July 2017

Hi Angela,Yes it feels good to know the next one is the last, doesn’t it! My hands are very sore, mouth a bit slimy but not mega grotty, and I’m not going to mention the runs because I don’t want to tempt fate! More to the point, I’m certain my lump has shrunk again. Yay!!!
Kimi, good luck for today!

Had my pre chemo oncology appointment and discussed my numerous side effects!  

I asked my oncologist about my lung nodule after Feelthe fear saying most are not cancer.  He said it’s probably nothing to worry about and that lots of people have them.  He doesn’t think I will have any secondaries and will be ok after all the chemo and rads.  

Feeling relieved and optimistic ?.  Roll on cycle 5 on Friday x

That’s fantastic Carole. My bc nurse called again today and said the same thing. Said they wouldn’t think twice about giving another scan if it wasn’t for the bc and it’s purely to cover the oncologist’s back…
We’ve got this bc thing in the bag. It’ll be over for us soon. Xxx

Evening ladies.
Glad I’m not the only one with the chemo brain fog- it comes on really strong when I’m tired and I end up unable to concentrate or hold a conversation.
Well done to everyone who has round 5 under their belt and good luck to those who have it coming up. Mine is coming up fast; I’m hoping this time won’t involve a hospital stay or a blood transfusion. I’m seeing my oncologist tomorrow so I’ll see what she says about it. I should get my result from the mid-point MRI as well.
I was reading up on mastectomy surgery and ended up watching a cgi video of the procedure. Made me feel queasy as hell but kind of reassured about what it involved. I’m struggling a bit with the surgery side as I’ve had no major surgery or a general anesthetic before so don’t know what to expect. I’ve requested counselling via the Christie to try and deal with it.

Missacconitum

I’ve had lots of surgery and anaesthetic. Don’t worry, they look after you. You get an injection into a cannula in your hand and the next thing you know they are waking you up.

I will second what Carole has said. The op will be absolutely fine. You’re coming around and being given a cup of tea and a biscuit before you know where are. I was in the pub within 48 hours.
I hope you’re mri results are great. Roll on no:5. Hopefully with no drama. X

Morning ladies.
Just wondering what time you inject your filgrastim? My husband usually does mine when he gets home around 6, but I’m thinking of braving it myself so I can take them around 2. I’ve found on T I can get slightly achey during the night and maybe the injections are adding to it. I’m thinking if I take them a little earlier it might help.

Kimi, how did no 5 go yesterday?

Apart from the chemical hangover, I’m doing okay so far. It’s my mam’s birthday today so I’m going to her house to cook for everyone later. We’ve decided to delay going out to celebrate until next week as I’m a little worried about the fainting drama I had 48 hrs after my first T.
Hope everyone else is doing well. X

Thanks Carol and FeelTheFear, I know it’ll be fine I’m just a bit scared of the unknown, you know?
FeelTheFear I usually do mine before bed but if you can do it yourself it may help! I probably do it much slower than a nurse would but as long as it’s done I don’t think it matters.

Missaconitum, you are so brave to watch that video, but knowledge is power! You will be ok, the worst thing about surgery is the worrying about it beforehand!
Feelthefear, I do my injections about 6pm, the nurse suggested this, because she said the aches and pains are more likely to bother you in the daytime, whereas at night you’re not trying to do stuff. Don’t know if it makes any difference really!

Hi miss a.
I think this whole journey is fear of the unknown. Honestly, you’ll feel great once the op is over. Knowing that the bc is out is quite a high. I felt ecstatic knowing it was gone, then I had a bit of a drop knowing chemo was around the corner. You’ll already have this under your belt.
Nobody likes the idea of an op, but it’s a pretty straight forward procedure and you’re in very good hands. Once you get onto the ward, the fear will lift and you’ll just want to get on with it. The nurses are very good at taking your mind off any anxiety.

Plan a lovely treat to look forward to when you’re ready to get out and about. We went away for a night the weekend following surgery. Whatever anyone says, it’s only natural to feel anxiety. You really don’t need to be frightened though. X

Since getting up this morning, I’m already having second thoughts about doing the injections myself, and given what your nurse says tatyana I think I’ll just wait until 6.
See miss a, you’re braver than most of, doing them yourself is great. X

Hey everyone hope you all well I usually do my injections at around 7 my sister in law does them as I’m a bit of a wimp when it comes to needles Angela good to hear your not doing too bad and hope you have a great evening with the family x Kimi hope you ok after chemo to and miss a I have to agree with Angela found surgery much easier than chemo and you’ve nearly got that out of the way onwards and upwards I say the relief you feel when you know they have taken it out is great for me chemo was the thing I dreaded! I’m hoping number 5 is OK this time around and my bloods don’t play up again, went to a counselling session at maggies today they arranged it for me as I have had alot going on lately it was so good to able to tell someone how I really feel without feeling guilty think I needed to do it helped alot x I strongly recommend if anyone has had a bad time dealing with everything that they give it a go, they have also recommended the moving forward course for when treatment is over which I think I might go on I will see how I feel x bye for now ladies :slight_smile:

