Mishy, your poor hair, how disappointing! Great that at least you might have dodged the nausea. Hang on in there!
I know it came back too soon! At least I know it’s coming back I suppose I had quit a covering of the fluffy stuff too never mind I will eagerly wait for it’s return might be trying some of the tips we haven been given!!!
Hi ladies, how are you today?
Yeah some of those hair tips are a bit wacky but desperate times eh?
Examined my armpits the other day- I’ve not shaved since the start of chemo and I’ve only just realised that I have loads of blonde fuzz rather than the usual coarse armpit hair. Not sure I want that to go back to normal ?
Struggling with nausea as per the last time but on the whole I’m doing okay. Resting and reading lots.
Definitely noticing the hot flushes from the Zoladex have started to ease. Only a few per day now rather than the 10+ I was getting once I’d had the booster shot.
Oh and one little exciting bit of news that really cheered me up yesterday- my sister told me that she was pregnant ? this will be her second. I’m pleased as punch although it is very early days yet.
Missaconitum, wonderful news about your future niece or nephew. What a great thing to look forward to!
Evening ladies.
Kimi, I’ve always fancied a weekend in wales but we’ve never gotten around to it. My grandad was welsh and I’d love to see where the family are from. It’s lovely to get away while we’re going through this, but it does knacker you.
It’s rubbish to find out that you might need more treatment. Here’s hoping you don’t, but you’ll cope either way.
Michelle, gutted for you that you’ve lost your hair again. ? at least when it grows back through it’ll be for good.
I’m with miss a when it comes to arm pit hair returning, or any body hair really. I’d be happy Just to keep my head hair. I’ve been enjoying not having to shave. Ultra quick showers as well.
Hope the film is good tatyana. Let us know if it’s worth watching.
Had my initial radio appointment yesterday. It was over in a flash. She just explained side effects really. Also that it shouldn’t be a problem for me as fec-T is the harshest chemo apparently and after that Radio is easy in comparison. ? I didn’t know that. I thought there were even harsher regimes. No wonder our nails are falling off.
They must be busy as I’ve been told it’ll be a few weeks before my scan appointment comes through.
Early night for me. Looking forward to a very long drive to the kitchen showroom in the morning, then a lovely day in York.
Have a good weekend everyone. X
I miss my body hair. I think it makes it hard for your body to regulate temperature and I seem to feel permanently clammy. I’d like my nose hair to return along with eyelashes and eyebrows. The only part I don’t want back is armpit hair because my armpit us still numb from surgery, so difficult to shave.
Nice to hear from you Carole. Hope everything is going well for you.
I agree about lashes and brows. Although I haven’t lost a lot of eye lashes and I had my brows bladed so you can’t tell I haven’t got a lot left.
Hope you enjoy the weekend. X
Good to know about rads being easy compared to the fec t ? I didn’t know that either seems we have had quite a battering do you know when you will be starting your rada then Angela
Missa lovely news about your sister baby!! It’s good to get some good news like that! I miss my eyebrows think I have about 5 on what one! Not missing armpit hair and legs oh and nunnie hair! "but it is hard trying to keep warm when your baldy!!! How you doing Carole hope you are well xx
I’m counting down the days till I feel human again!! Day 4 for me I’m really impatient want it to be day 21 so I can say bye to it!! Well that’s apart from the dodgy nails etc ?
I didn’t get a date Michelle. I’m really hoping not too long. The doc is lovely. She has a surname that can be used as a first name for either sex. Maybe your appointment on Monday will be with her?
Miss a, forgot to add congratulations. There’s new life springing up everywhere on our forum. It’s lovely.
X
P.s. for anyone thinking of joining the gym to lesson the risk of lymphedema; I was lurking on the may starters the other day and noticed Heather talking about gym referrals.
I planned on joining after radio any way so thought it was worth ringing my gp to find out if this was something they could actually do. I was surprised to find out that, yes they will pay for the first three months of your membership.
Works out quite a saving and will give me a few months to see if I stick to it without having to set up a direct debit.
Hi ladies
I didn’t know you could do anything specific to lessen lymphedema risk, other than be careful with things. Didn’t know about gym membership,
I’m still feeling rubbish on day 9 of final Tax. Up in the night with Tax trots and temp up AGAIN. Fed up with temp keeping going up, mouth still awful and can’t eat and just generally feeling tired and ill with persistent cough. I haven’t felt well since cycle 5 and had enough of horrible chemo now.
I keep wondering if neuropathy is a little better but may be just wishful thinking.
