Tatanya I had surgery 1st but mine was right sided WLE and SNB (with some nodes removed as positive) so I’m not sure I can be of any help to you as the Mx is a bigger op, I know my recovery was very good had a few days of feeling rubbish then OK after that nurse came out for a few days to check the wounds and then I had to do exercises which are given to you to do daily x 3times per day, a very pillow is helpful to protect surgery side in bed keeping hydrated and well nourished, it might be worth preparing some meals and freezing them in advance help with shopping housework etc if anyone can offer x
Im getting sick of not being able to do normal things too my hands are too sore to garden even if I could this infec5risk thing really gets to me, and having to be extra careful! Sounds like you had a lovely time last night and your scone and little outing sounds lovely, Tatanya how long after a last chemo are we at risk of infection and side effects how long do they last om only day 5!!
Hi ladies
I’m totally with you on being fed up with not doing normal things. I couldn’t stop gardening but try to wear gloves but they get in the way. Gardening is something I will always have to be careful with because of lymphedema risk.
I’m avoiding supermarket shopping and anyway crowded like pubs because of infection risk, struggling to walk with dogs, avoiding loads of foods and never seem to be able to see grandkids because they’ve always got a cold or something.
At home I’m too weedy that open bottles and can’t do lots because of neuropathy.
I am trying to sew four advent calendars for the grandkids but with blurry vision and sore numb fingers it slows me up a lot. I think so much has creeped up on us over the chemo period and we’ve got used to a sort of semi disabled state.
Hello Ladies.
Been away this weekend at a wedding, it was lovely, if not knackering, but nonetheless lovely. Have any of you ever been to a wedding where you have the singing waiters? It was so good, all the guests joined in and we sung our socks off!
Mishy, I’m sorry your hair is coming out again, that’s a bit tough, but I suppose at least we know it doesn’t take long to start growing once the treatment is done, I’m still considering the hanging upside down thing!! Also, hope you’re starting to feel a bit better, good luck with RT assessment tomorrow, I’ve done mine & it was fine, apart from telling me about possibility of more surgery.
Angela, how was Murder on the Orient Express, quite fancy seeing that. Hope your finger is ok, I know what you mean about meltdowns, it doesn’t take much does it, scones & ducks sound good medicine. I didn’t have mx, so don’t know how it will be for you, but I did have quite an extensive lumpectomy & I’ve got to say I had no pain, took a Naproxen night of surgery because I was told to, but never took anymore. Hopefully you’ll be fine, but definitely take a pillow in car for journey home, seatbelts get in the way, and I slept with a cushion just for comfort, hope all goes well for you.
How are are you doing Carole? Hopefully starting to feel a it better now, like you still coughing, starting to worry me now, but hopefully just another SE. The squatting down is awful isn’t it? Can’t tell you how many times I’ve fallen because there’s no strength in my legs,I’ve definitely been give someone else’s & I think they must have been about 90!
Feelthefear, Wales is worth a visit, we were very friendly near Abergavenny, never been to Wales before, next time I’d like to go to the seaside around Pembrokeshire, nota holiday without the sea for me. I think now you’ve found out we’ve all done the harshest chemo, I think we all deserve an even bigger pat on the back, it has been the toughest thing I’ve ever done I must say. Good luck with kitchen shopping, I did it a couple of years ago, lots of decisions, but fun. Will you visit Betty’s tearoom, I love a fat rascal!
Missa, congratulations on your Sisters news, that’s lovely for you and definitely something to look forward to. Hope you’re feeling better now as well, and it won’t be long before you can get in your garden. Love the fact you’ve got your keratin samples organised, well done.
I’m back to work tomorrow after two weeks off, I’m still tired, but like the normality it brings, got to start RT week after and hoping to go into work after I’ve had treatment, it remains to be seen!!
Hope improvements all round for everyone this week, look forward to your posts.
Morning ladies.
Tatyana, I know how you feel. I’m absolutely sick of not feeling normal. I’ve had a cold for two weeks and I’m terrified it’s going to turn into something worse. Nose is streaming and cough is getting worse. Everyone around me has it too. Every time I think it’s clearing up, and comes back even worse.
Heavy legs as well. Walking to the shop is like pushing an elephant up the stairs. I’m 43 and feel like an old lady.
On the bright side: I had mastectomy and full lymph clearance on may 5. We went to Majorca for five days mid June and I swam every day. My bc nurse gave me a swimming prosthesis and I bought a post surgery swimming costume from m and s for £25.
Everything stayed in place and nobody would have been able to tell I only had one boob.
