finished chemo and I’m miserable with the pain.
I also have to go on Letrozole and Abemaciclib and I really don’t know how I’m going to be able to do it. I hate that I’ve gone from feeling young and fit to this.
I’m going to research supplements/foods that might help!
I started with Tamoxifen, a few minor ailments but no joint pain. Started Zoladex and moved onto Exemestane no joint pain, received first Zoledronic infusion no joint pain. Fast forward nearly 9 months, ankles and knees are now stiff and becoming uncomfortable.
I don’t think it is any one medication, but more a case of the drop in Estrogen is now taking effect. While stopping or reducing Estrogen helps prevent hormone receptor cancers from growing or recurring, it does unfortunately mean bone and joints suffer.
I won’t know what a natural menopause is like, but I gather that many ladies suffer with joint pain as estrogen reduces naturally. Unfortunately for us, it happens a lot quicker. The treatments no doubt exaggerate the symptoms, making it really unpleasant for some.
I’m hoping the stiffness will settle down as my body adjusts, it’s only been noticeable the last few weeks, but not severe enough to quit (yet). Time will tell.
Posting too as i am also struggling beyond belief with bone and joint pain. this is post chemo but i can barely get down the stairs. It’s in my legs, feet, toes and hands.I
A month on I am much better. I’m stiff doing certain things but not in as much pain at all and finding it much easier in the mornings.
I’m not sure why but perhaps because I’m more active??
Thankyou for the reply. . I spoke with the oncologist and she said that it could be arthritis… i has no idea this could happen after treatment!!! My feet and hands are very swollen. I am wobbly on them on the night. Is this life now?! X
this is post chemo but i can barely get down the stairs. It’s in my legs, feet, toes and hands.I