Good morning ladies. I hope everyone is well.
Carole, it’s rubbish that you’ve had to choose between financial stability or your health. I’m sure you’ll be able to cut your cloth accordingly, but wish for you it didn’t have to be that way.
Michelle, I hope you don’t need an operation, but i know you’ll cope well if you do. I understand your frustration with your onco. Given the numbers of people who do eventually get secondaries, then I think It’s absolutely a legitimate concern. There should be a lot more support and advice in place. What signs and symptoms to look out for etc at the very least.
I bet Ella looked absolutely gorgeous. Isn’t it such a treat to dress the little ones up. ?
I’ll be wearing last year’s pumpkin outfit agin. ?
We’ve just got back from Alicante. Weather wasn’t great but got to spend time with my brother who lives there.
Plenty of washing to do now before I pack to leave for the caravan this afternoon. Can’t wait to pick our little miles up from school at 3pm. He’ll be sooo excited.
My next scan is Tuesday. ??? I’m sure I’ve got some rib pain now and I’m not really holding out much hope of stable with this regime if I’m honest.
I hope everyone else is doing well. It would be good to have an update on missa. You’re on my mind a lot. Xxx
Angela im glad you have had a lovely time with your brother and raring to go to the caravan with Miles have a fab time hope you got that washing dry!!
Maybe you have some chostochindttis from radiotherapy i have it my onc said its quite painful at times and also a common long term SE from radiotherapy what the never tell you about unless you get it well my app was ? need an op nit happy about it its quite a big one and im worrying about having it done i said at appointment i didn’t know if i wanted it but spoke to his sec today and asked if i can go back and see him, i don’t want to end up disabled as the problem is progressive quite slowly but still is going to be if left i need to be sensible if my bc returns i need to be strong enough to deal with treatment etc a disability of the spine could hinder things i always like to think of the bigger picture im a realist!!!
Angela i will be thinking about you on Tuesday for your scan i really hope it is going well with treatment and things are going well i will keep everything crossed for you, your attitude towards this is fantastic as is Tatanya and Missa tou truly are special ladies
Angela let me know when you fancy that cuppa my lovely no pressure just when you can x
Missa me too you have been in my thoughts if you are reading the forum sending you a virtual hug ?
Love to everyone what a special bunch of gals you are
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Hello lovely ladies! Angela, have a fab time in the caravan with little Miles, what is it about kids and caravans, whenever my grandson visits all he wants to do is play in the camper van, although it’s just sitting on the drive! Glad you managed to get to Alicante, I can’t remember what treatment you are on now, did you manage to get insurance? And good luck with the scan, I hope you get a “stable Mabel.”
Michelle, lovely to hear from you but so sorry you have to make this horrible decision about the operation. Take your time and talk to lots of people and make whatever decision feels right to you. It’s such rotten luck to have to cope with that on top of all you’ve been through over the last couple of years.
I’m seeing the oncologist on Wednesday for results of latest scan, I’m a bit like you Angela in that I don’t really feel the current regime has got it under control. Just have to wait and see what they say.
Sending hugs to all of you, it’s lovely that people still drop in here occasionally, good luck with whatever is happening in your lives! It’s our village bonfire night tonight, hoping to be well enough to go, as I had chemo yesterday, postponed from last week (as usual!). But even if I’m feeling a bit frail, it’s literally 50 yards from our house and if all else fails I can go upstairs and see the fireworks from the bedroom window! ???
Have a lovely time at bonfire party Tatanya and will be thinking of you with your scan i really hope your treatment is doing its stuff keep positive lovely lady ??
Tatyana For Wednesday beautiful lady ???sending special tatyana for you. Ftf For Tuesday beautiful lady too ???and sending special ftf for you too. Mishy as always I’m still ???about your Doris from bingo Barnet, thank you for always making us ???wonderful lady. ???to everyone Shi xx
Michelle, what a horrible predicament to be in. I hope you get the answers and reassurance you need to make the right decision. I’d love that coffee. Maybe when my next appointment at the freeman comes through? I have one this week but I’ve got my granddaughter later in the morning.
