July 2017

[Carole_M]

Hi Angela, I’ve asked Emma about her trial and will let you know.
Sorry if I’ve asked before but is it “just” liver secondaries? If so I know of a surgeon who can remove them. He took 15 tumours out of my sisters liver nearly 3 years ago (stage 4 BC) and she is fine now. I think I wrote to you about him a while ago.

I’m ok. I retired 31st October and have had a horrendous cough, sore throat and headache since. Also had tummy problems and usual bad feet etc, so just feeling a bit rough. Nothing to worry about I hope.
Had my CT angiogram last week to check I’m ok for Diep so I’ve got the usual scanxiety, hoping I don’t hear from anyone as they also check for secondaries in liver etc.

[feelthefear]

Hey ladies.
Thank you so much for my gold hot pants. Hubby has had the day off today and read a few of your messages. Yous have had him in tears. Now he realises the power of our online friendship. ? I’m so lucky. Xxx
Carole, thank you for trying to gather info for me on Facebook. I really appreciate it. My oncologist says my nets have grown that quickly and extensively that for now surgery would be out of the question. ?
I asked him about surgery when I was first diagnosed and he said I didn’t need it. ? I think I trust him, but who knows if we’re making the right decisions.
I’m busy asking for 2nd opinions via email to specialists, also on twitter and the American site inspire. I’ve actually just had a reply from the only woman ever to be cured of bc through immunotherapy. So I’m holding out hope. Xxx

[Mishy18]

Angela re second opinions my onc who was the speaker at my where now course at Maggies told us during his talk it is always good to be a pest so to speak and if you feel your not happy with anything to go for a second opinion!!! He is excellent i put my trust in him and reseearched him when assigned him nothing is too small for him if you are worried about stuff he will see you in his following clinic when i had my problems with chemo he insisted he wasn’t going to throw the towel in and allowed me to go ahead on the very expensive Abraxane as i was TN abd wanted the best for me when i have asked what would i do if my cancer came back and i can’t have the drugs due to being allergic and he insisted there would always be a drug there for me in his cupboard if i needed it he is head of oncology in my hospital maybe you could look him up???
Anyway i don’t blame you for doing this yes you trust your onc but to be honest im like you and would do everything in my power to get the very best as that is what you deserve, you are very strong Angela and im sure youv do whatever you have to do and if that mwans a second opinion so be it ?
Yes the power of this forum is fantastic you ladies were more supportive when i needed over some i have known for many years not their fault they just didn’t get it bug higs to you and yours ??
Big hugs July girls Shi and Helena those pants were just what was needed xxx

[Mishy18]

Typos awful numb fingers xx

[Carole_M]

Angela I have sent you a PM x

[Kimi]

Hi Lovely Ladies

I’m sorry it’s been so long since I’ve been in contact, I’m struggling with anxiety & am trying to get on with my life, but with all the aches & pains etc I’m not succeeding really.  Got an appointment with GP on Weds as I contacted my BC nurse who spoke with Oncologist about rib/liver pain, reply was “ not BC related, contact your GP”, although before speaking to Onc BC nurse thought I’d be having a scan, let’s hope I’m worrying unnecessarily! I’m also getting headaches and feel “woozy”, do feel a bit cast adrift if I’m honest, but friends & OH tell me they would be keeping an eye on me if they thought it necessary, again, let’s hope they’re right. Enough about me, I’m so sorry to hear of your continuing problems, this BC lark is so **bleep** you’d think after all we’ve been through there would be some peace by now, but our strength still continues to be challenged.

Sending you loads of love & luck Angela, I hope your appointment with Onc brings you a plan of action. Michelle, good luck with your Op’, all procedures come with scary warnings, none of us would go ahead with anything if we didn’t have faith in our surgeons, hope it brings you some relief.

Tatyana, glad your treatment is not too bad to tolerate and hope it’s finished soon, and good news on the sugar front, I’ll be getting the chocolate out soon, not so keen on mince pies!

Hope you’re feeling better Carole, you don’t need that do you, my foot has only improved slightly, I bought my own insoles and am now wearing very unattractive trainers with them in, but they do help. Hope you get your Op’ date soon.

Shi & Helena, hope your both doing well, not spending too much on the shopping Shi!!

Sending you all lots of love and hand holding, thank you as always for being there “Booby Friends”.

Kim xxx

[Shi]

Hi kimi ??I’ve been to spirit and soul Eaac, you can have 4 free sessions with Macmillan, it’s very good, you spend time with horses, it has been very good and might be worth you looking into ???I’ve been ???kimi, wheeeeee because I was on lockdown from Oct to feb during chemo, I’ve gone proper ???ftf hope you’ve had some news about a trial ?? mishy hope you mum had a nice birthday It’s always difficult at birthdays, Christmas, anniversaries, Father’s Day Tatyana sending you Beautiful lady ???Shi xx

[Mishy18]

Hi Kimi lovely to hear from you sorry to hear about the anxiety its horrible isn’t it i have had a few blips with it here and there i hope you are feeling OK apart from that worrying about bc can be awful and we can take alot of reasurring to persuade us ohr fears are just that, rhe only thing i find didtracts me is a long walk but this slippy weather is stopping me i cant fall ? so im trying to find a different distraction
Shi i don’t blame you for making up for last year theres nothing like recovering from a chemo lock down to make you a bit shopping bonkers and why not!!! Yiu enjoy ??? you and your family deserve it ?

[Carole_M]

Kimmi
Good luck at the doctors tomorrow. Hope it is useful and brings you some peace of mind.
My feet are still very painful. I have to limit my walking a bit which is annoying when I’m trying to lose weight for my Diep/muscle fix op. I have orthotics from podiatrist now but they are difficult to fit in shoes and very uncomfortable.
It is so hard to lose weight on letrozole. I’m keeping to around 1200 cals a day and eating healthy stuff but hardly losing anything.

