Hello Lovely Friends. Glad all seems to going well for you all at the moment. I’m doing ok, had bad back & tummy pains, scan was all clear & think with help of an osteopath is slowly improving. Had my second Zolendronic infusion & apart from tired was ok after it, was told it’s only the first one that makes you feel rough, & it seemed to be true. Got results of my mammogram today, unclear result so now got to have an ultrasound, had a meltdown earlier & my daughter phoned Mamillan helpline bless her, what a lovely lady on the phone, told me it’s not unheard of & can be scar tissue from lumpectomy, but started the worry yet again & here we go again with more worrying & waiting. Have ditched the wig & have found short hair quite liberating, doesn’t get in your face when the wind blows or frizzy when it rains, don’t think I’ll ever have it too long again. Good luck to you all & hope it’s still onwards & upwards, & whilst we’re not on this forum so much now, still here holding hands. Much love to you all. Xxx
Kimi lovely to hear from you, i am keeping everything crossed for you re the ultrasound my mammo is due soon, am waiting for app for some breast isdues (some swelling and pitting) bcn wants me to come to clinic to be checked i hope your daughter is ok she must have got a fright and you but im sure it will be post treatment stuff sending you big hugs
As you said we may not come on as often but still here for each other
July ladies sending you all my ? and best wishes xxx
Hi Kimi,sorry to hear you’re in worryland again. It’s pretty common for mammos to be unclear when you’ve had surgery in that area, I would guess they are just being careful, which is good. Fingers crossed for you. You sound like you are doing really well, it’s great to hear from people getting on with their lives. And yes short hair is great! Having mine properly cut tomorrow for the first time since chemo, quite nervous about it!!
Hey ladies. I hope everyone is doing well.
Kimi, sorry you’re in that horrible waiting/worrying place yet again. I’m sure it’ll be nothing. Like tatyana says, they’ll be being extra cautious with our past.
I’ve got my first mamo on May 14th.
The fear monster is creeping in already. I go away for two weeks on May 24 and I’m even considering changing my appointment to when I get back so I can enjoy my holiday without any bad news or uncertainty hanging over me. ?
It’s bloody awful this merry go round we seem to be on.
Tatyana, it’s good that you’re feeling well on the treatment.
michelle, hope you’re doing well and your boob issues are nothing. No the wonder we’ve got dodgy bits and bobs on our boobs and non boobs. We’ve been hacked and burnt to bits. ?
I hope you got sorted with your meds Shi.
Here’s hoping we will all be enjoying some lovely sunshine soon. Apparently there’s a heatwave coming mid month. Wouldn’t that be fantastic.
Take care everyone. Xxx
Hi ladies
I’ve not been able to reply on here for a while but hopefully working again now. I see some of us are still having issues and worrying about appointments and send hugs to you all.
I’ve just got my 3 months on CT results on liver and not what I wanted. They seem to have found another suspect area. Got to have another MRI as soon as possible.
I’m enjoying a week in Somerset at the moment xx
Morning Carole.
Sorry to hear that you’re in the waiting game again as well.
Given that there are only a few of us on this July thread, and one of us is always waiting for uncertain results, I think this is probably our new normal.
I think we just have to try and assume everything is fine, unless we’re told it’s definitely not, or we’d worry ourselves to death. ?
On a brighter note, enjoy the rest of your break and maybe a lovely glass of Somerset cider in the sunshine. ?
Hi Carole, sorry to hear you didn’t get the results you wanted. Fingers crossed, it may turn out to be nothing. But even if it is something, they’ve got treatments lined up for whatever happens. And we’re here for you. Meanwhile enjoy the precious sunshine.
It’s true that waiting and worrying seems to be our new normal. I wonder will we ever get used to it? I’ve got a scan in a couple of weeks after which we decide whether I stay on this nice easy chemo or switch to another. I’m trying to just enjoy this time and let the future be what it will!
Love and hugs to everyone.xx
Carole im sorry about your ct results im keeping everything crossed for you ? Angela yeah 1st mammo coming up is daunting mine is due around same time as you i had to poke them in back so to speak as i discovered by accident yesterday after call from bcn that my request card had gone walk abouts screening were blaming bcs secretary so i rang her today and as it turns out the request had been sent out and disappeared!! She was very helpful and within 15 minutes rang me back to say it was sorted and should be having it in June as they have a back log at least i have a clinic appointment which has been arranged by bcn and im sure if they are concerned i will have an ultrasound or something ?
So yes a few of us are in worryland again but hopefully we will al be alright
Carole big hugs for you i will be thinking of you Tatanya wise words from you lovely to hear from you take care ladies we are expecting sunshine this Bank Holiday weekend so enjoy xxxx
Hi Girls. Well, I worried myself silly, turned into “pushy Pauline” & couldn’t stop crying with my BC nurse, who was brilliant & got me a scan appt same week as phone call from Consultant who told me about unclear mammogram. Thank goodness it was fine, scar tissue apparently, but what a week, my husband & I were complete wrecks in scanning room, BC nurse even came with us, bless her. I do think these Consultants should walk in our shoes & think about how they deliver news, a bit of reassurance would go a long way, I know they walk in fear of being sued, but there must be a way of not frightening the pants off us.