I’m going to have a look into the chostochindttis you mentioned. I’ve never heard of it.
Tatyana, I’ve got everything crossed for good news for you on Wednesday. It’s just bloody horrible isn’t it. Yes, I got insurance from insurewith. Only £29 for me and hubby. Without cancellation. We booked a cpl of days before we flew so I knew I wouldn’t really need it. I hope you managed to get to the fireworks.
It turns out my scan is on Friday. It’s my son who has appointment tomorrow. It’s easy to get mixed up we have sooo many between us.
Shi, lovely to see your happy cheery post on a Monday morning. ??? hope things are going well for you.
We had a great time at the caravan. Miles danced Saturday away at the two parties. He looked fabulous in his zombie knight outfit. ?
I think I need to start planning our next get away. My dad always said everyone needs something to look forward to and he was absolutely right. Xxx
Tatyana ???sending thinking of you. Ftf ???for tomorrow And hope your son got on ok Tuesday too ??hi mishy ??? ???bought 3 Christmas trees at the weekend and my gran bought me ?too ???and if I see any more I like I’m having them too ??????Shi xx
Angela, fingers crossed for your scan, and I hope your son’s appointment went well. ??? Shi, your house is going to be fab this Christmas with sparkly trees in every room!???
Wouldn’t you know it, having had chemo on Friday (bloods were ok and they didn’t mind that I had a cold!), I went and got a bout of nausea on Tuesday and Wednesday. Ended up in A&E on Wednesday, just like the old days, because I couldn’t keep anything down, especially not the antisickness pills! So they gave me lots of IV fluids to rehydrate me and some IV antisickness, and my blood results were ok so they sent me home, thank goodness! BUT of course by then I’d missed my oncologist appointment (at a small local hospital with no A&E). So I didn’t get my scan results or next treatment plan, and I’ve just got to wait for another appointment. So frustrating. Hubby and I were both really nervous about this one but had psyched ourselves up, for nothing!
The good news is that the nausea went away and I’m feeling fine now,which is good because we’re out for lunch today at a nice restaurant with hubby’s cousin and wife who we don’t often see but are some of my all-time favourite people!
Love to all you special ladies!???
Ah Tatanya how frustrating for you being all prepared mentally for your appointment im sorry to hear you ended up in hospital too i hope you are feeling OK after that ordeal im sorry you had geared yourself up for that appointment to have to miss it hopefully under the circumstances you will have another one soon again big hugs and hand holding ??
Angela been thinking about you for today, i hope your scan is over with as quickly as possible never realised scanxiety was a real thing till i jumped on the bc express even though my recent scans were neuro bc they were still the primary reason for having them and the anxiety was there so im sending you my ? and ? lots and lots of positive vibes coming your way lovely lady
Michele ?
Shi I bet your trees look gorgeous. I do love a xmas tree. Can’t wait to get mine up. A huge real one this year I think. ?
Tatyana ? I really feel for you. What a carry on. Why can things not run smoothly for us, even just now and again. It must of been absolutely rubbish to be back in hospital. Have you got your appointment through yet? Mine is next Friday. Absolutely terrified if I’m honest. ???
I don’t envy you having to go through the whole horrible build up and prepare twice. I truly hope you get some good news. ???
I’ve no idea what’s going on with my ribs but I’m pretty positive it can’t be a good thing. It’s next to my liver so fear monster in overdrive I can imagine me in waiting room for results cowering like a dog at the vet ?
Hi Angela,
I’ll be thinking about you on Friday and sending loads of good vibes. My appointment is now 21 Nov, would’ve been sooner but naturally the consultant picked this week to go on holiday! But we’ve snuck off for a couple of nights in Sussex to take our minds off it and are having a fab time with amazing sunshine!
