Morning ladies
Tatyana I hope your time in Spain didn’t go to quickly
I don’t think there are many places I’d rather be right now.
Michelle, they do ring from a private number. It might be worth giving them a ring.
I’m sitting waiting for the builders to arrive so I can get out of this house. It’s absolutely freezing. No wonder I can’t shake this cold.
Hope everyone is doing well. X
Hi Angela hope that cold clears up soon!! Bet your getting fed up thanks for the tip think I will ring them, it’s freezing cold now isn’t it I’m going back to docs my ear still seems like it’s not better I might need more antibiotics for it, I bet your kl5we are not having more chemo now the weather is getting worse and all the horrible winter bugs flying around on feel sorry for the people who are just starting now!
Yeah Spain sounds great would be lovely to get away from it all x
Evening ladies,
Am freaking out slightly. There was a sore spot in my non-cancerous boob yesterday. It’s still tender today. I’m at the hospital on Thursday to discuss my surgery so will get it checked out then but I’m worried that it’s another tumour. Given I’ve just finished 6 rounds of chemo it seems impossible but I can’t help thinking the worst 
Hi Missaconitum,
Poor you, it’s horrible when something like that happens, but it really does seem very unlikely that it’s anything to worry about. Given the amount of killer chemo that you have been throwing at your whole body, surely nothing new is likely to develop just now. I totally understand how worried you are, but I’m sure they will be able to reassure you. It’s lucky that you have an appointment soon. Meanwhile try not to worry. Lots of hugs and positive vibes coming your way right now. We’ve all had our share of scares so we know how it feels. ,???
Morning ladies.
Miss a. I really feel for you. It’s almost
Impossible not to worry about every ache and pain given what we’re going through. Stress can even cause phantom pains etc. As tatyana says, I’m sure it will be absolutely nothing and it wouldn’t surprise me if it disappears once you’ve had reassurance from your doctor.
Michelle I had my scan for radio yesterday. I arrived an hour early and was seen to early. In fact I was finished before my appointment time. They’ll cover you in stickers and give you a few tiny tattoos. They’re pretty painless, just feel like a light scratch. Then they’ll scan you. There’s no contrast used so no needles. Once they’ve got you into the correct position, the scan only takes a cpl of minutes. Have you got your date yet?
Hi everyone Missa feel bad for you hope it’s nothing xx
Tatanya hope you enjoying holiday x Carole hope you are better soon, Angela still no date for Scan shouldn’t be too long though as had app last Monday just waiting for the call glad it was OK, you start soon don’t you, are you having the 3weeks or 4?
Well I’m day 15 post chemo now bit have been told it takes 6 weeks for immune system to recover! Suppose that makes sense just more watching ourselves for bugs I wonder if that’s why you can’t do radiotherapy straight after you 3 weeks?
Have a good day everyone and Missa try not to worry xx
Well ladies, Spain was lovely, but not quite as restful as we’d hoped, because on day two I had a phone call to tell me that my 95-yearold mum had been rushed to hospital. She’s had several falls and ministries but still lives at home with dad. Spent a morning crying and thinking we’d have to get the next plane home. But the next call a couple of hours later was to say that she was recovering and they were sending her home. So we stayed for the rest of our holiday, but it was a bit full of worry and phone calls as you can imagine!
She’s doing ok now, but really she and dad are just surviving from one crisis to the next, and there’s not much I can do.
Meanwhile, it’s my pre-operative assessment today with a view to surgery next Thursday. So please do the blood dance for me, I really don’t want any delays!
Love to all.
???
???blood dance for tatyana, glad you had a nice holiday and sorry to hear about you Mum, hope she is making steady recovery. ??shi xx
??? blood dance Tatanya glad your mam was OK and back home ear is on the mend finally finished antibiotics now gave the ribs it started today don’t know if its the antibiotics that’s done it I’m day 16 now so it can’t be a SE surely and no one in family has has a bug!!!
I’m sickof having to worry about silly little things like this all the time incase it’s an infection!!!
Aside from this I’m well and looking forward to be chemotherapy free hands feel very numb my sensation is very strange in hands finding it difficult to use touch screen and fiddly things nails very sore too still wearing dark nail varnish!!
Here’s hoping everyone is well and recovering from the chemo xxx
Michelle, your hands will hopefully get better soon, I’m now five weeks post chemo and the skin is ok except a bit dry, fingertips almost back to normal, nails slightly sensitive but improving. I’m still wearing the dark polish to be on the safe side but also to hide the dark marks on or under the nails. But at least I can open packets and jars all by myself! I’ve been told I’ve got to remove nail polish for surgery next week, so I’ll see what they look like then, and maybe leave it off. In general I think it’s better to give the nails a rest and some fresh air sometimes!
Pre-op went well, just got to wait for blood results. I’ve had a bit of a sore dry throat for a few days so I’m desperately hoping it doesn’t turn into a cold!
Missaconitum, hope your appointment today went well and that they were able to reassure you!
Tatanya I will keep everything crossed for you re bloods and no colds starting, no spanners in the works!!
