Still a busy time with hospitals one year on from finding BC. Genetic clinic last week, this week Moving Forwards course yesterday, Zolendronic acid infusion today and mammogram tomorrow.
Have a good day ladies xx
What happened at the genetics clinic Carole? I had to fill in forms about family history months ago and now I have to go for an appointment. We’re you there long?
Hi everyone good to hear from you Angela the extra rads were fine just targeted at the site of the tumor so not bad i found the underarm the worst bit of treatment but it was because the surgeon didn’t do a clearance of axilla nodes!! My skin was really sore but like you say it settled quickly, its tiredness im really bothered with atm like you i still have a few appointments to go to i see bc surgeon next Wed had a bone scan yesterday my onc on 12th then probably my mammo in April gets a bit ? its hard to forget about It with appointments coming up so hopefully things will start to feel a bit more normal
I think when treatments finish you kind of think about it a bit more so i am proactively trying to just put it away ?
Carole its good to hear from you too nice to see everyone is getting on ok
Tatanya glad to see you are tolerating the new treatment xxx speak soon ladies xx
Thanks for the info Carole. I didn’t really know any of that. I think one of the main reasons they’ve decided to test me is my male cousin had bc in his 20s. Very unusual apparently.
Michelle, lovely to hear from you. Under my arm was the worst as well. I did have a full lymph clearance but they must of zapped it any way. Yeah, it’s hard to try and switch off with so many apps coming up. It all becomes very real again. X
Hi
I also have a male cousin who had BC in his 40s and my grandmother died of it in her 40s and my sister had it at 43 and new primary BC at 53.
Hello Lovely Ladies. I too am sorry it’s been a while, but trying to have some normality, but as a couple of you have said, difficult with appointments etc. Saw Oncologist last month, she passed me to surgeon whom I saw today, who is going to arrange for me to have mammogram in April & bone scan later this year, will need another Zolendronic infusion in April & will see Oncologist again in August, but we can’t complain I suppose.
Tatyana, I’m sorry your news wasn’t better, it sounds as though your determination is back now, & great you’ve got a counsellor & a fab GP to help you, good the treatment has started & SE’s aren’t too bad, we’re all with you Lovely, now kick it’s arse, summer is round the corner & waiting for you & lots more Flamingo Bingo.
Missa, I’ll swap you my grey hair for your blonde, I’m desperate to dye it, but better wait a bit longer & let it grow some more too. Hope your doing well.
Mishy, sounds as though that baby is coming along, how lovely for you, I’m tired all the time & don’t have a grandchild to run around after, hoping it’s just the chemo & rads still in my system.
Carole, I know your doing well from our FBook forum, hope you enjoyed St Ives.
Feelthefear, glad you’ve booked yourself a holiday, best medicine, I’ve just had a week inPortugal & would like another, sea & sun - lovely. Enjoy your Grandson, sounds as though you have a lovely relationship, maybe I will get one before long, my daughter & her boyfriend have just bought a house& I know they are really keen to start a family, so who knows??
Hope your ok too Shi?
I think about you all & hope you’re all doing ok, we’re all still here & holding each other’s hands, a little less often maybe but sending you all a big hug & very best wishes. Kim xxxx
Ladies hello ? app tomorrow with bc surgeon not sure what it will entail as last saw her post surgery with path results in May ? probably to arrange mammo etc cancerversary soon ugh ?
Was abit gutted that my GP still doesn’t think im ready for work return due to the fatigue and arthritis flare up also says i have anxiety eith depression which i refused antidepressants for he wants to see me in 4 weeks to see whether im improving on my own i hope so don’t want to go on tablets feeling a bit deflated that i battled through cancer treatment but have ended up with bloody mood related stuff got my where now course at Maggies so hopefully that will help me alot its hard admitting to having a bit of depression i feel like such a wuss when othrt people’s outcome has been worse than mine
Im so glad to hear you are all well and enjoying life which i aim to start doing alot more of soon!!!
