Angela that was a big lump i know mine was nearly 3cm with an Area of Dcis round it making it nearly four and my one affected node was 19mm i know my inc said hed reviewed planning ct for rads and was happy there was nothing troubling to see hows the fatigue affected you im bloody knackered all the time also a little breathless my gp has run bloods in case im anemic also doing chest x-ray incase rads have clipped my lung!!! I think its cumulative from the treatment myself its been a long road for us all when you think about it!!
Hows you hair doing also i was very impressed witb it when i saw you i now have my eyebrows back and lashes!
Tatanya hope you are ok xx
Hi Michelle.
Yes, big lump. I don’t do anything by halves me.
I’m not exactly knackered, but I don’t feel myself yet. A few weeks after chemo I was getting the spring back in my step but the rads have took me back a few steps.
I actually feel better today than I have in ages though so I’m hoping this is a turning point.
I think the breathlessness is probably just the cumulative effect of everything. We’ve been through the mill Michelle.
My hair is doing well. I bought that new soap you recommended. I’m now rocking a pineapple look.
I could of sworn I didn’t lose any hair but clearly I did. My Mam admitted the other day that whenever I showered she used to pop into the bathroom and scoop all of my hair up. She didn’t want to tell me as she thought I’d be upset. My body hair is coming back thick and fast. I’m getting bushy eyebrows and I barely had any before chemo. ?
Really hoping my lashes do the same. ??
My onco didn’t tell me how bad each node was. Probably better not to know. Knowledge is only power if you can do something about it. X
Your bloody right there i wish they had done that with me i would have preferred to know that it was affected nit by what the bloody size etc as it nakes you analyse things abit and can’t do anything with the info!!
Loks like i hopefully will have a pixie in another 4 weeks hopefully albeit a short one the left side isn’t as good as the right but i sleep on that side!! Its taking on a wavy appearance and very mousy grey, im pleased your sprouting new stuff as well and brows my lashes came before brows but everything seens a little thicker downstairs too unfortunately the lady shave is working overtime !!!
I think im wanting too much too soon Angela haha
Hi Mishy, hi all, I’m ok considering, i.e.not great, bit of an emotional wreck just now. For those of you who don’t know, my scan results on Wednesday showed that the inoperable mediastinal lymph nodes have actually grown since the previous scan (pre chemo), not much but enough that we are now looking at managing the cancer rather than curing it. I’m going to take a couple of weeks off then start on chemo tablets, capecitabine, supposedly less harsh than our old friens fec and t. Seeing the chemo nurse Tues to find out more. Boy have I got a lot of questions for her!
So, hubby and I are going through yet another adjustment process. I know it could be worse, but hey, I was hoping for better.
Looking on the bright side, hair loss is less likely with this one. Hooray! I can celebrate my nearly pixie. I opened the door to the neighbors yesterday with no wig or scarf on, and they didn’t bat an eyelid, not even the three-year old,who can usually be relied on to tell it like it is!
Tatanya i think you are fab ? be kind to yourself you have a lot to take in atm sending my love to you ? pleased to hear you have a nearly pixie too xxx
Carole i hope all goes well for you with your MRI sending you some ? too in my thoughts x
Carole, my dear, you have expressed exactly, exactly what I feel. We thought we could see the light at the end of the tunnel, but it turns out it’s the train coming towards us. A few days ago we were making plans for the summer. Now we’ve got to stop planning the future and find another way of living. Hopefully your next results will be more encouraging, but either way it’s a horrible thing to go through. At the moment the slightest thing is making me burst into tears, I know it’s early days and this will pass, but it’s still **bleep**. At least we can hold each others hands.
Big hugs!
Hi all,
Sorry it’s been a while since I’ve been online. Christmas was a busy period and now I’ve mostly got my energy back I’ve been keeping myself occupied. Started rads last Friday though so preparing myself for the inevitable crash.
Tatyana, I’m sorry to hear your news. You know we’re all here if you need to get stuff off your chest. You too Carole, hopefully your MRI results are positive.
Glad to hear your hair is coming back FeelTheFear and Mishy! My bald patch is starting to get filled in and downstairs I look like a yeti, it’s grown back black and it definitely wasn’t like that before chemo!
Still loathe to dye my head hair (unfortunately it’s grown back it’s usual natural blonde colour) but I’ve been using lush henna dye instead. Obviously more of a tint than a dye but the cocoa butter in it makes my hair lovely and soft.
