July 2017

Hi ladies,
Hope you’re doing okay Tatyana and SE’s aren’t too bad.
Noticed nausea and tingling in my toes becoming a bit more pronounced/prolonged in the last week or so. Praying it doesn’t get any worse with the EC.
Dropped into the office today and saw my colleagues for the first time since my diagnosis. Was kinda weird but good to see them all.

Morning everyone.
Miss a, if you do get sickness on EC then ask for emend. My chemo ward say it’s the best thing possible for sickness and has changed the face of chemo SE’s for those who suffer nausea.

I’m feeling pretty normal following my first T. I was absolutely delighted to find out that I only had to wear the cold cap for 20 mins following the docetaxel infusion. I’m really starting to dread putting it on, although I’ll be eternally grateful that it’s been available to me.
I actually went to the loo as normal this morning, so I’m hoping there’s no constipation with T. That’s the only SE I struggled with on fec.
4 chemo down, 2 to go. Getting there. ?
Hope all of you ladies are doing well today. X

Hi feelthefear, how ya doin’? constipation is the least of my worries on T, let’s just say make sure you have some imodium in the house!
A week after my first T I’ve ended up in hospital on antibiotics for a suspected infection, possibly nothing at all but my temperature was up and they have to be cautious. Stayed in overnight, hoping to be let out this morning. Actually feeling better than I’ve felt for several days, except for not having slept, but that’s hospitals for you!
Have a nice weekend everyone!

Morning tatyana. Sorry to hear youve ended up in hospital. I’ve woke up feeling pretty normal today, but yesterday I felt horrible (high) a bit like my first fec. Thursday night was a drama when we went out to eat (have no kitchen) I came over sweating, tried to walk outside for some air and passed out at the top of the stairs. ? When I came around I vomited all over the carpet. ?
So embarrassing. My temp was 36, so didn’t ring anyone and felt fine once I was home. I won’t be leaving the house for a good few days after my next one. It really frightened me how quickly I went from feeling normal to passed out. Hopefully we’re getting over the worst of this one now. I’m definitely finding it harder than fec. I think the extra steroids haven’t helped. I hate them. X

Oh poor you! I had a similar dramatic collapse once on fec, and after that I was half scared to go anywhere or do anything in case it happened again- but it didn’t! I hope this was a one-off for you too. The T doesn’t seem great so far, does it? Still, only two more to go- that’s what I’m trying to focus on. Can’t even see a window from this ward, but I’m hoping to see a little bit of sunshine today! :partly_sunny:

Yes, the fainting has knocked my confidence. Scary isn’t it.
T definitely seems worse. Or maybe it’s having T on top of everything else we’ve had. We’re are nearly there though tatyana. Only five to six weeks and we’ll be nursing our last SE’s.
I hope you get home today and we’re both treated to a bit of sunshine. X

Eep hope you’re feeling better soon FeelTheFear and Tatyana. Hospital is never fun.
Had my first EC yesterday. Definitely noticed the immediate difference between that and the Tax/Carbo; more tiring and nausea inducing. Hoping it eases quickly, got emend at least.
Is it around day 3-5 the side effects typically peak?

Morning miss a. Congratulations on getting that first EC under your belt. On fec, I found I felt pretty normal by day five. However, I was lucky and didn’t have any sickness even during my last infusion when I forgot to take the emend.
I could of stayed in bed yesterday but forced myself into the garden. A couple of vodka and pineapples took the edge off the SE’s.
The runs have had me up since 5am today. I was in bed by 8 though, so can’t really complain.
How are you tatyana? Did you get out of hospital?

Hi, yes, hooray, just stayed in hospital one night and am now back home with antibiotics. feeling hugely better having had a good sleep in my own bed!
Miss a, on fec I found I’d start to feel better about day 5, and by 7 or 8 I’d be feeling pretty normal. The nausea was really only 3-4 days, and not even real nausea with the magic Emend, more a kind of woozy grotty feeling but no actual sickness. hang on in there, it does pass!

Hi everyone sorry haven’t been on but lost my dad on Thurs may x made a promise to him I would soldier on and gave had 1st T today fingers crossed all goes well x nearly there girls take care everyone and stay strong x

Sorry meant Thursday nursing a broken heart this round aswell as hopefully not too bad side effects xx

Morning Michelle. I’m so so sorry to hear about your dad. Losing your dad is one of the worst things at anytime, nevermind when you’re going through this.
Well done for getting through yesterday. I wish you bucket loads of fortitude. I’ll be thinking of you today and hoping that the SE’s leave you alone.
Angela xxxx

Thanks Angela, yeah I’m devastated but know that he is out of any pain, was all so quick, just determined to get through this now, so as a family we can try and move forward lots of wonderful memories which I will treasure hoping you are doing well, yeah I’m hoping SE will be kind to me this time but we are getting nearer to the finishing line now xx

Yes, this horrible episode will be over for us soon, then you can get on and enjoy your dad’s memory in peace and enjoy the new addition to the family you have coming along soon.
My dad wasn’t ill when he died at 69 last year. He had a massive aneurysm and just went within minutes, so I know how difficult it is to lose someone quickly. They told me I had cancer on his one year anniversary. My nana used to say god only gives you the rod you can carry. I’m not religious, but if there is something else out there, then it must think we are gladiators. Xxx

Mishy, I’m so sorry about your dad. He must have been so proud of your fighting spirit- maybe you inherited it from him. lots of love and support coming your way now, I hope at least the SEs won’t be too bad this time. Big hugs.

Sorry to hear your sad news Mishy 18 … my thoughts are with you at this tough time in your life… hope treatment is kind to you…love and hugs. Xx Sue

So sorry to hear about your dad Mishy. My thoughts are with you and your family. Wishing you love and strength xx

Thanks everyone for your kind words really means alot x

Thanks Annie yeah he was adamant when he found out about me that I had to get well and through this, his diagnosis came so quickly and took him within weeks, so I’m even more determined to fulfil my promise to him to beat this thing x
Say 3 not too bad so far waiting not sure how I will feel once steroid out of system had me awake most of last night :frowning: so we will see managing to eat OK, drinking plenty x hopefully the T will be kind to me!
Out of interest everyone do we need to get a flu jab and our nearest and dearest its never been mentioned but I was thinking about it last night x

Morning all,
Mishy, after my first T it was probably days 5-8 that were the hardest, nothing terrible but some fluey headaches aches and pains and a general feeling of wanting to get back under the duvet. Judging by what the lovely ladies on the May thread say, this is a pretty common pattern and the trick is to give in to it, go easy on yourself and stay under that duvet if you can. By day 9 you’ll start feeling more human. I’m fine now and had a lovely walk in the sunshine st a local nature reserve yesterday. Magic!

Meanwhile, try a salt water mouthwash 2-3 times a day to fend off the grotty mouth, and have some good moisturizer in the house in case you get sore hands.
Oh, and boxed sets!