Hugs to all.
Oooo you have the right idea tatyana. When life deals you lemons and all of that. ???
Wishing you the very best of luck for the 21st. I’ll be asking the universe to help out. Always worth a try.
Enjoy the rest of your break. Xxx
Tatanya enjoy Sussex as Angela says its always best to take advantage of a situation like this!!! A nice distraction before the 21st too which i will be sending you my very best postive vibes and a ?
Angela if its any reasurrance at all my ribs pain in the lower quadrant on right side (my right boob was the bad egg) i know i get worried its other things thats how onc told me about costochondritis i had a bone scan in Jan, but its natural for you to worry about it especially as you have your appointment Friday but i will be sending you the vibes too and will definitely be thinking of you i really do wish you weren’t in this position ?
I had a rubbish day yesterday after a routine reumotology app in which my neck situation was discussed caught a glimpse on the screen of letter from neuro to doc and was left feeling awful the op is definitely not a walk in the park the awful rare things that can happen, what it entails how long never been as scared as when i was told about the cancer Today i feel alot more positive and have to look at it differently as it could be worse
Today was cold but bright was happy to see the garden is still looking glorious with Autumn colours which normally is waning around this time of year my rose in front is still flowering too!!!
Managed to get a walk in today like to do it daily just being extra careful not to trip up!!!
Morning Michelle. Thanks for the positive vibes. ?
My right boob was also the bad egg. I’ve had rib pain before thanks to radio, just wiping myself out as this is a new pain. ? roll on next Friday. I hate this waiting lark.
It’s only natural for you to be worried about a big op like that. Give yourself plenty of time to weigh up the pros and cons. I wish things could be just ‘normal’ for a while for all of us.
I’m happy Christmas is just around the corner. A bit of distraction will do the world of good.
Enjoy your garden. I wouldn’t know where to start with mine at the minute. It’s the reason we bought the house as it’s so beautiful. Really like a mini park. The problem is, I’m no Charlie Dimmock so its just completely overwhelming. I have to leave most of it to hubby. Maybe I should sign up for a gardening class. ? I think I’d enjoy that. Xxx
Thanks Angela, it means a lot! I’ll let you know how it goes. Feeling quite cheerful today because one of my dearest friends who had BC four years ago has just had the results of her latest mammogram, all is well, they don’t want to see her for a year, and after that she goes back to the routine 3-yearly mammogram. I’m so chuffed! She and her partner have been massively supportive to me and hubby, they are gems!
for today tatyana ?? ftf and mishy to you too, it was my right one too that was the naughty one ?got another tree ?it’s a little Christmas musical ceramic thing, ???I’ve gone nuts ???nothing new there then. Love you all ??Shi xx
So, scan results were a mixed bag. Lump in left (remaining!) breast has grown a bit. I knew that cos I can feel it. Lungs no change to speak of. Lumps inside centre of chest have grown but not by much. Something in lower back/pelvic area which looks like scarring, so this could mean that there was previously undetected cancer cells there which the chemo has zapped. (Aha, gotcha, you little blighters!)
The onc doesn’t think there’s any point in continuing with gemcarbo because my bloods have struggled, with repeated dose reductions and delays, so he wants to try me on paclitaxel.
But meanwhile he wants to try a 5-day course of rads localised to the breast lump, to try and shrink that. So it’s rads planning on Tues, treatment asap, then aim to start paclitaxel at end of Dec so I get some recovery time in between.
As plans go, it makes sense. He’s very sympathetic about the neck/chest pain and dodgy breathing, but hopes we can keep that under control in the meantime. Oh, and he’s going to consult colleagues at the nearest teaching hospital to see if they have any trials that might be suitable.
I do feel better now there’s a plan, even though it’s all sht anyway and plans have a habit of getting messed up, don’t they!
Shi, I’d love to see your house full of sparkly trees! Love to Mishy, Carole, Angela and anyone else who drops by!xxx