I think you’ll be surprised at how quickly you recover following the op. I was having a pub lunch within 48 hours. I spent a fortune on bits and bobs people advised me to buy, but the only things that I really needed were a v shaped pillow for sleeping, button down pjs and button down shirts and a drain bag. I got mine from drain dollies.
Kimi. The wedding sounds lovely. Singing waiters sounds like a hoot; brilliant. I do love a wedding.
No time in York for Betty’s tea room. A few drinks and supper was about it. It was just nice to get out of Sunderland for a bit. Absolutely loving how my kitchen’s going to look though. They’re even painting it teal for me. ? my husband says he’s really hoping my decision isn’t down to chemo brain and I regret it when the SEs have worn off. ?
Carole and miss a, i hope the SEs wear off for you this week. My taste buds came back last week, but thanks to this cold they’ve deserted me again. ?
Someone should give us a break,
for goodness sake!
Michelle, hope everything goes well for you today. If it’s anything like my appointment, you’ll be straight in and out with no start date and no further forward really. ? x
Morning ladies Angela I’ve a feeling my meeting will be just like that too I will keep you posted, it’s Rotten that you have had the cold that long did it start just after your chemo ended, I’ve managed to dodge them so far fingers crossed definitely know how you all feel I also feel like an old lady trapped in the body of a 46 year old thus chemo has really aged me
I struggle walking about long distance too and stairs everything seems to take double the effort these days
The wedding sounded lovely just what you needed probably so giotto got waiters sounds fab
Missa hope you are coping with your SE too I’m finding the pains in this last one hard I even have shooting nerve type pains in my inner ears and my noony sorry that’s probably too much information but I liter have the pains everywhere has anyone else had this
Well bye for now ladies oh and Angela loving the teal kitchen bye the way ?
Mishy
Yes I’ve had shooting nerve pains in my ears too x
Hey everyone had my rads meeting this morning very short meeting like you said Angela, but I know my treatment plan is scan, then a couple of weeks to wait for plan to be made for 4 weeks worth of rads on breast and under arm, Kimi like you was also told today that as I didn’t get a full node clearance in the SNB that without rads under arm the probs would have done clearance but she is happy to do the rads as out of the 6 removed only one had cancer I asked if that would be enough and she explained yes more than enough some may even say over treatment but I don’t want to leave any stone unturned!!! I am having 15 regular sessions plus 5 boosters in total with a weekend off!
was hoping to be finished by Xmas but unlikely now with the 4 weeks! The doc said it depends on date of scan, the sooner I get that then the wheels can be put in motion and crack on with!!
Tatyana, so glad your appointment went well and you got a lot of questions answered. ?love shi xx
Tatanya glad your app went well you sound really positive about it now it’s good you got a heads up from Angela and the ladies from may really the op5its better to hear it from someone who has actually been through the same good to hear about the swimming!
Was really positive about my rads app everything was explained clearly and although I’ve been told il be very tired it’s still easier than the chemo so il take that!!!
Good point about the Xmas thing too I will probably enjoy it more of I’m not tired and a plus is finally getting to ring that bell6will be a good way to welcome 2018!!
Angela my rads doc was a woman HT very nice lady explained everything in layman’s terms
Hi ladies, how are you all?
Kimi, singing waiters sound brilliant! Glad you enjoyed the wedding.
FeelTheFear hope your cold has cleared up now?
Tatyana, sounds like you’re well prepared for your surgery! Are you having mx without immediate reconstruction presumably? I know what you mean about the tiredness! I don’t think I’ve slept so much in my life (sleeping tablets have been my saviour)
Carole I’ve been using marigolds in the garden, not as clunky as ‘proper’ gardening gloves but still offers protection.
How are you coping with your SE’s Michelle?
Had my surgical consult today, surgery scheduled for the 6th December. Trying to figure out what to do regarding reconstruction as radiotherapy will affect the outcome. Lots to think about before my surgery date!
Still a bit nauseous and tired but the fact that this is the last time makes it much easier to deal with.
Hiya Missa SE are not you bad really painful at night the neuropathy the aches are dulling down now but neuropathy not letting up escaped the nausea and bad stomach the tiredness is definitely creeping up now but knowing it’s the last time I’m happy to deal with it seems stranfmge5kbiwing that I won’t be having it in 2 weeks it’s became something I dread and expect for last 5 months!! Wow that’s a long time isn’t it!! Just my rads to go after this probably starting them in around 4/5 weeks got to have scan planning meeting etc had initial meet with RT doc so know how many I’m having etc!!
Missa when do you think you will be OK to go out and about doing normal stuff it’s a hard one to judge I’ve heard your immune system doesn’t fully recover for months aswell as the fatigue staying with you for a long time apart from my visit to the hospital yesterday haven’t been anywhere yet! Was told to avoid anywhere with crowds for a couple of weeks as no injections this time but ingoing a bit stir crazy I feel quite isolated I know I should be patient but it’s doing my head on now!
