Thank you ms Merton. I’m on cycle 5 of 6 and second Docetaxel. Been in hospital since Tuesday with neutropenic sepsis, which is now just an infection that won’t go away. It’s my bad chemo week and I’m normally strong but they’ve been saying I can go home tomorrow all week and I thought I’d be home for weekend. Then OH doesn’t turn up to visit until 6.30. (Visiting 11 to 8).
He wouldn’t like being kept in a room with no one to talk to feeling like crap.
Carole feeling for you atm hope they get your nuets sorted and that infection treated xx big hugs you have every right to feel like that it’s awful but hopefully you’ll be home soon x
Ahh Carole. I really feel for you and completely understand why you had a few tears. There’s not much worse than being stuck in hospital, especially when you’re being told you can go home only to find yourself in again night after night.
It’s hard to see the light at the end of the tunnel when you’re having such bad luck.
This will be over for you soon. Hang in there. I really hope you get some good news today. Sending you a big hug.
Fairy, I hope things are looking up for you and they allow you to go home today.
Xxx
I forgot to add; Michelle good luck with your oncology appointment today. Here’s hoping for a really good outcome. X
Hi everyone quick update, going to have Braxane still every 3 weeks two doses starting this week don’t know what day yet waiting for phone call, once said would have cancelled treatment and prescribed herceptin if I had been hormone positive but as i was triple negative diagnosis it only responds to chemo and he doesn’t really want to cancel out two treatments x so back on the train with some new SE to look forward to but feeling relieved I can see treatment through as I do not want to increase my chances of a recurrence x
Sorry I meant abraxane x
That’s good news Michelle. I’m sure you’ll feel more confident knowing you’ve been able to see treatment through to the end. Hopefully the SEs won’t be too bad, but whatever it throws at you, you’ll cope. Xx
Yeah I would much rather see it through I was worried if I didn’t it would come back TN has a better chance with full treatment so I’m really pleased also needed to know that there was something I could have in future if needed didn’t want to think there was nothing out there for me how is everyone feeling today hope you are all well and you ladies are home from hospital xxx
I’m stage 3a Michelle so understand the fear of it coming back. We have to do all we can now to kick its ass.
I’m good. My husband is off this week to work on the house, then off to a caravan for a few days from Thursday to Sunday. I’m taking our 3 year old grandson. He’s a boy knight ? so he’ll keep us on our toes for a few days. X
I’ve now got a date for surgery, it’s 23 Nov, 6 weeks after my last chemo. I guess that means that even if the chemo (13 Oct) gets delayed, they won’t need to postpone the op, so that’s good.
Carole, all the best, I do hope you get home today, you must be so fed up. Hugs!
Still here. Not seen dr yet
Great you’ve got your date tatyana. Not too long off, but enough to give you a small break following infusion. You’ll definitely be back on your feet in time for Christmas.
I can’t believe you haven’t seen a dr yet Carole. Why on earth not. I’m sure you’re as sick as a chip. I would be. Hoping you get some info soon. ???
Xxx
Chemo this morning! Here’s hoping the SE are not too bad ?
Feel the fear, I asked at 3.00 when I’d see the dr and they insisted I’d seen one I’d never met in the morning. Eventually they admitted I was right. Put me back on IV ABX because temp spiked to 38c. Still can’t go until I’ve 24 hours below 37.5.
Mishy, good luck with your new chemo, hope the SEs are manageable!
Carole, poor you, I’m sending out chilly thought waves to make your temperature drop.
I’m getting nervous about my last chemo on Fri, convinced my bloods won’t make the grade, or else I’ll get another temperature spike, having ended up in hospital after my first two lots of docetaxel I’m convinced the same thing will happen again. So close to the finish line, I can’t believe it will go smoothly.
And yes, I know Friday 13th is just a silly superstition!
But hey, the good news is: Ladies, we can now officially eat runny eggs! But only if they have the lion stamp. I’ve got 8 eggs in the cupboard and not a single lion between them. I’m going to buy some more, with a whole pack of lions, and use the other ones up making cakes. Hubby has no objection!
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Hey everyone back home from treatment no gsf injections! Drug had to be ordered on the day after all the health checks as it is too expensive to waste! That’s what I was told today!! A pretty meds done IV no steroids to take at home ? had a big old dose today alone give with Piriton anti sickness rinitadine and paracetamol! Nurse said not usually how they do it so new to them! Ben told SE are achey joints nausea ? tingling has and feet watch for temp and infection etc may get sore mouth got no take home things though so hope I’m OK x so far just feeling tired but over the moon I only now have one more to go! A little premature considering I’ve still got to get over SE from this one but just pleased the end is near Carol bet you feeling fed up I hope you can get home soon but at the same time you are safer in hospital x
Tatanya fingers crossed for you for Friday last one eh just think in just over 3 weeks you don’t have to do it anymore and your food will taste lovely
Angela how you doing not long for you now, I know one thing this hospital business is flaming expensive what with costs etc think I need to ask about some kind if hospital transport for the radiotherapy I haven’t got anyone to take me not for 3 weeks daily any way, I usually get a taxi if I can’t get anyone but not everyday!!!
Bye for now going to have a lie down for a little while x
Today I had round 5 too 
so glad that the next one is my last as well!
Onc arranged for me to have 10 days of injections rather than 7 after the last round. Fingers crossed they work and I will avoid another infection.
Sending positive vibes and get well wishes to all. We’re getting there ladies!
I know I rang my once secretary I. Sure they have made a mistake regarding the injections I have always had them and was neufropenic last time so think I should have had them going to ring her back again tomorrow I don’t want to take any chances also the ward hadn’t booked my next one in so have had to chase that up too just aswell I’m on the ball really treatment some people wouldn’t question I found it strange I had no stuff to bring home have got plenty of time metrocliramide in case I feel sick but no mouth washes nothing! I think there has been a cock up reading take home meds with new drug being introduced so I’m double checking for peace of mind hahaha isn’t it a great feeling knowing we only have one more to go!
Onc rang no need for injections this time with this new drug he explained that I still need to take temp etc but only very high doses do u need the injections as this drug is usually used for me static BC or Secondary with spread so he has lowered my dose had a bad night with sleep sweats but feeling relatively well today obviously the high dose of ice steroids will be responsible so expecting to crash on next couple of days!
Carol hope you are getting closer to getting home, Missa how u feeling today you should be same as me last one on the 1st Nov! Little bit behind the others but we can all still support each other as some of you a free moving on to surgery next and some of us rads xx