Have just spent the best part of today in the hospital trying to get some stronger painkillers to try and ease the horrendous joint pain I have had since the T part of my FEC-T treatment on Thursday, the pain in my arms, legs, fingers, ankles and hips,is horrendous. Anyone else experienced this?? Been given tramadol but at the moment it doesn’t seem to be having much effect? Feeling wiped out and pretty down tonight. ?
Hi…so sorry you are in a lot of pain and hope the painkillers do the trick. When I changed from FEC to Tax in 2012, felt just like you are describing. Stayed in bed for 2 days, which was just not like me as I worked throughout chemo. Just before Tax2 Onc told me that the pain I had been experiencing was due to the change of chemo regime, that the FEC was still in my body and reacting with the Tax…why didn’t she tell me this before?! Plus the bone aches co-incided with the white blood cell daily injections, so exacerbating the pain…!!! For TAX 2 and 3 I took max dose of paracetamol, alternated 2 hourly with max dose of ibuprofen starting on day following chemo for 5 days. This apparently switches off the pain receptors in your brain. Worked wonders for me and bone pain was much more bearable…may just have been that body was more used to it? People have described it as being hit by a truck or going several rounds with a heavyweight boxer! May be that you need stronger painkillers so please discuss with your Onc. Having a warm bath with ‘muscle ache’ salts in and cuddling a microwaveable heat pad helped too. Sincerely hope you feel better really soon…all the best xx
Hi
I also had the joint pain and ended up in hospital. It was awful, i just couldnt do any thing with my self.I was given stronger painkillers and it helped. This time with the T its not been as bad. You need to make sure you rest and i also have Lucozade sport( Rasp) Because i just cant eat anything but soup for a week because of the cotton /sore mouth. I found this to give me a bit more energy.
Hope you feel a bit better soon.
Hi there … I had my 1st Docetaxel 13 days ago … I would liken the pain to falling 100ft on to concrete if it was possible to survive it … absolutely everything hurt and the pain was excruciating … I was bedbound for five days and I’ve also had two trips to A&E with high temperature … and right now I am blubbing like a baby as I type … feeling so low and emotional.
The fatigue has been debilitating and I am petrified at the idea of sitting in that damned chair next week while the stuff is dripped into me again. This is the worst I have felt since my diagnosis in June having felt very positive throughout surgery and most of the FEC cycles.
I’m seeing my oncologist today and hope they will offer stronger painkillers and a reduced dose of Docetaxel next week … everything about this is just so hard … I really really hate self pity but feel I’m wallowing in it right now and struggling to snap out of it 
… Lynda Bellingham’s death hit me hard and I feel guilty that I’m not appreciating how fortunate I am … which has been my mindset throughout until recently.
I do hope others are getting the help and support they need to deal with it … it did help to read others are feeling floored by it too even though it saddens me that this treatment is so punishing on us.
Best wishes all.
How’s it going Leonie? You had another Docetaxel on Thursday. For got to ask about your steroid regime, and how’s your iron? I had my last docetaxel on Friday, and tuning down my steroids, because although they manage the pain a little, the cliff edge of steroids to no steroids is dramatic, and I have very powerful roid rage, so I take fewer and fewer steroids so it isn’t so much of a leap. Means I am in bed for q a few days, but I think that’s better than murdering someone. I have also put on weight with the steroids, but hope to take that off next year.
I’m currently doxeaxtil and had really bad joint pain but went to the doctor and they prescribe really pain killers that really helped me hope u feel better soon xx
Hi
I finished my last chemo Had 3 FEC-T Then the 3 T last week, and feel the same as you. No energy,achie all over even my eyes. Keep Strong it can only get better. Thats what i keep telling my self. 