I didn’t ask how many lymph nodes were involved and they didn’t tell me. All I know is they took them all. Pre-chemo the cancerous area was 9cm! Shrunk to 1.2cm after chemo though.
Mishy, I know what you mean about the TN part. It plays on my mind a lot. I’ve vowed to make lifestyle changes to try and limit the chance of reoccurrence but there’s obviously no guarantees. I guess we just have to get busy living and don’t think about it too much. How is your granddaughter doing?
Missa shes doing great 15 weeks now had her first sleep over last night it was lovely although im shattered since shes gone home showing my age haha!! Hope you get in ok with the rads i think tge tiredness is just tge knock on from surgery chemo etc just git to go with it oleased to hear about your hair too! Mine is bloody greyish mousey colour with a patch of white right at the front glad you are doing ok xx
Morning ladies.
Tatyana, Sorry about your news. It’s absolutely rubbish. I’m sure there will be weapons to fight/control it. I felt so sad when you said you’re not planning for the summer. I hope you do.
Can proton beam therapy be used in that area?
I hope you get some answers when you see the chemo nurse. Xxx
Hope you are all well and happy valentines day ??? onwards and upwards eh ?
Tatanya hope you are doing ok lovely and Carole i hope you are doing ok since your scans x
Kimi Angela hope you both are muddling along with life after bc well obviously you are as not heard from you in a while good sign im still lurking but promised myself i will check on less often and only drop in every now and then to see how everyone is xx
Hi Mishy
I’m not sure if I actually told you good ladies about my liver MRI. I had had a ct
Scan which showed lesions in my liver and so had been sent for an MRI to diagnose. After a very worrying few weeks it turned out to be benign fatty infiltration, which was a huge relief. I’ve now been told I’m cancer free but to repeat scan in 3 months.
Yesterday I had genetic counselling and am having the test due to family history. Next week I have my mammo of good boob, one year on and first zolendronic acid infusion. Doing ok with Letrozole.
Hope you ladies are doing well xx
Really pleased for you Carole xxx
Hi Carole, that is wonderful news about your scan. Go girl! You can do without that kind of anxiety, but at least you got the right result this time!
Mishy, lovely to hear from you! I’ve now done nearly a week on my new chemo tablets, it’s two weeks on and one week off, and so far I’m feeling fine, touch wood!
I’m getting my head around the secondary diagnosis a bit and trying to focus on the good stuff, of which there’s lots. Such as playing flamingo bingo with the three-year old granddaughter on Sunday! You’ve got all that to look forward to with yours!
Just had my first session with counsellor, arranged by my lovely GP. I think it’s going to be really useful. One thing she suggested was to think of cancer as a big bully standing over me, and if I don’t enjoy my life I’m letting the bully win.
So I’m kicking that big bustard right where it hurts!
Love and hugs to everyone.
Im really pleased your doing OK on the new drugs tatanya abd starting to get your head around things, you are really strong , its lovely to hear about the flamingo bingo with grandchild too, can’t wait for times like that although even at 4 months she is providing me with lots of laughs ?
Morning ladies. Just spotted your posts from last week. I’m trying to put bc to the back of my mind until my next appointments so I’m not logging on much.
Carole, that’s brilliant news. You can breath a sigh of relief. We don’t seem to get many opportunities to do that.
Tatyana, it’s good that your new regime doesn’t seem to have many SEs. I’m sure you could do without any more after what we’ve just been through. You sound really positive. I’ve always thought of bc as a sneaky bully and after suffering from them at school, I’m not going to put up with that now. The gloves are off. ?
I’m going to have a look for this flamingo bingo. I’ve got a 3 year old grandson. I think he’d love it. He’s back to sleeping over at least once a week now that the house is nearly finished. We adore each other. ? he’s an absolute treat.
Michelle, how are you recovering from your extended radio sessions? I found my skin healed really quickly and looked a lot worse than it felt. I agree with taking a step back from forums etc now and again. Sometimes we need a break where we can forget our lives have been blighted by this nasty bugger.
I’ve got lots of appointments coming up. Genetic app this Friday. Me and hubby are getting the metro so we can enjoy a lovey (probably boozy) lunch on the way back.
Then oncologist next month, then plastic surgery initial app after that. We’ve just booked a two week holiday to zante leaving may 24 so any operation will just have to wait.
P.s. I’ve started to take cannabis oil daily (yuk) and also a mini aspirin. Who knows, with my high lymph node involvement it might keep things at bay a bit longer.
X