Morning ladies.
Miss a, good that you have a surgery date. I wish I had a date for radio. Really hoping it’s before xmas.
Tatyana, it’s nice that Your softie managed to bring back good memories of Costa Rica. Maybe it’s a sign, reminding you of the good times you’ve had and that there are others to come. ?
Kimi, I hope work isn’t taking it out of you too much. I had to give up work a cpl of years ago once my disabled son wasn’t in full time college anymore. I miss it. I think it would be a welcome distraction at the minute. Some normality. However, i suppose it’s been good that I haven’t had to worry about work while going through treatment.
How are you doing Carole?
Michelle, here’s hoping you’re don’t have to hide yourself away for too much longer. My cold is still going strong and I know lots of people who have it so maybe you are better out of the way. I’ve had it over two weeks now and it’s nasty. The chemist wouldn’t give me my flu jab because of it and I’ve got no interest in food as I’m absolutely sick and tired of not being able to taste anything. People don’t realise how depressing it is. I went from 9st 5 to 10st on T, so at least some of that extra weight might come off now. I’m trying to find a bright side.
I’ve really noticed lots of hot sweats this past cpl of weeks. I wonder if that’s down to having cold or whether it’s early menopause kicking in.
I haven’t had a period since my 4th chemo.
Anyone else having sweats?
I went to see Mama Mia last night and I’m slightly jaded. Had a great time though. Just a cpl of drinks too many I think. I put it down to being over the moon that 3 weeks after last my last T, I was enjoying myself at the empire instead of making my way home from the chemo ward. X
Morning ladies Angela that clod sound horrible but glad you enjoy the show, I have been getting hot sweats too, I haven’t had a period since 2nd round my bloods have showed I’m perimenopause typical!
Hoping you get a date for radiotherapy the doc said I can have morning appointment and a planning scan before getting dates so I thinks it’s going good to be a good 4/5 weeks for me
Hoping everyone is well today I have some pain in my year just hoping it’s not an ear infection starting or is it a SE of the chemo again?!
Hi
I went to hospital yesterday to get my bloods checked because I’ve still got the same chesty dry cough and feeling breathless that I’ve had for 6 weeks.
I’m not neutropenic but stills have infection so back on antibiotics. Also my potassium levels are low so need meds for that too.
Anyone else had that?
Well sore ear got worse had to go to docs as it was killing everyone I moved my head turns out a nasty ear infection so antibiotics for me too typical was hoping the chemo was going to give me a break this time xxx
Morning ladies.
Michelle and Carole, hope your infections are clearing up. My phlegm has turned from green to clear, so I’m hoping this cold is on its way out.
The radiotherapy unit called yesterday. I get a ct scan next Tuesday then treatment starts on the 27th. So relieved it will be over soon.
How is everyone? X
Carole, Mishy, sorry to hear you are both back on the antibiotics. Hope you feel better soon. But as long as nobody is neutropenic, that’s good news!
Angela, it’s great to have your dates sorted. At last there’s a light at the end of the tunnel!
My news is, I’m in Denia, Spain! Ole!! We’re here just for a few days before going back to face the surgery. It’s wonderful, the sun is shining, views are stunning, and the food actually tastes good! I’m trying to avoid dodgy foods like mussels as I’m still only 4weeks post chemo so I’m playing safe. Also slathering on the factor 30 and wearing sunhat. But who cares! Walked up to the castle today, and when I say up, I mean up. Toughest walk I’ve done for some time. But I made it, even if I did have to have a lie down when we got back to the hotel!
Tatyana that sounds wonderful. Wish I was there!
I’m still persistenty coughing and out of breath. Antibiotics not working yet. Potassium meds made me violently ill so I only took it once. I’m now eating everything I can with a high potassium content. Bloods next week. x
Tatyana, vino tinto por favor ? have a wonderful few days lovely. Buenos nothos 
Shi xx
Hi ladies Tatanya lucky you sounds lovely Carole me and you don’t seem to be having much luck do we ear still sore but feeling a little better it’s day 4 of antibiotics so fingers crossed they start working soon deal the fear great news about the scan and start date did the call from a private number I has two missed calls today when I had been asleep and worried it was hospital with scan date! I should be far behind you as I have was there on Monday morning for first meeting, I’m getting the feeling I will be starting around 1st week Dec so not over for Christmas for me as doing 4 weeks ? at least it will be around about new year now x I really feel like sticking my fingers up to 2017 it’s been ?