[feelthefear]

Morning ladies.
Kimi, good to hear from you. If your docs say your pains aren’t bc related then I’d believe them. Pointless wasting time worrying if you shouldn’t be. I know it’s easier said than done. Our brains go into overdrive and most aches and pains turn out to be nothing. I don’t blame you for trying to get on with your life and put bc behind you. I wish I could.
The headaches and woozy sound like anxiety. I’ve always suffered from it and get the same symptoms. Long before bc was on the scene.

Anyway, I’ve got my grandson’s here so I best rush off. He’s very demanding. ?
Hugs to you all ladies. Here’s hoping the weather improves. It feels like we’ve had 40 days and nights of rain. ? xxx

[Mishy18]

Morning ladies Angela how lovely enjoy that grandson of yours grandchildren are definitely yhr best medicine of all i hope you are feeling a little after last week and your new meds are ok to tolerate, we are sitting Ella at daughters tomorrow Oh is taking Tuesday and the off to help as i can’t lift her but still enjoying having Granma time shes a cheeky monkey bren pulling wall paper of caught her yesterday ???

[feelthefear]

Haha. Ella sounds absolutely lovely. Good that’s she’s into decorating so soon. ?

It’s rubbish when you can’t handle them on your own for whatever reason. I feel like I talk about our miles all the time but never our gorgeous little Rosalind, his baby sister. The most I could have her on my own is a cpl of hours. I just never know when that absolute drug exhaustion is going to kick in. Not that I nap, but I just worry I won’t be able to give her the attention she needs. When she’s a bit bigger it should be better.
I feel great on the new drug. Better than on the letrozole and palbociclib. Unfortunately, I’d already had my zoladex injection for the month before I got my results. Gutted as it means I’m having hot flushes for bot all.
I’ve got a feeling this drug is going to work. ?
I’m sitting waiting for my tree to arrive. 8ft was the biggest I could find. I don’t care if the neighbours call me, it’s going up tonight. ???
Enjoy your time with Ella. Xxx

[Mishy18]

Fab im sure you will get good results too ? and as you say thete really is no harm approaching another onc for 2nd op they might be able to help with a trial too i have no doubt in my mind that you will get one as you are very clued up and are strong willed!!! Cuddles with your Grandaughter im sure she loves too but yes babies can be quite hard to look after as the needs lots of attention im sure she enjoys the cuddles you give though she will feel the love ?
Ive got to sort my tree out been getting decs in and some new lights just need a tree that would help haha!!!

[Mishy18]

Evening everyone im now on waiting list fir surgery probably a couple of months ? as he wants to make sure i have not had radiotherapy for over a year apparently it can hinder healing also need to take some bone meds as im osteopenia pleased i had the dexa scan oh the joys, anyway i now know what im having done a 3 level decompression from the back of neck basically hes going to be widening the space in spine canal by removing boney spurs etc so no more supervet for me ? he does it on the dogs ?
Feeling festive some of decs up no tree yet xx

[feelthefear]

Morning Michelle.
Good you now know what the plan is. Hopefully by this time next year you’ll be pain free.
There’s frost on the garden this morning so it’s defi time you had your tree up. Ella will love it.
I only paid £30 for ours for our local garden centre. ? I love it. Makes the house all cosy as well. X

[Mishy18]

Hi Angela yes we sre frosty too i need to get ine ASAP i have the decs up just not the tree Ella won’t leave her tree alone!!! But is is a lovely cosy feeling when the tree goes up winter soups and stews in order
Im going to make some Jamies Christmas gravy at the weekend to freeze so its mot last minute
How are you feeling Angela hows the treatment have you many Se i hope not, enjoy your tree my friend we must have that catch up after the xmas when the weather improves and ehen you are up to it xx

[feelthefear]

Hmmm Jamie’s gravy. I’ll look into that.

I had a massive moan at everyone on Sunday while clearing the dinner dishes away. I told them all I wasn’t going to make xmas dinner. For a while I had them believing we were going for a curry instead. ?

I LOVE to cook but absolutely hate the clearing up. It’s horrible, especially when you’re stuffed. They all sit chatting round the table while I run around like a loon. My mam offers to help, but to be honest she just gets in the way and does it all wrong. ? there’s no pleasing me sometimes. Hubby says I like being a martyr. ??

I’ve decided I’m going to prep everything xmas eve and use foil trays etc that I can just throw away. Then there’s just plates cutlery and glasses for the dishwasher.

I’m doing great on the meds. Much better than the last regime. I feel slightly light headed but that’s it.
Yes, we should meet up when the weather picks up. That’ll be lovely. X

[Shi]

Ftf ??glad your meds are better Go with the tray idea ??you can just cook and throw then, if you put loads of tinsel on the table you can nestle the trays in there no one will see the trays ? mishy darling ??glad you’ve got a plan and someone who sounds like they know what’s what, always a comfort when you feel safe in their hands ??had my glitter in my ‘bingo’ hair today at work and twinkly top as noddy said it’s chhhhrrrriiissstttmmmmaaasssss ???Shi xx

[feelthefear]

Bingo hair and twinkly top sound absolutely fabulous Shi. ??? I’ve been wearing a few twinkly tops myself. ? you’re right, a bit of tinsel should hide the trays. ?
Well I’m off to Keswick for a few days. Fancy getting away from it all and enjoying a few walks and good food that someone else cooks. Hoping to find some lovely xmas presents too.
I hope everyone is well. Xxx

[Shi]

Ftf, I’ve pmd you ???Shi xx