I actually want to add that i don’t think as such i have depression really but just a little bit of emotional stuff that im dealing with, the GPs are very quick to try to push antidepressants which i think is a little irresponsible really im sure after my counselling session and where now thing my mood will massively improve
Im also looking forward to looking after Grandaughter a couple of days a week, have been taking her to a music class called rhythm time its fun!
Angela best of luck with the genetics stuff im not having a gene test
Tatanya hope you are well lovely and so pleased you are finding the new tablets tolerable
Lovely to hear from you Kimi onwards and upwards ladies and yes we will hold each others hands
Take care ?
Hello my lovely fellow July ladies was a proper debbie downer yesterday so when you do see my 2 very erratic posts ? well as the song says what a difference a day makes had surgeon app today went really well on the whole very pleased with everything a little fluid in breast but nothing unduly concerning told me what to look out for thickening of skin hardening that type of thing having mammo late April early may, was given a clear explanation of path too, was relieved and happy to hear that even though i hard 19mm of cancer in lymph node iit was a colony of cells rather than a new tumor anf it had remained contained no leakage which he said for the size of the node it was great news my stats for remaining cured/no recurrence are 80% in my favour not bad for a grade 3 stage 2 I’ll take that!!! So his parting words were go abd enjoy your life now and enjoy being one if the success stories
Suddenly i thought i have been dwelling on the negative side of this instead of the postives
So im going off again for a little while but will keep looking in on you all but rest assured I’m sending you all my ??? what a bloody fantastically brave ? bunch of girls we are ?
Angela im having gene referral because of my dad but again the think its quite unlikely ?
Great news Mishy. Pleased you got encouraging news. Celebrate ?
Mishy, my lovely, I’m so glad the news was good! You’re one strong lady and you’ve had a heck of a year, but now you are coming out the other side. There will be ups and downs, it’s not easy to get this stuff out of your head, but you’ll get there. Now have yourself some fun! You deserve it! Big hugs.??
Tatanya thank you lovely lady there’s no guarantee obviously they are only stats at tge end of day but as you say we need to be grateful for what we have been through and where we are at, you are truly an inspiration to all of us on here im so pleased that the meds are agreeing with you and you can access the treatment you so deserve Tatanya ??
Oh Mishy, I’m so with you, I’m really struggling with all of this too, I know I should be feeling relieved, the Onocologist & Surgeon have sent me on my way, been told to expect a mammogram appt for April, will do another bone scan at some point & got Zolendronic infusion next month, but I can’t stop worrying & feel so blooming down all the time. I’ve had a backache since last Friday, you can imagine what’s going through my head!, think I’m going to have to phone BC nurse today it’s making me very miserable, but then I think I don’t want to hear any bad news, so should I bury my head? someone said it’s a bit like post traumatic stress syndrome after treatments, I’m beginning to think that’s right. I worked all through treatments when I could, for some sort of normal, that was for me, no other reason, because it wasn’t good being at home watching daytime TV & “thinking”!! The tiredness and aches get me all the time too, I want to feel how I felt before this all started, but don’t think that is going to happen somehow.
So, I too don’t want to be A Debbie Downer, but hope we can help each other with our honesty, it makes me feel a bit better knowing I’m not the only one with these feelings and I also know some have even more worries and for that I feel guilty moaning and hope you understand that I wish you well and that you get solutions and some peace from this dreadful thing we didn’t expect to have to deal with.
Anyway, positive note, I’m off for lunch out with a friend today, so keeping occupied, the housework is still waiting…
Love, hugs & hand holding to all xxxxxxx
Kimi i think if we were all REALLY honest with ourselves we would realise we probably all feel like this sone days im great then wham there it is feeling ? again
I know it sounds daft but i feel in no mans land a bit re treatment ending and apps no hormone injections or tablets to take so i have to go with tge stats i was given and hope the are in my favour!!!
