Keep your chin up Carole yeah think I managed to put on a little weight too so don’t worry girls I think it’s the lessened activity and eating more carbs maybe enjoy your daughters meal tonight Angela xx hopefully we are all near to the end of this including me bring in the rads I say whoop whoop!
hi there, i feel that the t part has been not so severe but more prolonged, im still feelin very rough even now with a sicky feelin tired and weak i just cant seem to get my strength back or eat much which isnt helping…will it ever end, i was usually over the worse by now on fec xx
my last dose isnt until 27th nov ?
Gosh, fairy, that does sound like a long time! Hang on in there, maybe in a couple more weeks you’ll start to see the light at the end of the tunnel. I started my chemo in June and it seemed like October was many miles away, but now I’m nearly there. I hope you manage to bounce back from the SEs soon.
Hiya July ladies been for a visit with my little Grandaughter she’s sooo beautiful I can’t describe! Can’t have cuddles as even though didn’t get much chemo on me I still had some so I can only gaze from afar for this next week!!!
Hope you are all doing well today so happy atm but still need to know what’s happening for my treatment roll on bloody Monday so I can get some answers Angela you know what I mean when I say I want full lot!!! It’s like I want to make sure I folly this through x
There is nothing like a new baby to kick you up the jacksie and get on with it and baby sit and make lots of lovely memories 
Morning everyone. Hope you ladies are doing okay.
Fairy, November may seem like a long way off, but you’ll be long done with chemo before Xmas and we all know how quickly that comes around.
Carole, did you make it out of hospital?
Miss a, I hope you bloods are on the way back up and you’re enjoying this break before next week’s chemo.
Tatyana, i definitely think it’s the T to blame for feeling so wiped out. I think this is why they keep it till last. I haven’t had any infections, but still feel the urge to just lock myself away for an hour every afternoon. I can be out enjoying myself, then feel like all I want to do it lie in a dark room. Not like me at all, I hate being in bed through the day. My emotions are all over the place and slightest thing makes me cry; again not like me at all.
Not sure whether this is the drugs or a symptom of the trauma we’re going through.
Michelle, what a shame you can’t cuddle Ella. I thought it was fine as long as you don’t change nappies or kiss her on the lips etc? I’m sure you’re enjoying just gazing at her. Before my two grandchildren were born, it had been so long since mine were little I’d forgotten how I could spend many an hour just happily staring at them sleep.
Kimi, I hope you’re doing okay too. I share your fear of the nodes. It was in 7 of 26 they removed from me. I just try not to think about it. Pointless worry.
Here’s hoping we all have a good weekend. The builders had promised they were starting our work today but it’s been put back until the 16th. At least it means another week of being able to have a shower I suppose. Im getting used to having the find even the smallest bright side to everything. ?
Morning everyone feels strange not waking up to real SE and feeling disappointed for not having them! Getting a false sense of security here! At least I can enjoy my weekend before Monday app syching myself up for it its the fear of the what next I think for me going out for coffee with some friends this morning, then going to see the baby this afternoon. Carole hope you managed to get home it’s terrible trying to sleep in hospital Tatanya feeling worn out all the time is rubbish I’m still feeling it even though technically I only had a small amount of T on Monday x Fairy due to my recent hiccup I may be doing my chemo till end Nov too but at least over by Xmas the rads are meant to be a breeze in comparison so we should still enjoy our Xmas angel yeah def know what you mean about being pleased with things that to others are in significant we appreciate the little things in life def now! Loving gazing for now too xxx
Hi ladies
No I didn’t escape yesterday. Neutrophils were 7.7 when I came in on Tuesday, sharp drop to 1.9 on Wednesday and dropped again yesterday to 0.5, so I’m now neutropenic sepsis. They have kept me on co amoxiclave but my understanding is that I should be on Tazocin now. I’m still on emergency Ward so they are not specialist in NS or PICC lines. My PICC is very sluggish and not working as it did.
I’m waiting for a side room on oncology/haematology Ward. Not seen dr yet today and waiting on bloods again. Temp is 37.9 which they say is normal but it’s high for me. I still feel a bit rough.
Carole, sorry to hear you are still stuck in there. I hope they will soon get the antibiotics sorted properly. It will be better if you can see an oncologist, the A&E people are great but they are not specialists. Hope you feel better soon.
Hello Carole sorry to hear you are Neutropenic hospital is definitely the best place for you atm they will look after you xx you will need to get your bloods right and get rid of that infection I was really taken back when I got it after my 1st T it must affect some of us more than others xx
I’m now on Tazocin. PICC redressed and working a little better. Get my bloods done in the morning and see where we are then.
i had thp on 25/9 and landed up in hos on wed and still here until monday wit severe diarhea and a temp and fast heartrate… anyone else have these side effects xx
Sorry what is thp?
Sorry to hear your poorly too fairy I would say have had some palpations when I walk too fast or too far not continously and not a problem during hospital stay just since my episode on Monday so I will be telling onc, not sure what Thp is is that your regime I do hope you are feeling better soon you are better off in hospital though so they can Mon SE take hope everyone is feeling better today, I think I need to slow it diw felt terrible last night had palpitations was getting quite worried but they settled I thinkink if it happens today I will get it checked out x I think that the problem when you feel a little better you do more then you end up feeling lousy can’t stop sneezing today think I might have a head cold starting blah 
it’s that time of the year when we need to be on our guard!!
thp is docetaxal hercepin perjetta
Gosh that sounds an awful lot to cope with. I’m in hospital and struggling with just the Docetaxel. Hope you’re better soon x
Wow fairy thats alot x bless you xx
Hi Girls. Another eventful week eh? I do hope it improves for you all, especially Fairy & Carole, you must be fed up with hospital food by now, that & the fact they seem to wake you up when it’s feels as though you’ve just managed to get to sleep. I’m with Tatyana it is def taking more days to feel human, but think you’re right it’s the cumulative effect probably, I’ve got legs made of jelly, tingly fingers & tongue, hoarse throat & not sure if it’s a cold or not? Hope you’re allowed a cuddle with beautiful Ella this week Michelle, you must be itching bless you. How’s that shower going Feelthefear, luxury I would think, don’t envy you builders in, we just had gutters replaced & all the banging got on my nerves, & thank you for reassuring me about nodes, but once a worrier & all that!! Let’s hope this week sees an improvement for us all, & a plan for you Michelle. Xx
It really has been an eventful week in many ways for us hasn’t it x hope you girls in hospital home and well soon hospital food ugh! With our taste buds need all the help we can get feel really silly turns out my palpations were due to overdoing it a bit along with a not so healthy sprinkling of anxiety! Think I have just been totally overwhelmed by every that has been going on lately and of course I hate not being in contrilwkf what is happening atm with treatment I have a real stubborn streak in me a bit like a dog with a bone! When I get something in my head thats it have been fuming with myself for being allergic to the Doxycrap hell! Stupid isn’t it but hey ho I will definitely know what’s what this time tomorrow little Ella is coming on great looking forward to official Granma cuddle duties this week and yes looks like the T at least let’s your hair have a break too if any of you worried about that side of it now appears to be a covering of this fuzzy kind of kiwi fruit hair haha!! For how long though is the question!
I’ve had a crap day in my side room hardly seen anyone all day. Hate Sundays in hospital - nothing happens. Nobody turned up to visit until 6.30 at same time as two nurses come in to treat me. Then I said something about being shut up in here for 6 days and seen nobody all day and my daughter said “don’t be crabby or you won’t get any visitors” which made me cry in front of everyone. Been so depressed and close to tears all day.