Rang radiotherapy planning unit as still no date for Scan thought I would prod them to get a move on I’m 3 weeks post chemo next Wed and my onc said I should start rads within 4 to 6 weeks I explained this and said I was concerned that they don’t go over the timescale!! Hope they don’t think I was cheeky but shy bairns get nowt!! ? hoping everyone it getting along OK Missa hope your app went well xxx
It was my aunt who told me to call its been nearly two weeks since my meeting with radiotherapy onc and she told me I would be starting with 4 to 6 weeks from last chemo start! She used to work for NHS administration says exactly what you said!! Hopefully my persistence has paid of being TN I don’t want to go past my timelines well even if I wasn’t I still wouldn’t want to xx
Mishy, tatyana thanks for posts below, I didn’t know rads were to start 4-6 weeks after finishing chemo, i’ll Know to chase next year now. 
???thank you again, I’d be lost without you lovely ladies love you shi xx
Hi Girls. Sorry not been on here, been a busy week! I shall try to keep it short (ish). Monday started RT, that was fine, I wasn’t, can’t stop worrying about node biopsy thing, rather than removal, that & worried about unknown of RT, lots of tears. Tues, 6.20am friends husband in door step, he needed my OH to go & get his daughter & then get them both out to Australia to be with his wife & other daughter (who is there for a year working/playing as these kids do) who has been diagnosed with Leukaemia whilst there & support his wife. 
. Lunchtime RT, then appt with Consultant, who was lovely, re-assured me that biopsy means they did remove nodes & RT will deal with, so a better day. Weds, RT then on to another hospital 45 mins away when traffic good on M25, to discuss trial with another Consultant, sounded positive, but huge commitment & blood tests, ecg, ct scans & physical examinations all at this particular hospital & if I was 50% who got medication taking for 2 yrs in conjunction with Letrazole, then further 6 years of monitoring. Rightly or wrongly I have decided not to go ahead with it, as I can’t face Hospitals, scans, tests etc for next however many years, I want to get on with my life if I can. Do you think you would have made same decision or have I looked at gift horse in the mouth?? Either way, too late now!! Thurs & Friday RT, which so far, so good Girls, one week down, three to go. We’re going out with friends for a meal tonight, that’ll be lovely after a stressful week.
??? For you Tatyana, hope your Spanish trip has set you up for it. Angela, good luck with scan & assess for RT, it’s fine, & hope that colds gone & your Mum’s ok now. Carole & Mishy, hope those a/b’s are working, I’m still bloody coughing, hoping it’s tail end of chemo, thinks it better than it was, got backache as well, I know what you mean about worrying over every ache & pain, will we ever not? Hope the sore “other boob” was all ok Missa? Did you get your date Mishy? I think you’re definitely right to phone, I can’t fault my treatment, but the admin is dreadful at my hospital. I’m sorry Shi, don’t know where you are treatment wise, but hope you’ve had a good week. Have a good weekend girls, hope you don’t fall asleep before getting to the end of this!!! Lots of love Kim x
Kimi, lovely to hear from you, sorry you’ve had a tough time, so many worrying things to contend with all at the same time! As for the clinical trial, it sounds like you made the right decision for you, and that’s what matters. You will still be getting the standard “best” treatment, you might have ended up on the placebo anyway, and you have saved yourself all that traveling and hospitals. You’ll feel better when you can stay away from medical folks and not have to think about it all the time. Roll on normal life!
Hi Kim, I’m from Oct thread, tatyana and mishy look after us newbies ??I’m 3rd fec in now 3 t to go had therapeutic mammoplasty in Aug with snb, got told tn after op, get gene results early Dec, so might be looking at more surgery of double mx and ovaries out either before/after rads, I don’t know till I get results. As long as you are happy you make the right decision for you Kim that’s all that matters, there have been 2 new drugs approved by nice on Thursday, if you go on May thread back to Thursday treehouse put a link up on there about them. ??shi xx
Morning ladies.
Kimi, I’d definitely of made the same decision as you. I wouldn’t want to spend the next few years with constant hospital appointments. My oncologist told me they’d probably give me a ct scan every 6 months to make sure that some nodules that showed on my initial scan stay the same. Teeny nodules that they don’t think are anything suspicious but to cover their backs they like to check them every 6 months. Told him thanks for the offer, but absolutely no thank you. Like you, I want to put this behind me. If I’m symptomatic at any point I’ll gave further investigations. Scans are dangerous in themselves and can even cause cancer.
Tatyana, you must be feeling much better by now? I’m feeling better by the day. No more afternoon naps needed and I feel as though I’ve had lead weights removed from my legs.
Michelle, you did right ringing the hospital. My appointment was just one working day before yours and I start treatment next Monday. I’ve decided to get the metro instead of the ambulance as you have to be ready for pick up for two hours beforehand and I hate waiting around.
Miss a, i hope you’ve had reassurance about your other boob. Although it’s not always that straight forward as I was told that things that they would usually brush off as nothing have to be investigated once you’ve had bc. Usually to cover the hospitals back.
Well the building work at home is well underway now so I’ve been absolutely rushed off my feet all week. The cold is still lingering but not nearly as bad as it was.
I’m off to see my aunt now who has been told she is covered in cancer so they can’t give her the heart operation she desperately needs. ?
She’s 72 and has basically resigned herself to only having a few months at most left. We’re all heartbroken.
I hope everyone has a good week. I may not get the chance to logon much with all of the work that’s going on. X
Ftf, sending you big hug and love ??So sorry to hear about your aunt. ??shi xx
Angela I’m really sorry to hear about your Aunt it’s devastating, yeah know what you mean about the hospital I’m going to ring again tomorrow!! It’s like you say I just want to get it done and over with its had enough of of me I want to just be able to relax and be normal again!!
Sorry everyone forgot to ask you all how you are doing its been quiet so presumably everyone is relatively OK xx