I definitely think it could be a little PTSD and our brains are going to have to adjust to the bew normal as mine certainly doesn’t want to return to pre bc no matter how much i convince myself so instead im distracting myself as much as possible when i return to work hopefully I will be a bit mire emotionally stable!!! I also think i may be suffering some menapause symptoms too!!!
Hope you enj5your day out Kimi hugs and best wishes to everyone else me im going carpet shopping ?
Angela Carole Tatanya ? sending hugs your way too x
Kimi and Mishy,
Big hugs to you both. I can honestly say, from my first round of the big beast, that it does get easier. A time will come when it’s not on your mind all day every day. It’s always there, but I really believe you can learn to use that knowledge to help you to truly appreciate the good things in life-- such as the lovely friends we’ve made here.
Don’t ever say that you"should" be feeling this or that. Your feelings are just that, feelings, there’s no right and wrong, and there isn’t a pecking order: She’s worse off than me so I shouldn’t feel so bad???!!! It’s not like that. We can all share these feelings and understand better than anyone outside BC World, and it doesn’t matter what each person’s outcome is. We’re in it together!
Thank you Tatanya i definitely feel a slight shift in my thoughts and feelings im definitely a little better than i was a few weeks back, but its like you Kimi and everyone else says our feelings are just that and sometimes no matter how much you try to not give into them sometimes you can’t help it ?
Its lovely to be able to come on here and share and yes you truly are all a lovely bunch… Keep on smiling ladies spring is on its way new life and all that ?
Hello all, sorry it’s been so long since I last posted. I’ve been very much trying to focus on getting on with my life after treatment. I finished radiotherapy on 8th Feb and I was fortunate to get away with just one bit of patchy skin under my armpit.
Started with lymphodema though which has set me back a bit. I saw the nurse who gave me a compression sleeve and glove and we’re just seeing how things go.
Seeing the radiotherapy consultant next week, presumably to check everything is healing okay. I’m hoping he’ll tell me there’s no evidence of the disease but I’m assuming you have a scan before they tell you that? I don’t really know, I might ring my BC nurse tomorrow.
Fab news Mishy and Carole! Really chuffed for both of you!
FeelTheFear where do you get your cbd oil and what strength do you use? I looked into it but they can’t give any advice in case of being sued for giving medical advice without a licence or something. Thinking about starting baby aspirin too.
Did my will and funeral plan this week as I didn’t have one and Amnesty International are offering free will writing throughout March. Now I own my flat (finally completed in Feb!) I thought it best to have one. Bit grim doing a funeral plan at 31 but at least I’ve made my wishes known.
Went to Marrakech for my birthday at the end of Feb, managed to avoid the ‘beast from the east’ at least.
Hope you’re all doing okay and have a great weekend ?
Hello ladies hope you are well and enjoying life haven’t been on in a while trying hard to move on a little had follow up with onc wants to see me in a year wow no more apps for a while just the dreaded 1st mammo and cancerversary looming starting to feel a lot better in general i can still get tired easily and my memory is rediculous ? but on the whole feeling much better have a weekend away at Bamburgh coming up so i hope the weather improves!!! im hoping the quietness on the thread means good things with you all ? wishing you all a very happy Easter ?? to you all ?
Happy Easter ladies.
I think we’re just trying to regain some sense of normal now. Wow Michelle, no appointments for a year. I’ve got my reconstruction to look forward to (diep) so it’s still all go for me. Apparently I need to put a bit of weight on to make a new boob. I never thought I’d find myself in that position.
Miss a, I get my cbd oil from a shop in town. It’s the type that sell bongs etc. It’s 4000% for £40. I take 3 drops under my tongue ever day. The aspirin are the gastro resistant ones 75mg.
I don’t think we’ve got anything to lose by giving them a go. At the very least my hot flushes are much better when taking the oil.
I hope everyone is doing well.
Michelle, hope you have a lovely time in bamburgh. We spend a lot of time there. X