Sorry for the moan. Just can’t wait to get beyond chemo effects x
Carole and Mishy battling with se’s, hugs, yes it does drag on so. Don’t despair, not long now. I’m 3 weeks post last chemo and my taste buds and guts are almost normal, hand and foot problems hugely better almost gone, fingertips and nails still v sensitive but no worse. There’s hope!!
New thing: my legs ache, especially the thighs. Can’t crouch down to tie shoelaces or look at the bottom shelf in the supermarket. Anyone else got this? I’ve been trying to go for a walk most days, managed 45 minutes yesterday, then felt like an old crock!
Feeling a bit depressed because by the time I’ve recovered my strength, it will be time for surgery and back to square one fitness wise. So be it.
I also vote for eyebrows, lashes and nose hair. Sick of eyes and nose streaming whenever I step outside, and getting soap in my eyes in the shower!
Hi Carole I’m feeling the same as you fed up with chemo now slimy mouth ugh! And he rotten aches but no temp spiking Angela explained before at her rads app she was told the good old fec t is the harshest chemo regime going! It’s no wonder we are all feeling blah I kind of have cheated slighty though after the fec I have 1 T then 2 abraxane which is relatively the same as T just not made up with the solvents! Which is what I’m probably allergic to as I haven’t had a reaction on it!! Had the trots last night settled down this morning laying off the veg today I think!!
I had a temp spike last time but didn’t need to go in hospital I’m keeping everything crossed I don’t on this one I’m day 4 so a few days behind you and Missa is a day in front of me we are the last ones on our thread x
Ah didn’t know we were last ones. Funny because I started this group for July but actually started chemo on 30 June. Just felt like I’d missed the June boat. I’m two weeks running late due to two hospital admissions.
Tatyana I’m glad things are improving for you, especially the hands and feet. I dread being left with permanent peripheral neuropathy.
My legs have been weak for a while and getting worse for last month because I’m hardly getting out. I went to a fabric shop in town a couple of weeks ago and squatted down to look at bottom shelf ribbons and just fell backwards. No leg muscles and balance not great either. I ignored the fact that loads of people were looking at me and struggled back to my feet. ?
Carole have have a bit to Neuropathy too om sure it improves and after chemo you could get prescribed some meds called Gabapentin which treat it,
Im slightly behind too as I had a delay due to my allergy to the T on 5th infusion so had to start this new drug x2 sessions x
Carole, I also started chemo on 30 June but felt I was too late for the June thread! I was lucky enough to have no delays despite three short hospital stays, so I finished 3 weeks ago.
I don’t know whether to put my weak achy legs down to neuropathy or just muscle fatigue. If it’s any consolation,a friend of mine had chemo a couple of years ago and had very bad neuropathy, at one stage she could neither walk nor drive, but it started improving soon after she finished chemo and got better week by week. No long-term effects at all. She perhaps doesn’t have the stamina that she used to have, but puts that down to normal ageing process!
Know the feeling Michelle, I’m feeling rough today but trying to battle through. Mouth tastes vile 
Have persuaded all my friends and neighbours to order samples of the keratin fibres that I’ve been using to cover my bald patch today. Should keep me stocked up for a few months ?
Haha love the thinking there Missa soups on so something to warm the cockles later got strictly and x factor tonight although I’m sure about x factor this year it’s getting very predictable now and don’t have a stand out favour this year!
Lovely village bonfire last night, mulled wine, amazing fireworks. Beautiful day today.
Cut my finger, extremely small clean nick with kitchen knife, so I disinfected it, put a plaster on, then had a complete meltdown. Fed up that I can’t do normal things, can’t risk gardening because still have infection risk and anyway fingers are too painful and skin is only just settling down and I don’t want to make it flare up again. Can’t do much around house for same reasons. Can’t swim, might be able to risk swimming next week but then the week after that is surgery, and who knows how long after that before I’ll be able to swim/garden or generally behave like a normal non-neurotic person?!! And how normal will the swimming be, with only one boob and a plastic falsie that may or may not stay put?
Well, that was me, for half an hour. Then lovely hubby drove me to a local nature reserve for tea and scones and a stroll around the lake watching the ? ?. Feeling much better now. I know it’s all still there, and I’ll probably get worse as surgery day approaches, but there you go.
Any of you ladies had surgery first, and can give me any tips on recovery times, how to handle it all, etc? I’m having right side Mx and no reconstruction.
Best wishes to everyone and hope the sun is shining on you. Thanks for listening!