Oh forgot to mention had flu jab today onc said as close to next chemo as possible so had it today, feel totally fine really don’t want to get the flu have any of you had yours yet x

Hi Girls. I’m not too bad, thank you, usual chemo fog, wobbly & hot. I was given a 20% reduction on ‘T’ strength this time, so I live in hope it’ll be better this time. Steroids finished today, so hope I don’t feel too bad over next few days. Have been given an arsenal of medicines, but apart from a couple of paracetamol at bedtime & a Clarityn in the morning not taken anything YET!! I started doing my injections myself on round 4, I actually find it less painful than my husband doing it, my nurses say to do it around 10pm, & then you can sleep through a few hours of it. Was told yesterday to do warm salt water mouthwashes 3 x a day, so hoping not to get thrush this time, but have been given the mouth gel & Nystatin should I need it. I had a sizeable lumpectomy prior to my chemo & like those of you who’ve already had it, it wasn’t bad at all & great to have “the alien” removed, didn’t even need to take a painkiller, so good luck with ‘op, GA is brilliant, jab in hand, wake up it’s all done, tea & toast & youve done the chemo already. I too have a stage 3 aggressive BC & had 1/2 lymphnode involvment, hence chemo, I asked Oncologist on Monday about scans & she said I didn’t need them because they knew they removed cancer with good margins, but am confused about lymph nodes & they only took 2, do they know the chemo sorts that & what about others, question for next time maybe. I suppose we have to trust their expertise, but it doesn’t stop you thinking/worrying does it? Good luck this week everyone, we are so nearly there. Xx

Hi all! Mishy, so glad that you had the Maggie’s session, sounds just what you needed after all you’ve been thru. Hope your next chemo goes ok. Kimi good luck with the side effects this time around!
Here I am back in the hospital with a suspected infection, exactly the same point in the cycle as last time. Raised temperature, generally feeling crushed. Had all the tests, bloods are fine, so it’s just back on the antibiotics. Not much sleep as they will insist on waking you to do blood pressure every time you drop off! But feeling more human this morning. Would really like NOT to get the same thing after docetaxel no,6 in a couple of weeks.

Hey Tatanya sorry your back in hospital thats what happened to me on day 10 raised temp infection etc what day are you on your better off in there though even though we get no sleep when they check your blood pressure and stuff and the food blah!! doxetaxol or should I say dozytaxol def is worse than fec I know there is no sickness but this one wipes you out I’m so tired all the time feel like I have no energy to do anything

I agree, Mishy, it’s a pig. I’m on day 8 so much the same as you, the worst of it seems to hit around day 7. They’re going to give me a blood transfusion because I am a bit anaemic, so I’m hoping that will perk me up a bit. If my blood’s useless I may as well have some of someone else’s, with many thanks to the anonymous donor!

Sorry to hear your still in hospital Tatanya I think we have been unlucky with our chemo out of 4 treatments I’ve have had 3 with hospital admissions hoping Mons treatment doesn’t as my Grandaughter is due a week on Wed but daughter is getting cramp and lots of Branxton hicks so she could literally come any time do not want to miss the birth!!! At least though you are getting the right treatment in there I know what you mean about the TV though the over bed ones are ridiculous in price what rather be bored!! Hope everyone else is OK very quiet so you must be :slight_smile:

Hello ladies.
I’m sitting in the garden in the drizzle drinking very posh wine (blew some nectar points) while my husband works on the shed.
Sorry to hear you’re back in hospital tatyana. When i hear about everyone else having problems, I almost feel guilty saying things aren’t too bad for me.
I did feel rotten yesterday, not poorly, just rubbish. My taste buds have completely deserted me, my throat and mouth are achey ( like last time) and my head is on and off done in/wiped out.
We’ve now got builders in place to start the renovation work (next week) so I think that has spurred me on a bit. I’ve spent the past two days looking at kitchens and appliances. It’s felt great to be doing something normal.
I agree with you Michelle that T is definitely worse than fec. I just want it all to be over now. I’ve seriously had enough.
I really hope when the baby arrives when you’re on a good day. If not, don’t stress too much as you’ll have many years to enjoy her.
I hope everyone else is doing okay. I’m going to get the take away menus out now and try to decide what (if anything) will actually taste of food when it arrives.
Roll on getting a kitchen so I can prepare my own food with ridiculous amounts of salt, garlic and chilli. Xxx

Feelthefear, have another glass on me! It’d be wasted on me at the moment, I can’t even cope with non-decaff coffee! I’m watching the drizzle from my hospital bed (cue violins), feeling lucky because this time I got the bed by the window! Stuck here at least till Monday as they did find an infection and are trying to make sure they zap it. I don’t actually feel poorly, no more than usual tiredness for T day 9. In a way I’m feeling happier now that they’ve actually found a bug, whereas last time this happened they never really found a cause. Bizarrely, because they’ve found a cause this time, my mind is no longer assuming that it is bound to happen again on the next round of T.

Not sure if that makes sense, but hey, I can blame it on chemo brain!

Mishy, here’s hoping that little grandchild chooses a good day to arrive. But whenever he/she puts in an appearance, I’ve a feeling you are going to get one heck of a morale boost!

Hugs to all!