Sorry I thoufn you said nice to see you.
Chemo brain. Everything I do or say wrong now gets blamed on that. Good get out clause. ?
Hi Carole also not able to join all of you on Facebook don’t do fb! But happy to catch up with everyone on here!
Had awful night with this water brash it’s just not letting up making it difficult to drink anything, rang unit they are getting a script sorted out for me with my gp hopefully it will work as I suspect this is what made me poorly the last time I don’t want to end up in hospital again so fingers crossed x hope everyone is feeling OK today, thin so chemo is pants can’t wait for it to be over!!! Roll on good week!
I second that mishy. Roll on the end of this. Im sick of feeling tired Avery afternoon and looking an absolute state. I think I’ve aged about ten years since April. Doesn’t help living on a building site either, so no home comforts for me. I might have a shower, get dressed up, put my new wig on and tell hubby we’re going out for tea (again). ?
Hope you’re feeling better soon. Nearly at the half way mark and the END of fec. Can’t tell you how many times I repeat that to myself a day. X
Ended up having to go in again for 2 nights dehydration due to the water brash it’s awful seems chemo has given my stomach a hammering! Now taking lanzaperol 2 daily in hope it will go away it is like a constant acid reflux mouth just keeps filling up anyway got home yesterday and binged on a boxset! Diet now has to consist of bland, not spicy, rich foods… Great!! So now in my good week I’m gonna have to be sensible! No nice citrus fruits or anything like that bloody roll on the end of October!
Mind the consultant in hospital did say Tits the Fec that causes stomach problems so apparently the T isn’t as bad, well I hope so my body has really let me down on this mind, I breezed through the surgery side, I’m never poorly ever, never have to take tablets for anything till now so it just goes to show you how it can affect people differently x
I know how you mean about aging 10 years too… Snap I’m about as glam as you can get… Not atm!!! Def need an overhaul after all this!!
Sorry for such a depressing post ladies, at least today the sun in shining hopefully all day so I can get in my garden xx
Sorry to hear about having to go back in hospital Mishy. Hope the meds work quickly! Is it Taxol you’re having after Fec?
I checked and I’m having epirubicin and cyclophosphamide 3 weekly once I’ve finished with the weekly Tax/Carbo. Touch wood I’ve been okay so far, but I’m dreading the second half of the treatment. I have a feeling that it’s going to be much worse than the weekly treatment.
Question for you ladies- if you had surgery first how long did you recover for before starting chemo? And did you have a WLE or Mx? Trying to figure out roughly how long it might be after finishing chemo before I have surgery.
I’m sure it’s doxetaxol apparently you don’t get as much of the sickness side according to an on call onc whilst in hospital! I have heard of a lot of people getting this reflux problem during treatment I hope it’s not permanent apart from the odd bit of heartburn I normally have no problems with stomach it’s horrible, looks like I’m paying for eating like a horse on my good week! I hope the meds work too, as a rule I hate taking meds, all the time I’m a firm believer of you can manage without them you should but not atm!!
Also I had an almost 7 weeks following my surgery before treatment started, I found that side of this very doable!!!
I had 7 weeks from surgery to chemo because my boob was a bit pink and reactive. I had mastectomy with reconstruction with expanding implant and Axillary node clearance. 2 weeks into my first FEC I went into hospital with high temp and my implant was rejecting and infecting so I had emergency surgery to remove implant. Back to chemo after 2 weeks so delayed it by 1 week. The side of my almost gone boob and underarm are still very painful and I’ve hated every part of my surgery.
Oh Carole that sounds awful, you poor thing, after this year is over I have decided to have a well deserved holiday and some good times with family I feel like they deserve it as well as me it’s tough on them too, my daughter is due my first grandchild in middle of my last too cycles and I’m worried I won’t be well enough to support her during the birth and early days after baby arrives
I will have to make up for it when I finish all treatment… Can’t Wait to meet her
I’m so wanting a holiday after this, even if it’s a week in a cottage in Cornwall in February.
How lovely to have a grand child to look forward to. I have four between 6m and 5y but I’m not well enough to child mind them at the moment. This horrible disease robs us of so much. I’m hoping to get my boob sorted next year after all the treatments as I’m left with a painful wrinkly lump.