Glad your feeling ok on treatment Tatyana, & it will be done soon & you can enjoy the summer. Carole, you know we’ve got everything crossed for you & you get good results & soon & you too Mishy, one of the girls on our group said she was told to buy a wallpaper seam roller & use that to massage her boob, I’m thinking of getting one. Good luck on 14th Feelthefear, be good to go on holiday without it hanging over you, don’t think they are very speedy with results though, usually a couple of weeks. Hope all ok with you Shi?
I’m off to Portugal again in June for a week, it’ll be the first holiday without treatment/results or imminent appt looming, hope I can relax this time.
Enjoy the nice weather, thinking of you all & still holding hands.
Much love. Xxx
Kimi, brilliant news everything ok my lovely ??? bit of a ??a couple of weeks ago but got ultrasound and checked out and all ok thanks ???
for everyone with appointments big 
To everyone Shi xx
Kimi,so glad it turned out ok for you. And you too, Shi! It seems everyone gets these scares now and then, it’s just something we have to learn to live with!
Kimi, unfortunately I don’t get a reprieve from the chemo, I just stay on it until it stops working --which I’ll find out after my next scan in a couple of weeks! If it’s not working we’ll switch to another chemo, which will be IV instead of tablets, so it will interfere with life a lot more! So keep everything crossed for me.
Meanwhile we’re off to Greece for a week’s holiday, somehow managed to squeeze it in between hospital appointments!
Have a good weekend everyone, and good luck to Mishy, Angela, Carole, and anyone else who is in worryland!
Tatyana beautiful lady ??everything ???and also a ???And for your results darling. How lovely you’ve got a week in Greece ???Enjoy as I know you will ???Shi xx
Hi ladies
Well done Kim and Shi on your food results.
Angela I hope you are doing well and good luck for Monday.
I’ve got my MRI on Monday 14th for
Liver lesions. Getting terrible stress headaches in the meantime ?
Carole i sincerely hope everything is ok with rhe MRI i will be keeping everything crossed for you its awful when you are waiting for something like that the anxiety is terrible i remember it too well from diagnosis and now feeling it again for my appointment this Wed coming i keep trying to forget about it till then but cant im so worried about it as i have an orange peel area of thickening on breast too ? Kimi what an awful time for you too it really doesn’t matter what people say when you feel like that does it, i don’t think anyone really understands unless they have been through it themselves
Tatanya i am so pleased you are having a holiday between treatment you aee so positive and unbelievably ? i hope they keep you on the easy chemo!!! Your attitude is definitely the best one to have about enjoying everything the sun has been lovely fir lifting iur spirits i think im currently having a cuopa in garden listening to the birds and deciding what to do today!! Im trying very hard to distract myself till Wednesday
Angela hoping you are ok and feeling positive about 1st Mammo app its definitely the one i think we must all dread the first one but don’t let it spoil your holiday you know what they say about no news and all that! !!
Ladies have a lovely day i will keep you posted how i get on ?
Ooh my typos were terrible in that post ?
Kimi forgot to say as well how pleased i am for you that it turned out to be scarring what an absolute relief whst an awful experience for your 1st mammo take care xx
Good morning ladies.
Kimi I’m so relieved for you. My bc nurse says oncologists scan whenever there is even a minute possibility something could be cancer. She says it’s to cover their own backs. I absolutely agree that a bit of reassurance goes a long way. I find I have to seek it out rather than just being given it freely.
I’ve decided to put my scan on hold until after my holiday. I just really need to go away without any worry hanging over me. I don’t think getting the scan a cpl of weeks later will make any difference to my physical health but it will certainly help my mental health.
Tatyana, great that you’re off to Greece for a week. It’ll be my first time to zante on the 24th. Can’t wait.
I’m not religious, so I’m asking the universe to keep those meds working for you. ???
Michelle, I’ll keep everything crossed for your scan. My mastectomy skin is still changing. Still hurts when I lie on that side for any amount of time as well. I’m sure it’ll be nothing. It takes such a long time for our bodies to fully recover from what they’ve been through. I think some changes are to be expected. Doesn’t help when you’re worrying yourself sick though.
Carole, I’m sending positive vibes over to you. You’ve had a scare before and it turned out okay. Here’s hoping they’re just being extra cautious.
Shi, I hope everything is going well for you.
Miserable weather here today, so indoors drinking gallons of tea listening to Cerys on radio 6.
Hoping the sun gets out later so I can swap the tea for a glass of wine and a nice plate of Italian spezzatino alfresco.
Xxx
Ftf, zante is glorious if you get up to alykinas go to the mill bar near the beach and say hi to Julie the owner, she’s lovely and the do a banging greak night ???Ooopppa ???Shi xx
Evening ladies just thought id pop on to let you know that my boob worry is nothing sinister its a breast lymphodema which is basically build up of oedema due to rads he explained the orangey peel thickening in skin is due to the fluid under skin causing the follicles to look prominent im being referred to the lymphodema clinic for now i just have to be careful in terms of lifting too heavy things but he said its not the worst case he has seen just thought i would let you ladies know Carole i hope you are OK thinking about you xxx
Mishy, I’m so happy to hear this, you must be so relieved! Of course the lymphoedema is a nuisance, but not the worst! Now relax and enjoy yourself! xx