Meanwhile on with the chemo x
It really does Carole x here’s to holidays next year and lots of cuddles from our Grandbabies!
I’m definitely looking forward to being the other side of this, I don’t think any of us are really mentally and physically prepared for this when it happens it’s like your on a conveyor belt just going through the motions of it all x
All I can say is, thank goodness for Skype and Messenger and all that stuff, at least we can still see the grandchildren running around being daft! (well, that’s what mine mostly do!). Mishy, it’s so sad that you have to be going through all this when your grandbaby is born, but believe me, you will get so much joy from the new baby and you’ll soon make up for lost time. And hey, the new baby won’t have much hair either!!
Missaconitum, I’m in the same boat as you, having to go through chemo first and then surgery after, I have no idea how long the wait might be, and the docs are just saying that we’ll have to wait & see. I’m guessing it will be at least several weeks – the usual three weeks that they allow you to recover between each chemo, plus a bit more, plus maybe we’ll have to wait anyway for a “slot” on the surgeon’s list? I’m not looking forward to surgery at a time when I’ll already be pretty weak and feeble. But I guess that’s just how it goes. The first time I had cancer, 15 years ago, I had to wait 12 weeks between surgery and radio, and I thought that was dreadful – for the first week or so. Then it dawned on me that I could go on holiday and have a wonderful relaxing time, which I did. Maybe we can do that this time, after chemo and before surgery!
Now all I need is some suggestions for where to go for a nice relaxing little holiday in the UK, no flying, no swimming, and it’ll probably be October/November. Hmm. Not the north of Scotland, maybe…
Morning mishy. Sorry to hear you’ve been through the mill again. I get bad acid reflux for the first couple of days after treatment, but nothing like what you’re describing. It sounds awful. I hope you’re on the mend now so at least you can enjoy some relief before your next one.
My granddaughter was born a few days after surgery and I was worried I wouldn’t be able to pick her up. im sure you’ll be well enough to give some support to your daughter when the time comes. It seems the main problem with the T is bone and joint ache? Hopefully we’ll be given good pain killers if that’s the case. Or even better, we’ll get lucky and sail through it.
I’ve got my final fec next Tuesday and we’ve booked a few days away in Keswick from the 22nd and then I’m taking my 3 year old grandson away for a couple of days after that. I really hope I haven’t been overly optimistic and that the se’s are no worse for me this final fec. He’s got boundless energy, so I’ll just have to plough through the tiredness.
In the meantime, me and hubby are sleeping on a mattress on the very dusty living room floor waiting for plaster to dry out in our bedroom so we can have at least one clean sanctuary ready for next chemo.
The joys of moving house on chemo. ?
Hey feel the fear have a great trip, yeah feeling alot better today day 9 still got the awful reflux rang onc for advice waiting on a call worried my bloody teeth will suffer because of it, good luck with the final fec got mine in just under 2 weeks then it can fec ***!
Hope you have a good time with your last one fingers crossed x
Just think though your at the half way line then x
Tatyana yeah you will need to be in full physical recovery for the op so everything goes smoothly x
Yeah Skype is a good thing and yeah at least I will have a matching hair cut to the baby I am literally so excited to meet her my daughter is blooming atm going to be a fantastic mother we have been dressing the nursery and it’s gorgeous!!!
Hey bet you can’t believe your at the half way line already and yeah I’m having positive thoughts about the t bit!!!
I had some awful news yesterday my dad has lung cancer which has gone to his liver and nodes in neck it’s inoperable so just treatment to keep it at bay, all he is bothering about is me but he is really not well x
It’s HAS made me sit up and think about my treatment I’m even more determined to get through this for him and my mam who sad has been carer for the last 12 years xx
I couldn’t believe that a dad and daughter would end up battling this bloody awful disease xx
I’m really angry inside that cancer could invade our family like this, dad doesn’t want to tell my daughter yet as he is worried about the extra stress with only 9 weeks to go
It makes you appreciate family is precious and we should make as many happy memories with each other xxx
Mishy so sorry to hear about your Dad. So hard for you at this time. Sending and hugs xxx
Mushy
So sorry to hear about both you and dad being treated. I’m seeing chemo nurse next week to sort start date. My mum who is 81 had colonic cancer and has been clear for 6 years! This must make you more determined to get better soon…like me as I want to be here for my mum too.xxx